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Living with a movement disorder
Alternative ways to contribute to the understanding of the disease
- By Fernando14 · Posted November 4, 2009
- 0 replies
- Hello friends. Given our circumstances, it seems interesting to embrace any option, tool or advice that allows us to cope our disease and our whole existence from a different point of view, always as ...
New interesting VISUAL tool in the physiotherapeutic advice area (II)
- By Fernando14 · Posted October 8, 2009
- 0 replies
- Dear friends. A month ago I introduced you a new option to get helped and learn in the physiotherapeutic area, now more intuitive than ever, at the url: http://webs.ono.com/distoweb [no banners, no ads ...
My Experience
- By voxina · Posted October 3, 2009
- 0 replies
- I have Tourette Syndrome. (TS) It causes me to have uncontrollable movements, and to say things without being able to stop. My symptoms are quite severe for TS, including falling, hitting, kicking and ...
Chorea
- By Stephanierace80 · New reply July 22, 2009
- 1 reply
- Hi, I am a 29 year old female from buffalo ny. I have been living with Chorea for as long as I can remember. It feels like I am the only person with this disease and i would love to meet others who have ...
PKD
- By Sunshineonmyface · Posted June 20, 2009
- 0 replies
- Does anyone have this disorder out there that combines Paroxymal dystonia, chorea, choreathetosis. I would really like to talk with someone that has any of these diagnoses ...
National Dystonia Awareness Week
- By DMRF · Posted June 1, 2009
- 0 replies
- For more than 30 years, the Dystonia Medical Research Foundation has worked to wipe out dystonia. Our efforts began long before most people, including healthcare professionals, really knew or cared about ...
Knowledge Management related to movement disorders.
- By Fernando14 · Posted May 18, 2009
- 0 replies
- Nowadays many big companies all over the world are interested in what is called Knowledge management. This concept, so very close to learning process, comes when the experience value is in addition to ...
The mind of someone suffering any movement disorder
- By Fernando14 · Posted April 28, 2009
- 0 replies
- I have always said, as it appears in distoweb, people suffering dystonia/s, Parkinson’s, dystrophy, essential tremor and/or any other movement disorder show important symptoms that condition their lives ...
Benign Paroxymal Torticollis of Infancy (BPTI)
- By advocate4myson · Posted April 19, 2009
- 0 replies
- My 8 month old was recently diagnosed with this disorder, although I'm not convinced. A orthopedist diagnosed a neurological condition. One that he never heard of before I mentioned it. You can find Cameron's ...
Taking care of our mind (as much as of our body): a new interesting help
- By Fernando14 · Posted April 5, 2009
- 0 replies
- We are really conscious of the physical handicaps we must deal with in our daily tasks. Each one has to manage with the symptoms of his dystonia, Parkinson, tremor, dystrophy or whatever the movement ...
Neuroscientists consider music as a powerful reducer of anxiety and hostili
- By Fernando14 · Posted March 19, 2009
- 0 replies
- Neurology specialists attending the XXVIII Sociedad Andaluza de Neurología Annual Meeting (SAN, in Cádiz-Spain) emphasized that music can benefit some disorders as a treatment, but curiously it can also ...
Welcome any single help from anywhere
- By Fernando14 · Posted March 2, 2009
- 0 replies
- Hello, friends of mine. Everyone is conscious of the importance of sharing experiences, information, knowledge and even feelings and emotions, the way we do through this site. I strongly believe it is ...
This new year as a new opportunity to TRY things :o)
- By Fernando14 · Posted January 5, 2009
- 0 replies
- Dear all. Let me please wish you a great new year 2009 !! It has been a pleasure to share with you so many things about dystonia, but specially about hope, healthcare and positive feelings that helped ...
Sharing as the best way to face this together...
- By Fernando14 · Posted November 14, 2008
- 0 replies
- I am from Spain-Europe and I would love to collaborate somehow with you. So this is me trying to share every single detail and experience with other people living with dystonia. I started to live my torsion ...
