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The professionalism of my doctor
- By M_McF_M · New reply November 21, 2009
- Journal · 18 replies
- The rhemy I saw a week ago has been seeing scl patients for forty years, and is a member of the college of Rhematologists, so he's not a "light-weight" in experience or knowledge about scl patients. His ...
DMD Treatment
- By AKSHAT2009 · New reply November 21, 2009
- Journal · 3 replies
- dear all my son is 18 months old, he is diagosed for DMA . pls guide me about this treatment . what is the present statsu for this disease ...
New to site
- By Ben_M · Posted November 20, 2009
- Discussion in Teens and adults with muscular dystrophy · 0 replies
- I have a mild case of BMD. I am looking for friends and support groups in the Dallas/Fort Worth area. Also, does anyone know anything about current/new treatments and research? What about stem cell research ...
Do you know your hands are soft?
- By M_McF_M · New reply November 20, 2009
- Journal · 4 replies
- This was a rhetorical question; of course I know my hands are soft -- I've been holding them out for weeks now for my friends and family to touch, and squeeze. It's such a simple thing, but such a delight ...
Surprised the Neurologist Today
- By M_McF_M · New reply November 18, 2009
- Journal · 17 replies
- The last time I saw my neurologist, he offered me pain medication, when I hadn't complained of pain. The time before that, he told me I had a definitive diagnosis of FSH muscular dystrophy, and that physical ...
Living with FSH muscular dystrophy
- By tom43 · New reply November 13, 2009
- Journal · 1 reply
- I have lived with this for almost 30 years. Only recently have I done regular exercise so my muscles don't atrophy any more. I have never found any exercise DVDs for the condition. The DVDs that I have ...
No shoulder pain, the brown socks are gone
- By M_McF_M · New reply October 28, 2009
- Journal · 5 replies
- Having a dislocated shoulder for the last two years has been aggravating. Not only could I not use my arm well, everything I tried to do was excruciating. The neurologist told me in March that it was ...
treatment
- By AKSHAT2009 · Posted October 22, 2009
- Discussion in Raising a child with muscular dystrophy · 0 replies
- sir my son is 2 years old has been diagnosed for DMD, pls guide me for his further treatment ...
When do I get to 'normal?'
- By M_McF_M · New reply October 21, 2009
- Journal · 7 replies
- Every day that goes by, I notice little changes for the better. My fingers are squishier, my skin is softer, my swelling is smaller, my brown feet are fading. The biggie this week is that my shoulder ...
Information
- By GDevlin · Posted October 19, 2009
- Discussion in Family and friends · 0 replies
- Dear all, I am currently training to be a genetic counselor. I can pick up many books and journals to read about the symptoms of muscular dystrophy and how it is caused. However I cannot pick up a book ...
A Cure for Duchenne Muscular Dystrophy?
- By Jenasol · New reply October 18, 2009
- Discussion in Living with muscular dystrophy · 1 reply
- My husband and I are currently awaiting genetic testing results that will tell us if the fetus I am carrying tests positive for Duchenne muscular dystrophy. We already know it's a boy, so the chances ...
The fruits of getting better
- By M_McF_M · New reply October 13, 2009
- Journal · 22 replies
- Things are going fabulously for me!!! Love the change in the weather. It was 99 Sunday, and today the high will be 74, the leaves are falling and it is heavily overcast. I think we'll do something 'hearty ...
Two month anniversary of AP
- By M_McF_M · New reply September 27, 2009
- Journal · 35 replies
- So, its been two months since I was diagnosed with scleroedema, and took my first Doryx, and prayed for results ... and I've gotten them! For those of you who've been told AP is a hoax, pay close attention ...
cures available details for DMD
- By AKSHAT2009 · New reply September 25, 2009
- Discussion in Raising a child with muscular dystrophy · 1 reply
- dear sir my son 18 months old residing at jaipur-india,has been diagonsied for DMD , pls guide me the process for his treatment and where it is available, waiting for your revert ...
Energy is back.
- By M_McF_M · New reply September 14, 2009
- Journal · 9 replies
- So, before I knew what was wrong with me, I decided that keeping myself physically mobile was going to be essential to surviving whatever this is. In Jan. 2009 I found an outstanding physical therapist ...
This hollow in my hand...
- By M_McF_M · New reply September 10, 2009
- Journal · 2 replies
- i was driving to the grocery store this afternoon, and the angle of the sun was hitting my hand just right, and there was something different about my right hand. Between my thumb and my forefinger, the ...
Swollen hands, painful joints, energy & relief
- By M_McF_M · New reply September 8, 2009
- Journal · 39 replies
- I got an email last night from a friend in health care checking on my status. In trying to respond I realized that seven weeks ago -- and for the last four years -- I hadn't really realized how incapacitated ...
Physical Progress Continues
- By M_McF_M · New reply September 2, 2009
- Journal · 3 replies
- It strikes me that I have started to take for granted that I am getting better. I have also not posted progress for more than three weeks. The edema in my arms and legs has continued to go away. I used ...
Guestbooks are now live!
- By TeamInspire · New reply August 15, 2009
- Journal · 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
Scheduled maintenance this evening
- By TeamInspire · New reply August 12, 2009
- Journal · 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
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