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Waiting for test result
MDLG 2A
- By sewa · New reply yesterday at 6:02 pm
- Journal · 2 replies
- My condition has got worse over the last 2 weeks, i have a stand up hoist machine to help me out of a seating position..........My shoulders, back, legs are in a lot of pain. My pain killers which are ...
LGMD (wanting to find out which kind of LGMD I have)
- By tigerfanla · New reply yesterday at 2:33 pm
- Discussion in Teens and adults with muscular dystrophy · 2 replies
- I was diagnosed with LGMD in 2008. I have a slow progression adult onset, but had signs at any early age. I did a muscle biopsy in 2008 but the tests were not able to determine which type I have. Does ...
Five million
- By Brian · New reply June 17, 2013
- Journal · 243 replies
- Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...
dmd
- By ROHTASHGULYANI · Posted June 14, 2013
- Discussion in Teens and adults with muscular dystrophy · 0 replies
- My nephew is 12years and suffering frm dmd muscular dystroprhy and also he is unable to walk,sit without supports and now last wk he is nt able to take upright position of his nebak.everyone is very upset.pl.if ...
Limb girdle md
- By kiya94 · New reply June 6, 2013
- Discussion in Living with muscular dystrophy · 1 reply
- I was diagnosed age 14 with lgmd. Im 19 now. Im no longer able to get from a sitting position but I can still walk with use of a cane. Just wanna ralk to othets for their take. and see where they ae now ...
Anyone with an ostomy?
- By pdes · New reply May 30, 2013
- Discussion in Living with muscular dystrophy · 1 reply
- Progressive muscle weakness in advanced muscular dystrophy can impair bowel and bladder function. In patients with spinal cord injuries (SCI), getting a urostomy -- a urinary diversion -- to manage incontinence ...
living with MDLG
- By viena123 · New reply May 16, 2013
- Journal · 1 reply
- HI i have MDLG since i was a child but it was'n until 2006 i was diagnose and im not sure wht type i have..the doctor said i had it all my life and its genetic, but no one in my family have it and i came ...
A new Inspire report in collaboration with Stanford Medical School
- By Brian · New reply May 5, 2013
- Journal · 84 replies
- As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...
Clinical trials
- By BeeLee · Posted April 28, 2013
- Discussion in In the news · 0 replies
- Anyone hear of Follistatin to build muscle ...
Medication
- By sewa · Posted April 20, 2013
- Discussion in Living with muscular dystrophy · 0 replies
- I take NAPROXEN 500 MG, which does seem to work for my pain, does anyone take anything different for Muscular Dystrophy limb girdle type 2a Thanks for reading xx ...
The Inspire Q&A: Inspire talks with Deanna Attai, MD
- By John2 · New reply April 16, 2013
- Journal · 16 replies
- Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...
Duchenne Muscular Dystrophy 6 yrs old
- By Skhan1232 · New reply April 15, 2013
- Discussion in Newly diagnosed · 7 replies
- My son 6 years old is recently diagnosed with DMD. It has completely devastated our life. But we don’t want to lose our hopes. Doctor has suggested putting him on steroid Prednisone. Is there anyone who ...
What a life !!!!!
- By vqbigpapa · New reply April 11, 2013
- Journal · 2 replies
- To be honest, I don't know where to start...I was diagnosed in 2003 with LGMD type 2 i think? I was born with it, all the time i thought i was just a clumsy kid, i would run and just fall for no reason ...
WANT TO KNOW TREATMENT FOR LGMD
- By anjanajay · New reply April 7, 2013
- Discussion in Living with muscular dystrophy · 1 reply
- I am a 25 years old lady. I was diagnosed at the age of 18 to have LGMD. Doctors in my city say that there is no cure for LGMD and that researches are going on. I wanted to know whether any cure for the ...
Please Doctors, do find an absolute cure for LGMD as soon as possible......
- By anjanajay · New reply April 7, 2013
- Discussion in Living with muscular dystrophy · 5 replies
- I am Anjana, a South Indian lady. I am 25 now. I had waddling gait from the day I started walking and i used to fall frequently. Everyone used to complain me about it. But those days I didn't have any ...
6 year old son DNA testing
- By rmatthews · New reply April 4, 2013
- Discussion in Newly diagnosed · 1 reply
- My son is 6. The last two years Ethan has been really sick. We have seen so many doctors and have blood tests done at least a dozen times. His ck level comes back high every time. They tested It again ...
thankfulness
- By valdezz · New reply April 3, 2013
- Journal · 3 replies
- I wanna thank all of you who have kept me in your prayers. These last couple of months has been trying. But with your prayers and truly the strength from God, I made it. Thanks Sis. G for starting the ...
adults with limb girdle MD
- By grammab · New reply March 26, 2013
- Discussion in Teens and adults with muscular dystrophy · 2 replies
- Would like to connect with others who have this disease particularly in the south Florida area. Need to find good medical care and a support group. Have had falls and now broken femur ...
People with myotonic dystrophy
- By Angel6824 · New reply March 24, 2013
- Discussion in Living with muscular dystrophy · 3 replies
- It has been very hard to be living with this disease for 24 years I was born with it so it is all I know but over the past couple of years I have been going down faster than I would like I would like ...
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