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I saw my neuro yesterday, & she told me of a new med coming out this year called fampridine - it's supposed to help with walking (I walk with walker) - anyone hear about this?
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Fampridine?
- By Barney1
- Posted January 14, 2009 at 11:55 am · 7 replies
- In Traditional treatments
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7 replies
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- By nogo
- Posted February 10, 2009 at 12:37 am
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Barney,
No, I haven't heard about it, but sounds encouraging to have a drug so specifically beneficial for that symptom. I hope it gets through OK and safely on the market. I send Blessings, Jan
- By Barney1
- Posted February 10, 2009 at 8:09 am
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Hi nogo, me too I am seeing her today, I will ask about the status of it. It is supposed to improve nerve transmission in the legs. BTW - The dog on your left looks just like my old dog, "Hobbs" - Barney
- By nogo
- Posted February 22, 2009 at 8:54 pm
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Barney,
I've been researching holistic medicine lately and that has kept me tied up during my feel good enough to post times. So, I didn't see your response. My golden's name is Chester and he is soooo funny. I've had 4 goldens and 2 Black Labs and they've all been so different. Chester is like a puppy all the time! He is very excitable and you can see by how he's looking at me -he's also very "adoring" If you need a dose of lovin - he's your dog! I don't know what I'd do without my animals! Find out anything about the new drug? Jan
- By Barney1
- Posted February 23, 2009 at 7:39 am
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My neuro said it my be as late as 4th quarter of 2009. Dissapointing, I was hoping it would be sooner. In the mean time, I went for an evaluation for "walk-aide" - it's a electronic gadget that straps on your leg, to help lift your toes up when taking a step. The Doc said I am a perfect candidate, cost=$5000.00! now it's up to my insurance.
- By nogo
- Posted February 23, 2009 at 5:48 pm
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Hi - hope the insurance company doesn't balk! I trip a lot now - I used to blame it on certain shoes, but now I know it's the MS. It's not as bad as yours though. My biggest problem is I lean forward more and more which fatigues me terribly - not to mention hurts my back. So I can't walk very long and I can't stand more than a couple minutes without a cane. I may have to go to a walker if my balance keeps getting worse. I'll keep walking as long as possible - discouraging. Joy comes from many different things though. Blessings, Jan
- By CathyN
- Posted May 21, 2009 at 10:23 pm
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Hi Nogo and Barney:
I've read both of your entries and you sound like me. I'm new to this board.
I also have a lab, her name is rosie and she is my best friend.
I have PPMS since May, 2007. I was on Tysabri for 13 months with no change. I recently moved to Tennessee and now have a new MS Dr. He has just started me on Cellcept which he claims is the more appropriate med or PPMS. I've only been taking it for a week, however, he tells me that he has had excellent results with this medication. It is typically used for transplant patients so their bodies don't reject the new organ. This makes sense since the immune system attacts our bodies.
I have a very difficult time walking and like you Nogo, I'm trying not to use walking aids until necessary, however, not sure how long that will be. I now bend forward and this hurts my lower back (alot). I try to be concious (sp) of this and try and straighten up but it is very difficult.
Thanks for listening and I will let you both know how this drug works!
Keep hope going...
Cathy
- By Barney1
- Posted May 22, 2009 at 8:06 am
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Hi Nogo - my insurance company came back with their reply, out of the $5,000.00, they will cover $500.00. So, that's the end of that. Now my neuro wants me to get a baclofen pump installed. It's a hockey puck sized thing that goes in my guts, & has a tube that goes around to my spinal cord, & injects baclofen into it. I am leary.
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