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Hello,
I was wondering if anyone had started a personal blog about their loved one with a disability? If so I would love to add it to a blog list I am putting together!
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Anyone maintain a blog about children with disabilities?
- By UCPinfo
- Posted February 13, 2009 at 11:38 am · 13 replies
- In Getting started
- Shared with the public
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- By heathersebi98
- Posted February 18, 2009 at 3:18 pm
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http://heathersebi.blogspot.com
we adopted our son 2 years ago. He was diagnosed with CP shortly thereafter. We just write about our everyday ups and downs...
- By TessysGrma
- Posted February 19, 2009 at 9:30 am
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We keep a blog of Tessys life at:
http://tessysworld.blog.com/
- By LQT2Wendy
- Posted March 4, 2009 at 10:10 am
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I really should start a blog about my daughter
~ Peace & Blessings,
Wendy Long QT (Type 2) survivor
Mom to 6 year old with Fetal Alcohol Syndrome
Foster mom to a 6 year old with drug exposures
- By MamaMeg
- Posted March 10, 2009 at 8:21 am
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I have a blog in which I write about cooking, redoing our house, art, and also keep friends and family updated on my 23-month-old daughter who has diplegic CP and my 9-year-old son who does not.
http://peachesandpeonies.blogspot.com/
- By LynnEnsMom
- Posted April 18, 2009 at 5:34 pm
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I have a blog called PedalingBackwards at http://my1spot.wordpress.com
I have 5 children, the youngest of whom is fed by g-tube, is developmentally delayed, has had numerous surgeries, therapies, struggles, succeeds in her way, and brings us tremendous joy (plus gray hairs).
- By AmyGenn
- Posted May 14, 2009 at 11:29 pm
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My blog is called Inside Amy's World. I mostly write about my precious (almost 4 yr old) son, Eli, who has a severe case of CP....and is 100% tube fed.
I love to share our therapies, equipment, and life in general.
In March I did a bunch of posts in honor of CP Awareness Month. It was great. :)
Glad to meet all of you!
- By ToTheMax
- Posted May 16, 2009 at 6:39 am
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Hi! I also keep a blog about life with my little boy, Max, who has cerebral palsy. He's got his challenges, but he is doing so much better than the doctors thought he would. And I am grateful for that every single day.
We're over at http://lovethatmax.blogspot.com
- By cpmom2009
- Posted May 18, 2009 at 1:44 pm
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My blog about my daughter Elena can be found here:
http://www.elenadoodle.blogspot.com
Quick history: born at 33 weeks, 5 weeks in the NICU. Mute for nearly 2 years (tested for deafness), now has language skills higher than those her own age. Has had PT session since 9 months old. 3 strabismus surgeries to help vision, and she just had Selective Dorsal Rhizotomy this February 2009.
She's now 4 and we're very close to independent walking.
Thanks for reading,
Amy
- By HopeC
- Posted May 23, 2009 at 12:59 pm
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I blog about my daughter's struggles also.
http://hopeandava.blogspot.com/
She has laryngomalacia, tracheomalacia, skeletal anomalies and CP. She's almost 14 months old.
- By SpecialDad
- Posted May 24, 2009 at 8:54 am
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Over ten years ago I started Myelin-Mail@yahoo.groups.com The group has over 200 members and is open to the public. The mail archive is loaded with information.
- By Jamie_W
- Posted June 6, 2009 at 4:37 pm
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I blog at www.ourlifeinholland.blogspot.com about how our lives have been affected by preeclamsia and cerebral palsy.
- By Vidasista
- Posted June 16, 2009 at 9:03 pm
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Sure do. Please visit Life of Logan...
http://loganssuperheroes.blogspot.com
- By RandiS
- Posted October 23, 2009 at 8:40 am
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I started a blog a few months about where I post about products and ideas to help families achieve normalcy in a life filled with equipment, paperwork and appointments. I'm sure most parents like me with a child with CP will relate! Check it out at:
http://TheAdaptedLife.blogspot.com
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