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major surgery?
- By Marinewife02 · New reply 6:56 pm
- Discussion in Treatment and therapies · 2 replies
- My 5 year old son was diagnosed at 7 months with Left Hemi Cp- his dr. has recently reccommended surgery and wants to do a heel cord lengthening- split posterior tendon transfer- as well as a tibial osteotomy ...
Adapted Gloves?
- By RandiS · Posted yesterday at 10:09 am
- Journal · 0 replies
- I came across these "adapted" gloves at a local shop and thought I would share. It's always a challenge to get gloves on my son with CP; his fingers just don't want to separate and cooperate! And mittens ...
The News
- By JJG1023 · New reply yesterday at 4:46 am
- Journal · 1 reply
- Jack has always been a little behind in his developmental milestones, and fussy to boot. But lately, around the time he turned 1, his fussiness really got bad. He was very, very needy and cried most of ...
Play group for kids with difference in or around Tallahassee
- By Judemom · New reply November 5, 2009
- Discussion in Help for you and your child's life · 1 reply
- Hi there. I just joined this group and I'm so thrilled to see all you out here willing to share your challenges. I had no idea such spaces existed and this is such a huge relief to me. So I'm wondering ...
I have finally stopped crying...
- By Jaysinsmommy · New reply November 4, 2009
- Journal · 4 replies
- On Friday October 16th we had an appointment with my son Jaysin's psychologist for our final test results. There was no question in our minds that our son was somewhere onf the ASD scale it was just a ...
Inspire members featured
- By Brian · New reply November 4, 2009
- Journal · 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
my 8 month old
- By kenjdn422 · New reply November 4, 2009
- Discussion in Getting started · 7 replies
- My son is 8 months old, and when he was 3 months old he was put into the hospital at the hands of his father. So now being a young mother i am faced with a huge changelle of raising a child with spiecal ...
Sometimes I get so TIRED........
- By MAJECAL · New reply November 4, 2009
- Discussion in Help for you and your child's life · 5 replies
- Does anyone ever just feel so tired???? I just feel like I am constantly in a battle with my 5 year old (He will be 6 in 2 weeks).... I don't know if it's just his age or if he does it just because I'm ...
Girl Scouts (Brownies)
- By screen · New reply November 2, 2009
- Journal · 2 replies
- I started my 8 and 9 yr old daughters in Brownies this week. The principal recommended it for my 9 yr old since she has cp and helps with social skills. It was a lot of fun and both girls had a great ...
Diagnosing CP...
- By Lovingourlife · New reply October 30, 2009
- Discussion in Advocacy for your child · 7 replies
- So, my son is almost 2 1/2, and doesn't have a confirmed diagnosis of CP. A year ago his neurologist said it's probably mild CP, and all of his therapists agree. He is globally delayed and has many sensory ...
Looking for blogs about family life and technology
- By RandiS · New reply October 29, 2009
- Discussion in Help for you and your child's life · 1 reply
- I'm starting a list of blogs related to families like ours who use assistive technology and augmentative communication with their kids. I would like to share this on my new blog about family life with ...
AN IEP FOR MY SON...
- By sabcanton · New reply October 28, 2009
- Journal · 2 replies
- MY SON HAS TO HAVE AN IEP DONE AT HIS SCHOOL. I AM NOT SURE WHAT TO ASK OR WHAT TO SAY. HE HAS PROBLEMS STAYING FOCUSED AND SO ON. HE HAS NOT BEEN DIAGNOSED WITH ADD OR ANYTHING. I AM NOT SURE HOW TO ...
Time to smile..
- By bzymomjh · New reply October 25, 2009
- Journal · 1 reply
- When I have really stressful days, I try to find times to smile. A whinny child that does not express herself, is so hard to take after awhile. I just pick her up and sit her on my lap and hold her. I ...
Looking for the best neurologist for hydrocephalus
- By screen · New reply October 24, 2009
- Journal · 4 replies
- My 9 yr old daughter has cp. She had hydrocephalus too. She never needed a shunt because the extra fluid drains ok but her venticles are enlarged and still have lots of fluid in them. She has no pressure ...
New Assistive Technology Ideas
- By LindsRenae · New reply October 23, 2009
- Discussion in Help for you and your child's life · 8 replies
- I am currently a college student in Arkansas. We are working on creating a business which creates products to promote independence in children with motor disabilities - specifically cerebral palsy. I ...
Weak economy affecting AT purchases?
- By LindsRenae · New reply October 23, 2009
- Discussion in Treatment and therapies · 1 reply
- Has the weakening economy affected the amount you are willing to spend on assistive technology for your child? If so, how? If not? Why not ...
Anyone maintain a blog about children with disabilities?
- By UCPinfo · New reply October 23, 2009
- Discussion in Getting started · 13 replies
- Hello, I was wondering if anyone had started a personal blog about their loved one with a disability? If so I would love to add it to a blog list I am putting together ...
Acupuncture for CP
- By angelam · Posted October 22, 2009
- Discussion in Treatment and therapies · 0 replies
- Has anyone had any luck with Acupuncture for CP? I've been researching online and there are a few studies done that seem to show some good relief from tight muscle tone. There is even a Utube video of ...
What are some of the key financial decisions you face?
- By CRiddle · New reply October 21, 2009
- Discussion in Funding your child's care · 4 replies
- Vague question, I know. I was just wondering, as a financial professional, assisting families that have children with special needs, but not personally experiencing the financial impact or insurance headaches ...
pumpkin patch
- By screen · New reply October 21, 2009
- Journal · 2 replies
- I took my 9 yr old (with cp) and 8 yr old daughters to the pumpkin patch. It was muddy so there were certain areas our daughters wheelchair wouldn't go thru. Does anyone know of a great all terrain wheelchair ...
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The My Child Without Limits Support Community connects families, friends and caregivers for support and inspiration. The My Child Without Limits Support Community is sponsored by United Cerebral Palsy in partnership with Inspire.