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New materials from UCP of Greater Birmingham's Early Intervention Conf.

UCPinfo
  • By UCPinfo · Posted yesterday at 5:01 pm
  • Discussion in Getting started · 0 replies
  • MCWL Partner UCP of Greater Birmingham recently held their annual early intervention and preschoool conference. Several presenations are available for download at: http://www.ucpconference.org ...

Updated Flu Resources Related to Children with Special Needs

UCPinfo
  • By UCPinfo · Posted yesterday at 3:12 pm
  • Discussion in Getting started · 0 replies
  • Here are great new resources on H1N1 for children and adults with disabilities from the US Department of Health and Human Services, Office on Disability and the Centers for Disease Control. Persons with ...

New Content on the My Child Wihtout Limits Website. Check it out!

UCPinfo
  • By UCPinfo · Posted November 18, 2009
  • Discussion in Getting started · 0 replies
  • We have updated the Developmental Delay and Spina Bifida sections: http://www.mychildwithoutlimits.org/?pag e=developmental-delay http://www.mychildwithoutlimits.org/?pag e=spina-bifida ...

my 8 month old

kenjdn422
  • By kenjdn422 · New reply November 18, 2009
  • Discussion in Getting started · 10 replies
  • My son is 8 months old, and when he was 3 months old he was put into the hospital at the hands of his father. So now being a young mother i am faced with a huge changelle of raising a child with spiecal ...

Hello

nettmanti
  • By nettmanti · New reply November 18, 2009
  • Discussion in Getting started · 2 replies
  • Hi everyone. I am new here. My youngest daughter who is 3 has cerebral palsy. She was one of identical twins and when we lost her sister Chloe at 26 weeks the doctors never told us there would be a chance ...

The News

JJG1023
  • By JJG1023 · New reply November 16, 2009
  • Journal · 8 replies
  • Jack has always been a little behind in his developmental milestones, and fussy to boot. But lately, around the time he turned 1, his fussiness really got bad. He was very, very needy and cried most of ...

Let him reach for the star

Terryw
  • By Terryw · Posted November 11, 2009
  • Discussion in Getting started · 0 replies
  • Darien was diagnosis with PVL (Periventricular Leukomlacia) or Cerebral Palsy, as it is commonly known. He is a busy little fellow. He is on the go five days a week attending physical, occupational, speech ...

major surgery?

Marinewife02
  • By Marinewife02 · New reply November 7, 2009
  • Discussion in Treatment and therapies · 2 replies
  • My 5 year old son was diagnosed at 7 months with Left Hemi Cp- his dr. has recently reccommended surgery and wants to do a heel cord lengthening- split posterior tendon transfer- as well as a tibial osteotomy ...

Adapted Gloves?

RandiS
  • By RandiS · Posted November 6, 2009
  • Journal · 0 replies
  • I came across these "adapted" gloves at a local shop and thought I would share. It's always a challenge to get gloves on my son with CP; his fingers just don't want to separate and cooperate! And mittens ...

Play group for kids with difference in or around Tallahassee

Judemom
  • By Judemom · New reply November 5, 2009
  • Discussion in Help for you and your child's life · 1 reply
  • Hi there. I just joined this group and I'm so thrilled to see all you out here willing to share your challenges. I had no idea such spaces existed and this is such a huge relief to me. So I'm wondering ...

I have finally stopped crying...

Jaysinsmommy
  • By Jaysinsmommy · New reply November 4, 2009
  • Journal · 4 replies
  • On Friday October 16th we had an appointment with my son Jaysin's psychologist for our final test results. There was no question in our minds that our son was somewhere onf the ASD scale it was just a ...

Inspire members featured

Brian
  • By Brian · New reply November 4, 2009
  • Journal · 29 replies
  • Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...

Sometimes I get so TIRED........

MAJECAL
  • By MAJECAL · New reply November 4, 2009
  • Discussion in Help for you and your child's life · 5 replies
  • Does anyone ever just feel so tired???? I just feel like I am constantly in a battle with my 5 year old (He will be 6 in 2 weeks).... I don't know if it's just his age or if he does it just because I'm ...

Girl Scouts (Brownies)

screen
  • By screen · New reply November 2, 2009
  • Journal · 2 replies
  • I started my 8 and 9 yr old daughters in Brownies this week. The principal recommended it for my 9 yr old since she has cp and helps with social skills. It was a lot of fun and both girls had a great ...

Diagnosing CP...

Lovingourlife
  • By Lovingourlife · New reply October 30, 2009
  • Discussion in Advocacy for your child · 7 replies
  • So, my son is almost 2 1/2, and doesn't have a confirmed diagnosis of CP. A year ago his neurologist said it's probably mild CP, and all of his therapists agree. He is globally delayed and has many sensory ...

Looking for blogs about family life and technology

RandiS
  • By RandiS · New reply October 29, 2009
  • Discussion in Help for you and your child's life · 1 reply
  • I'm starting a list of blogs related to families like ours who use assistive technology and augmentative communication with their kids. I would like to share this on my new blog about family life with ...

AN IEP FOR MY SON...

sabcanton
  • By sabcanton · New reply October 28, 2009
  • Journal · 2 replies
  • MY SON HAS TO HAVE AN IEP DONE AT HIS SCHOOL. I AM NOT SURE WHAT TO ASK OR WHAT TO SAY. HE HAS PROBLEMS STAYING FOCUSED AND SO ON. HE HAS NOT BEEN DIAGNOSED WITH ADD OR ANYTHING. I AM NOT SURE HOW TO ...

Time to smile..

bzymomjh
  • By bzymomjh · New reply October 25, 2009
  • Journal · 1 reply
  • When I have really stressful days, I try to find times to smile. A whinny child that does not express herself, is so hard to take after awhile. I just pick her up and sit her on my lap and hold her. I ...

Looking for the best neurologist for hydrocephalus

screen
  • By screen · New reply October 24, 2009
  • Journal · 4 replies
  • My 9 yr old daughter has cp. She had hydrocephalus too. She never needed a shunt because the extra fluid drains ok but her venticles are enlarged and still have lots of fluid in them. She has no pressure ...

New Assistive Technology Ideas

LindsRenae
  • By LindsRenae · New reply October 23, 2009
  • Discussion in Help for you and your child's life · 8 replies
  • I am currently a college student in Arkansas. We are working on creating a business which creates products to promote independence in children with motor disabilities - specifically cerebral palsy. I ...

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The My Child Without Limits Support Community connects families, friends and caregivers for support and inspiration. The My Child Without Limits Support Community is sponsored by United Cerebral Palsy in partnership with Inspire.