My Child Without Limits and Brave Kids Support Community

The My Child Without Limits and Brave Kids Support Community connects families, friends and caregivers for support and inspiration... More about this group

Keeping Hydrated During Hot Summers

By Duvie · New reply 6:37 pm
Journal · 5 replies
We all have to realize that it is more difficult for many patients to stay hydrated during warmer or hotter days. Many patients have a caregiver to help. Caregivers, such as Jo & I, need to be aware of ...

Frustrated

By jbart9 · New reply 2:04 pm
Journal · 5 replies
My almost 12 year old son is diagnosed with Spastic Diaplegic Cerebral Palsy. He was a 12 week premie, and in NICU for 9 weeks. He is doing great now and he is capable of walking, just with a uneven gait ...

Need advice on choosing a stander

By Elliebelle · New reply 12:44 pm
Discussion in Help For You and Your Child's Life · 13 replies
My lo is almost 3 yrs. old and has spastic quad. CP. We are borrowing a stander from EI right now and my lo really likes to be in it, BUT, I can't get him into it by myself, so he isn't able to be in ...

Five million

By Brian · New reply yesterday at 8:08 pm
Journal · 243 replies
Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

Should I stay or should I go?

By bek2000 · New reply June 14, 2013
Journal · 4 replies
So, some of you are old enough to remember that song by the Clash. It was an early 80's punk classic, about whether the guy stays with his girl or leaves. It doesn't exactly apply to me - my hubby and ...

Toyota Sienna - Auto Accessible Seat

By Miracle_X_2 · New reply June 13, 2013
Journal · 6 replies
Hi - I don't post on this site much but I do stalk other posts :o) I wanted to share my blog - my last post was on our new van. Many here might also find the information helpful. The information on the ...

Suspected metabolic disorder

By Jwattsmiller · New reply June 13, 2013
Discussion in Help For You and Your Child's Life · 3 replies
My two month old son is currently in a Children's Hospital and undiagnosed. It is suspected that he has a metabolic disorder. I would like to speak with other parents that have gone through something ...

Experience with Institute Achievement of Human Potential

By health_professional · Posted June 12, 2013
Discussion in Treatment and Therapies · 0 replies
The institute is located in the Philadelphia area. Has anyone attended their lectures? Your thoughts? If you have used their program with your child I am interested in the results or if you abandoned ...

Botox for CP: Administered by which Dr?

By hopeful0410 · New reply June 11, 2013
Discussion in Treatment and Therapies · 5 replies
Hello - I am researching treatment options for my 2 1/2 year old son. He is already in PT & OT but I would like to explore Botox injections. I came across the option online as a precursor to surgery ...

Travelling with a child or person with a disability

By Havewchairwilltravel · Posted June 10, 2013
Discussion in Help For You and Your Child's Life · 0 replies
Hi there, When our family travelled for the first time overseas with our son who has Cerebral Palsy I went searching to find information about how other people managed but I didn't come up with much ...

my child is Cerebral Palsy patient

By fyze · Posted June 8, 2013
Discussion in Getting Started · 0 replies
Dear Sir i am finding sources for my child Cerebral Palsy treatment is there any solution ...

Horse back riding

By LeahLynnsMommy · New reply June 7, 2013
Journal · 3 replies
We started finally horse back riding three weeks ago. I felt nervous that Leah wouldn't be able to sit and actually to my surprise she did well the first few times.. They rode inside, but these last couple ...

ABA services for CP non-verbal child

By Abaashley · Posted June 6, 2013
Discussion in Treatment and Therapies · 0 replies
So, my daughter is 4 and my husband and I taught her all functional signs to ensure her needs were met, and are now at the point where she needs a more dynamic device to communicate. I am wondering if ...

oh the stress the stress

By LeahLynnsMommy · New reply June 5, 2013
Journal · 22 replies
Well we have started leah transition process and already it showing struggles and bumps in the road. We had our team meeting the second one so far this past friday.And i walked out of there more stressed ...

two children in San Diego with PANDAS and MTHFR C677T gene mutation?

By VicciSanDiego · Posted June 4, 2013
Discussion in Building a Support Team · 0 replies
My son has multiple disorders that apparently no one else in San Diego has, nor any doctor in San Diego knows how to treat. Looking for support, knowledge or anything in and outside of San Diego. DIagnosis ...

Mess of a mom

By Ajohnson6918 · New reply June 4, 2013
Journal · 17 replies
I'm not sure where to even start. There is so much going through my mind it is just ridiculous and I know I've hit my limit. Let's begin with where we are with my son. We got the big diagnosis February ...

Rett syndrome

By chukki · New reply June 4, 2013
Discussion in Getting Started · 4 replies
Hello all, for children with Rett syndrom- anyone has any idea about general nutrition or supplements to strengthen the physical health? Thanks & regard, Shetty ...

Sooooooo frustrated!

By dancefreak4 · New reply June 1, 2013
Journal · 4 replies
Now that my daughter, Kelcie has turned 15 there is a whole different kind of discrimination being directed at her. It's like everyone around her is saying "That's far enough, you can't go any further ...

Looking for a breathing monitor for seizures

By laniesmom · New reply May 30, 2013
Journal · 16 replies
So, this last week was very scary. My daughter who is almost three had a seizure for over almost an hour and ended up on a ventilator. She is now home, breathing on her own again, and I am concerned that ...

Wheelchair seats and laterals by Aminah9

By some1nice · New reply May 26, 2013
Discussion in Treatment and Therapies · 15 replies
Hi Aminah9, I just came across your posting this week. I realize that it is a bit out dated and the original post is closed for further reply. Hence I am starting a new discussion. I hope your child's ...

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About this community

The My Child Without Limits and Brave Kids Support Community connects families, friends and caregivers for support and inspiration. This community is sponsored by United Cerebral Palsy, an Inspire trusted partner.