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Boost VHC Drink - 530 Calories

Duvie
  • By Duvie · New reply yesterday at 4:16 pm
  • Journal · 72 replies
  • Thanks to a lovely lady battling ALS, I have found out about this new Boost high- calorie drink to pass on to those struggling to maintain or to gain weight. Check it out online. Take special notice to ...

Working and Dealing with Limb Girdle

olivorob
  • By olivorob · New reply April 20, 2014
  • Discussion in Teens and adults with muscular dystrophy · 5 replies
  • Hello, I am 36 years old and I have Limb Girdle. I have had this for most of my life but it did not really affect me until about 10 years ago. I currently work at an engineering firm. I have worked here ...

Ataxia/gait abnormality and Myopathy

achemea
  • By achemea · New reply March 29, 2014
  • Discussion in Symptoms · 11 replies
  • I have been diagnosed with Myopathy since Nov 2013 with exact cause unknown as of now with proximal muscle weakness (worst on right side especially my leg), balance problems, partial left eye ptosis and ...

LGMD Sufferer

gems12
  • By gems12 · New reply March 24, 2014
  • Discussion in Living with muscular dystrophy · 2 replies
  • Hi there everyone. I have recently been diagnosed with Calpainopathy (LGMD2A) After 2 years of being told my symptoms where "all functional" I have a brother also who was diagnosed back when he was 18 ...

Leg or Foot Massage Devices???

Duvie
  • By Duvie · New reply March 23, 2014
  • Journal · 57 replies
  • Wondering if anyone uses a massage device and how well it works. Jo and I sometimes suffer with our legs wanting to cramp up. Jo even has problems with her left arm occasionally. If anyone can give us ...

Driving with lgmd

kiya94
  • By kiya94 · New reply March 23, 2014
  • Discussion in Living with muscular dystrophy · 2 replies
  • I want to get my license and drive. Is this possible? Tips and advice please. I wanna be as independent as possible ...

pregnacy and scleroderma is it dangerous?

Melinda27
  • By Melinda27 · New reply March 19, 2014
  • Journal · 10 replies
  • My husband and I have started toying with the idea of having children, but we are concerned that I may not be able to physically handle the pregnancy and taking care of the child after. I have limited ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

LGMD: A Lesson in Humility

CarolFerrao
  • By CarolFerrao · New reply March 15, 2014
  • Journal · 1 reply
  • Humility has been one of the most prominent learning curves in my journey with LGMD. Especially since I spent about 18 years without any trace of disability. We usually think that such extreme conditions/illness ...

Me

pehubby
  • By pehubby · New reply March 10, 2014
  • Journal · 9 replies
  • 2/13/14- Had a bad night. It seems as though my MD is starting to affect my arms as well as my legs.I find that sitting in my office chair for to long is causing my legs to get pain. I can't walk without ...

Others with Myotonic/DM1

YvonneMc
  • By YvonneMc · New reply February 27, 2014
  • Discussion in Symptoms · 3 replies
  • I am 46 and have MD1. Myotonia since 11. Pain and weakness last 5-6 years. Shortness of breath, heart issues and occasional choking now. Progressing faster now it seems. Looking to connect with others ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

Me

pehubby
  • By pehubby · New reply February 11, 2014
  • Journal · 5 replies
  • 2/7/14- Another few day have gone by and I am having trouble in my right thigh and leg. It seems tight and I feel like it is almost dead weight and hard to walk on it. I am also noticing indentations ...

Career choices with muscular dystrophy

kiya94

Myopathy and Shortness of breath

achemea
  • By achemea · New reply January 26, 2014
  • Discussion in Symptoms · 5 replies
  • Hello everyone, Just wanted find out if any of you have had shortness of breath at times. I'm newly diagnosed with Myopathy but have had symptoms for over 15 years. Type unknown but most of my lab work ...

Lgmd2b

kiya94
  • By kiya94 · New reply January 22, 2014
  • Discussion in Teens and adults with muscular dystrophy · 4 replies
  • Looking to connect with others with lgmd type 2b and share storys and experiences. If so please msg me. 19 f. But I would also like to talk with older ppl to see what I can look forward to ...

Grant support?

Team4mom
  • By Team4mom · Posted January 14, 2014
  • Journal · 0 replies
  • Our son has Duchennes Muscular Distrophy, he is almost 12 yrs old. He's at the point in his life where he is no longer walking. We need to remodel our home for his disability. I've tried to get grants ...

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