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Diagnosis?

ldsgirl76
  • By ldsgirl76 · New reply September 4, 2010
  • Journal · 14 replies
  • Well, I finally had a doctor tell me he had a diagnosis. My neurologist said that his diagnosis for me is Multiple Sclerosis, but then right after he says this he mentions that I should get a second opinion ...

Worry about which treatment I should take next

justlookinforanswers
  • By justlookinforanswers · New reply September 4, 2010
  • Discussion in Treatments and therapies · 1 reply
  • Hello am new at this well I have MS as of 2008 my first treatment was Rebif for almost a yr but became immune. Than I try Copaxone for a month and did not work well with my body. Now my Dr. ask me to ...

A few more words about privacy

Brian
  • By Brian · New reply August 27, 2010
  • Journal · 76 replies
  • All of us at Inspire care a great deal about your privacy and work hard to ensure the information you trust us with is kept safe. We designed Inspire so that you have complete control over how your personal ...

It's pretty self explainatory...or you'd think so anyways...

ImJusMe1983
  • By ImJusMe1983 · New reply August 24, 2010
  • Journal · 48 replies
  • Ok...YEARS of BS and new symptoms and not ONE doc can tell me for sure what's up!!! 7 doctors are on the job and another one comes into play soon and no one is getting anywhere. I am doing my own research ...

What is this, ?? could it really be MS

mommies4
  • By mommies4 · New reply August 14, 2010
  • Discussion in Living with MS · 2 replies
  • Wow I look at all your storys and wonder how we all got here.Anyways,I'm almost to my breaking point.The Pain,spasms,pins & needles, numbness, shocking sensations,the burn in my legs and arms,the dreadful ...

swollen hands

michctcip
  • By michctcip · New reply August 14, 2010
  • Journal · 5 replies
  • So, I have MS and MCTD and my hands resemble a hand in ski gloves b/c they are so swollen & you can't see where my knuckles are......sausage fingers anyone ...

TYSABRI AND MOOD CHANGES

krystlev1
  • By krystlev1 · New reply August 5, 2010
  • Discussion in Living with MS · 3 replies
  • I have been on Tysabri since July of last year and it has been GREAT, the best medicine out there for my agressive form of MS. I had to skip two treatments due to insurance reasons and when I got back ...

QUESTION # 2

mommies4
  • By mommies4 · New reply August 4, 2010
  • Discussion in Emotions · 1 reply
  • Lets just say I might be the patient in search of a DX,having almost if not close to all of the same pains as all of you.Nonstop for the past 9 mths.Long story I'll tell more later on that. Besides the ...

Provigil coverage denied

marimc
  • By marimc · New reply August 2, 2010
  • Journal · 8 replies
  • I've been taking provigil for 2 yrs. for MS fatigue and love it. Went to get my script filled this week and found out my insurance no longer covers provigil for MS fatigue. I was already paying a $120/mo ...

"Just Because"

djmtard
  • By djmtard · New reply July 21, 2010
  • Journal · 7 replies
  • I wrote this poem, to ALL health care workers; Just Because I don't respond, doesn't mean I didn't hear you.......... Just Because it takes more time, you can't make me wear a diaper........... Just Because ...

Heat intolerance

michctcip
  • By michctcip · New reply July 18, 2010
  • Journal · 20 replies
  • Summer is here & so is the heat & humidity. W/ my MCTD and MS - the heat can be so tricky for my symptoms....Im looking for any tricks of the trade to help with body heat...I sweat 300+X's more prespiration ...

MS treatment CCSVI

MartaPytel
  • By MartaPytel · New reply July 7, 2010
  • Discussion in Treatments and therapies · 2 replies
  • How do I get this treatment, my neuro said NO and I understand thst there has been one death and one very bad illness. Don't they realise that I DON'T CARE!!!!! Where can I go and how much does it cost ...

colosomy vertical with cat scan

MaryKarnes
  • By MaryKarnes · New reply July 5, 2010
  • Journal · 9 replies
  • can someone tell me if they have had this test I had a colosomy but did not get to have it all due to scars from operations. can you tell me about this procedure ...

More on my story with MS (turned Primary Progressive?)

Lyns-Wisconsin
  • By Lyns-Wisconsin · New reply July 2, 2010
  • Journal · 11 replies
  • Before I finish my story, I just want to address this 4-AP once more, as I keep seeing people saying their Doctors are recommending they try this "Ampyra." These same docs refused to give this to their ...

Tysabri and mood

MinTs
  • By MinTs · New reply June 30, 2010
  • Discussion in Emotions · 2 replies
  • Has anyone used Tysabri as a treatment option and if, so, did you have any mood changes? I recently had a three month stint off of my Tysabri (for insurance reasons) and I've noticed my mood has changed ...

White Matter Lesions ... ????

ldsgirl76
  • By ldsgirl76 · New reply June 26, 2010
  • Discussion in Living with MS · 2 replies
  • We still don't know what's wrong. I am so tired of waiting while the doctors twiddle their thumbs. All of them think they are smart enough to figure me out ... that they will put my puzzle together only ...

limited Copaxone injection sites

Fluttergirl66
  • By Fluttergirl66 · New reply June 25, 2010
  • Journal · 3 replies
  • Has anyone gotten the OK from their Dr. to use any other injection sites other than the 7 listed in the illistrated manual that accompanies Copaxone's packet ...

Ampyra/4-AP

cganger
  • By cganger · New reply June 24, 2010
  • Discussion in Treatments and therapies · 2 replies
  • Several years ago I tried 4-AP and didn't do well, I got worse. Will I have the same results with Ampyra? I don't want to try it, if so. Thanks for any imput ...

Plop

MinTs
  • By MinTs · New reply June 23, 2010
  • Journal · 1 reply
  • As I write this, my dog just got done rolling off his chair. PLOP. Poor guy. He was sleeping so nicely and it's surely not his fault that the ottoman is not a place for a sleeping golden retriever to ...

Total denial

MinTs
  • By MinTs · New reply June 23, 2010
  • Journal · 2 replies
  • Ok, so I'm in total denial about how much my dizziness has effected my life. On a Likert scale, of 1-5, I keep rating my dizziness as a 1 or 2 (five being worst). My balance therapist just pointed out ...

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The Myelin Repair Foundation Multiple Sclerosis Community connects patients, families, friends, caregivers and researchers for support and inspiration. This community is sponsored by the Myelin Repair Foundation, an Inspire trusted partner.