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Welcome to Inspire!
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Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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New to site
- By Ben_M · Posted November 20, 2009
- Discussion in Teens and adults with muscular dystrophy · 0 replies
- I have a mild case of BMD. I am looking for friends and support groups in the Dallas/Fort Worth area. Also, does anyone know anything about current/new treatments and research? What about stem cell research ...
Do you know your hands are soft?
- By M_McF_M · Posted November 19, 2009
- Journal · 4 replies
- This was a rhetorical question; of course I know my hands are soft -- I've been holding them out for weeks now for my friends and family to touch, and squeeze. It's such a simple thing, but such a delight ...
Living with FSH muscular dystrophy
- By tom43 · Posted November 13, 2009
- Journal · 1 reply
- I have lived with this for almost 30 years. Only recently have I done regular exercise so my muscles don't atrophy any more. I have never found any exercise DVDs for the condition. The DVDs that I have ...
Surprised the Neurologist Today
- By M_McF_M · Posted November 2, 2009
- Journal · 17 replies
- The last time I saw my neurologist, he offered me pain medication, when I hadn't complained of pain. The time before that, he told me I had a definitive diagnosis of FSH muscular dystrophy, and that physical ...
No shoulder pain, the brown socks are gone
- By M_McF_M · Posted October 27, 2009
- Journal · 5 replies
- Having a dislocated shoulder for the last two years has been aggravating. Not only could I not use my arm well, everything I tried to do was excruciating. The neurologist told me in March that it was ...
treatment
- By AKSHAT2009 · Posted October 22, 2009
- Discussion in Raising a child with muscular dystrophy · 0 replies
- sir my son is 2 years old has been diagnosed for DMD, pls guide me for his further treatment ...
Information
- By GDevlin · Posted October 19, 2009
- Discussion in Family and friends · 0 replies
- Dear all, I am currently training to be a genetic counselor. I can pick up many books and journals to read about the symptoms of muscular dystrophy and how it is caused. However I cannot pick up a book ...
When do I get to 'normal?'
- By M_McF_M · Posted October 13, 2009
- Journal · 7 replies
- Every day that goes by, I notice little changes for the better. My fingers are squishier, my skin is softer, my swelling is smaller, my brown feet are fading. The biggie this week is that my shoulder ...
The fruits of getting better
- By M_McF_M · Posted September 29, 2009
- Journal · 22 replies
- Things are going fabulously for me!!! Love the change in the weather. It was 99 Sunday, and today the high will be 74, the leaves are falling and it is heavily overcast. I think we'll do something 'hearty ...
DMD Treatment
- By AKSHAT2009 · Posted September 25, 2009
- Journal · 3 replies
- dear all my son is 18 months old, he is diagosed for DMA . pls guide me about this treatment . what is the present statsu for this disease ...
cures available details for DMD
- By AKSHAT2009 · Posted September 24, 2009
- Discussion in Raising a child with muscular dystrophy · 1 reply
- dear sir my son 18 months old residing at jaipur-india,has been diagonsied for DMD , pls guide me the process for his treatment and where it is available, waiting for your revert ...
Two month anniversary of AP
- By M_McF_M · Posted September 18, 2009
- Journal · 35 replies
- So, its been two months since I was diagnosed with scleroedema, and took my first Doryx, and prayed for results ... and I've gotten them! For those of you who've been told AP is a hoax, pay close attention ...
Energy is back.
- By M_McF_M · Posted September 12, 2009
- Journal · 9 replies
- So, before I knew what was wrong with me, I decided that keeping myself physically mobile was going to be essential to surviving whatever this is. In Jan. 2009 I found an outstanding physical therapist ...
This hollow in my hand...
- By M_McF_M · Posted September 6, 2009
- Journal · 2 replies
- i was driving to the grocery store this afternoon, and the angle of the sun was hitting my hand just right, and there was something different about my right hand. Between my thumb and my forefinger, the ...
Swollen hands, painful joints, energy & relief
- By M_McF_M · Posted August 29, 2009
- Journal · 39 replies
- I got an email last night from a friend in health care checking on my status. In trying to respond I realized that seven weeks ago -- and for the last four years -- I hadn't really realized how incapacitated ...
Physical Progress Continues
- By M_McF_M · Posted August 28, 2009
- Journal · 3 replies
- It strikes me that I have started to take for granted that I am getting better. I have also not posted progress for more than three weeks. The edema in my arms and legs has continued to go away. I used ...
A Cure for Duchenne Muscular Dystrophy?
- By Jenasol · Posted August 10, 2009
- Discussion in Living with muscular dystrophy · 1 reply
- My husband and I are currently awaiting genetic testing results that will tell us if the fetus I am carrying tests positive for Duchenne muscular dystrophy. We already know it's a boy, so the chances ...
Scheduled maintenance this evening
- By TeamInspire · Posted August 10, 2009
- Journal · 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
Hoyer Lift
- By Judee2009 · Posted August 8, 2009
- Discussion in Living with muscular dystrophy · 1 reply
- Does anyone else use a Hoyer Lift to move their husband ...
8/5/09: My rings are really loose!
- By M_McF_M · Posted August 5, 2009
- Journal · 11 replies
- I may have to get my rings re-sized...down! I'm so excited I have this huge gap between my skin and the rings so they are kind of drooping against my knuckle. I can press my fingers together and bring ...
