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Sometimes I get so TIRED........

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Does anyone ever just feel so tired???? I just feel like I am constantly in a battle with my 5 year old (He will be 6 in 2 weeks).... I don't know if it's just his age or if he does it just because I'm his mom and he knows that I will take care of him regardless........I sometimes get so fustrated!!!!!
I'm a stay at home mom, and I thank the Lord for school, because he seems much more happier now that school is back in session. On weekends he is quite unhappy that I will not give him the one on one attention that he gets there, because I also have a 1 year old to keep up with! Like I said Luke just cries about everything and has pretty much zero patience for anything. If I don't make his meals fast enough he's mad, when I change his diaper he cries, when I don't keep him busy enough, he screams. I just feel like I'm never going to make him happy.......
As a parent it breaks my heart, and I just feel stressed out. Its hard to explain, but I have a feeling that someone on here may be going through the same thing or has gone through it at some point. If so how do you keep your patience with them???? Is it (hopefully) a stage that he is going through? Will he ever stop trying to push my buttons all the time? Should I just ignore him when he is crying? His developemental therapist use to tell me to ignore him, and I would try but he doesn't stop........he just keeps crying, then it turns to screaming and he will keep this going and going AND going. Sometimes I have to yell at him to try to get his attention, and that brings on more crying. It feels like an ongoing battle.
I just feel so alone sometimes, when it comes to parenting a child with CP.

5 replies

Maybe it's the age, gender or the name ;) My Luc, being 5 1/2 yrs old and a boy obviously will have his moments like that also. Where nothing mommy or I can do to make him happy. But I have a few things you can try. One thing we have learned is that his brain is constantly working at a higher level then most since he doesn't have to concentrate on walking, talking, standing, balance, etc etc. Plus he's got some sensory challenges and loves stimulation of sounds and vibrations. So keeping his mind active was the trick in keeping him happy. We've found toys with push buttons, vibrations, lights and other actions that he loves to play with. Then over time we've multiplied those toys and he has them scattered around the room so that he can go from toy to toy and be in constant motion and activity. What most toddler boys would want right? Then we got creative and we took half of his toys and put them away, and when he starts getting bored with some of his toys that are out we swap them for those toys that are put away, reviving his interest level once again for those "new" toys. We now just keep rotating toys once in a while but he does have some favorites. Hint: Get a battery charger and rechargeable batteries!! Another thing we do is sensory simulations at times with certain toys made for such a goal. We got toys at a store called Lake Shore Learning http://www.lakeshorelearning.com/home/home.jsp which have all sorts of cool items but we have stuff like clay, sticky foam, and much more. These toys are for Educators and it's no wonder that your son likes school. It's probably because they get toys at a place like this.
Since we have feeding challenges also we'll let him play with food like Jello, whip cream, yogurt, Steamed broccoli etc etc. We also do some finger painting too just to get him used to liquid on his hands. We also have a small kiddie pool we'll fill up a bit and he loves being in the water. I take a watering bucket for plants and make a small waterfall and he just loves the splashing noise and the running water on his hands. Also a good bath will sooth and revive him many times!! Plus again it's in the water that he loves.
We also can calm him by blaring some good music and even have found songs that he loves. Mommy will even do a dance with him by holding him and twirling around the room. He's a big fan of Michael Buble. ;) Also we have a portable DVD player that we'll get an Elmo CD going or even put it on the "Big" TV and he'll watch that for a bit also.
We've also taken him for car rides at times, and just getting out and about changing the environment helps big time. Plus the Sun is wonderful for his attitude. Sometimes we'll put him on the deck with a small Dora Sprinkler we have and he loves that running water.
Ok I could go on and on but it sounds like your Luke is bored and if he's active then the boredom is gone.
I hope all that gets you thinking of some things you can try. Oh and lastly if all is failing and we can tell he's just bored and being cranky then in a stern voice (not screaming or yelling) we tell Lucas to "Find something else to do" and 8/10 times he will.
God Bless and we wish you success :)

Thanks LucasDad!!!!!!! Your input is GREATLY appreciated. I am going to check out the store online to get some more toys for Luke. And thank you for the idea to keep swapping them out! It never accured to me about there brain working at higher level. But it DOES make sense!!! Together I think we can all help each other in many different ways! Thank you so much again!!!

My 5yr old went thru this SAME STAGE!! instead of terrible 2's it was AHHHHHH 5's!!! but what ive done is had him color, or munch on cereal at the table while im cooking, or something that keeps him engaged and i can look over at him and give him the attention while doing other things. MY son likes to put money in the piggy bank, so i empty it and he sits there and puts it all back, one by one. lol i dont know why this is keeping his attention for so long BUT I AM SOOO THANKFUL!!!! he has learned to calm down and be patient. At the end of a good week, he gets 1 new toy (he likes match box cars, 97cents at walmart) a movie from the library and a late snack (he loves strawberry milk). Its just little things that he can look forward too, i have to remind him every morning that if he gets red or yellow at school he will loose one item... Just experiment, thats what life is all about. most important, if he sees you upset, hes going to stay upset, so take a moment, come back and try in a calm voice. if all else fails.. ask him for a hug and tell him your sad. this works for my Jacob.

Thanks JMLMommy.......I appreciate your suggestions!

Here what at school now he was doing school now we didn't what go on with Help .
He was sick last he week. Now we can not get back to work at school . He in bed at night 8:00 pm He is nine year old . What happen ? Help
This note got from teacher.
Darien slept from 10-11:30 this morning. We went to lunch and all was fine. He went to OT and again all was fine. Although Kristy has noticed a change in his appearance in the past few weeks, like he does not feel well.
We came back to the class room and began to work on his missing assignments from this morning that he missed due to sleeping. He had a 25 minute temper tantrum about having to work, He was not going to work and did not have to finish his work for me. He tried to tell me he had a tummy ache, but I am thinking it was to get out of doing his work. He is sitting here next to me now and he seems fine. At any rate I told him I was going to E-mail you and let you know that he was not working for me and had to do his homework before he was allowed to have TV or the computer tonight.

I do know that he does not feel 100%, and I am not sure just how much of this is really not feeling well, and how much of this is not wanting to work. He keeps asking to get on PBS kids, and I told him no, not until his work is finished.
So at any rate, he does have homework to do this afternoon, I told him if it was not done then he would do it in the morning before anything else. It is in his binder with an orange post-it note on it.

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