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Even YOU Can Become Disabled - Why Visitability Is Necessary

mel106
  • By mel106 · New reply yesterday at 10:10 pm
  • Journal · 13 replies
  • A Wheelchair Wonderland I remember vividly a point in time where I wished desperately that the whole world was in a wheelchair so that everyone could know what my daughter had to go through just to go ...

Boost VHC Drink - 530 Calories

Duvie
  • By Duvie · New reply yesterday at 3:25 pm
  • Journal · 67 replies
  • Thanks to a lovely lady battling ALS, I have found out about this new Boost high- calorie drink to pass on to those struggling to maintain or to gain weight. Check it out online. Take special notice to ...

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted yesterday at 3:22 pm
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Children's Hospital of Philadelphia - Low Muscle Tone and VIsion Issues

Syddie910
  • By Syddie910 · New reply yesterday at 5:34 am
  • Discussion in Treatment and Therapies · 12 replies
  • Hi all, My husband and I are taking our 16-month old daughter to see the Neuromuscular team at The Children's Hospital in Philadelphia. Have any parents out there taken their child to this facility? We ...

cp and sensory processing disorder

kimowen
  • By kimowen · New reply yesterday at 5:24 am
  • Journal · 6 replies
  • My almost 3yr old child was dx with cp around a year old. She has a mild version but affecting her slow development. She is in speech therapy and now in ot for spd. We have been in denial about her having ...

help retrieving financial assslistance with no ss card or birthcertificate

katrina1974
  • By katrina1974 · Posted April 11, 2014
  • Discussion in Advocacy For Your Child · 0 replies
  • My son was born under a false name due to my name being given wrong at birth i am having much difficulties obtainingthe document there for i recieve no financial assistance and am having difficulties ...

Blankets for kids who get tangled in their blankets

SCMama
  • By SCMama · New reply April 10, 2014
  • Discussion in Help For You and Your Child's Life · 1 reply
  • My almost-three year old has Cerebral Palsy and in recent weeks has been doing better with gaining some strength in his legs and moving his legs. This is great! However, it is causing problems for him ...

I think my child might have cerebral palsy

jlkumpe
  • By jlkumpe · New reply April 10, 2014
  • Discussion in Getting Started · 30 replies
  • I just wanted to get some input from other parents that have a child with CP. To see if I should pursue having my daughter tested. I have a 10 month old daughter that has had swallowing issues since birth ...

Botox tomorrow morning

LeahLynnsMommy
  • By LeahLynnsMommy · New reply April 10, 2014
  • Journal · 13 replies
  • Tomorrow morning is here. We are taking Leah in for her first round of Botox in her right leg, hamstring and ankle. I'm so nervous,and feel sick to my stomach. The whole idea has me feeling uneasy. I've ...

Curious About The benifits Of Coconut Oil

Duvie
  • By Duvie · New reply April 10, 2014
  • Journal · 306 replies
  • This past week I've been hearing about coconut nut oil having a lot of great benefits on the body. Can anyone say for sure that coconut oil actually is working for some patients? Thanks for any responses ...

Have you seen the Upsy?!?!?!?!

Mimi2Kayden
  • By Mimi2Kayden · New reply April 9, 2014
  • Discussion in Treatment and Therapies · 2 replies
  • A mother's invention that gave her wheelchair-bound son the chance to walk has been launched onto the worldwide market. A Northern Ireland company has turned Debby Elnatan's idea for a walking harness ...

2 years after my son's diagnosis of Colpocephaly

Faith_and_Hope
  • By Faith_and_Hope · New reply April 4, 2014
  • Journal · 15 replies
  • What a roller coaster ride it has been! The beginning, there was so much grieving, tears and denial. I quit my job of 11 year for my son and as hard as that was it was the best thing I could have done ...

Hyperbaric Oxygen Therapy

Ashleighh23
  • By Ashleighh23 · New reply April 2, 2014
  • Discussion in Treatment and Therapies · 2 replies
  • If you have any experience with HBOT would you mind sharing any suggestions or advice? My 2 year old daughter (spastic CP and cortical visual impaiemt) has been in the chamber 4 times now. From what I've ...

Hyperbaric Oxygen Therapy (HBOT) as a treatment for Cerebral Palsy

rutiphysio
  • By rutiphysio · New reply April 2, 2014
  • Journal · 6 replies
  • just found this article, http://cpnet.canchild.ca/en/resources/Ke epingCurrent_HyperbaricOxygenTherapy.pdf discussed in http://www.canchild.ca/en/ which i respect as non commercial site, http://www.canchild.ca/en/aboutcanchild ...

CVI - cortical vision impairment

rutiphysio
  • By rutiphysio · New reply April 1, 2014
  • Journal · 27 replies
  • i am physical therapist, not eye specialist, but there are so many issues that really fascinate me (except PT) that are so closely intertwined with physical-motor-development, so i would like to offer ...

Which state provides best services for child with cerebral palsy?

Calebishealed
  • By Calebishealed · New reply March 25, 2014
  • Discussion in Funding Your Child's Care · 13 replies
  • Hi I live in Mississippi and doing a little research. My 2 year old with cerebral palsy (can prop sit about 2-3 minutes with min assist, walks in gait trainer....) currently has Medicaid for disabled ...

Leg or Foot Massage Devices???

Duvie
  • By Duvie · New reply March 23, 2014
  • Journal · 57 replies
  • Wondering if anyone uses a massage device and how well it works. Jo and I sometimes suffer with our legs wanting to cramp up. Jo even has problems with her left arm occasionally. If anyone can give us ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

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The My Child Without Limits and Brave Kids Support Community connects families, friends and caregivers for support and inspiration. This community is sponsored by United Cerebral Palsy, an Inspire trusted partner.