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Why meds and not HBOT

aNewBob
  • By aNewBob · Posted November 17, 2009
  • Journal · 2 replies
  • Today seemed a little better. He is still very tired. He kept wanting to go back to bed. i have read that sleep is good for a brain injury. But if he sleeps all day then he won't sleep at night. Wished ...

would like to talk with othercaregivers

kellyjoe
  • By kellyjoe · Posted November 15, 2009
  • Journal · 0 replies
  • my husband is 41 and recently had a chemical spill at work that left him with a brain injury causing a type of dementia we have a 20 month old daughter looking for other caregivers to talk with that might ...

My granddaughter is dying from a rare Metabolic disorder

nanainpain
  • By nanainpain · Posted November 12, 2009
  • Journal · 3 replies
  • Hi, I am at lost for words and feel extremely hopeless. My 1 yr old granddaughter was diagnosed with Molybdenum Cofactor deficiency with 2nd option of Sulfite Doxadise definiency. This being 50 known ...

Alternative ways to contribute to the understanding of the disease

Fernando14
  • By Fernando14 · Posted November 4, 2009
  • Discussion in Living with a movement disorder · 0 replies
  • Hello friends. Given our circumstances, it seems interesting to embrace any option, tool or advice that allows us to cope our disease and our whole existence from a different point of view, always as ...

New here

finndancer
  • By finndancer · Posted October 22, 2009
  • Discussion in My diagnosis · 0 replies
  • I have been dealing with Dystonia for the last 2 years and finally found someone to put a name to what is happening to me...Paroxysmal Non-Kinesiogenic Dydkinesias ( PNKD ). I am really struggling with ...

hello

kellyjoe
  • By kellyjoe · Posted October 21, 2009
  • Journal · 10 replies
  • hello new to site kellyjoe ...

busy week

ann43
  • By ann43 · Posted October 11, 2009
  • Journal · 0 replies
  • this is fair week, in the community where i live. a very big celebration for the area. i will do that a couple times this week. i am also going out of town to kelly's island ohio this coming weekend with ...

New interesting VISUAL tool in the physiotherapeutic advice area (II)

Fernando14
  • By Fernando14 · Posted October 8, 2009
  • Discussion in Living with a movement disorder · 0 replies
  • Dear friends. A month ago I introduced you a new option to get helped and learn in the physiotherapeutic area, now more intuitive than ever, at the url: http://webs.ono.com/distoweb [no banners, no ads ...

My Experience

voxina
  • By voxina · Posted October 3, 2009
  • Discussion in Living with a movement disorder · 0 replies
  • I have Tourette Syndrome. (TS) It causes me to have uncontrollable movements, and to say things without being able to stop. My symptoms are quite severe for TS, including falling, hitting, kicking and ...

Apocalypse - Ice Cream

Betty-Oops
  • By Betty-Oops · Posted October 1, 2009
  • Journal · 0 replies
  • "Without ice cream, there would be darkness and chaos." ~Don Kardong~ I was a child during the 60's. Television images imprinted my young mind with Walter Cronkite's nightly narratives. Political dissension ...

Do I have a problem?

FingerBugs
  • By FingerBugs · Posted September 17, 2009
  • Discussion in Symptoms · 0 replies
  • I am not sure if this means anything to anyone, but I am tired of feeling like a freak or spaz. I have this finger thing I do (rubbing at best description). Apparently, I have done this since I was born ...

The Grand Twitch: Tourette Syndrome

voxina
  • By voxina · Posted September 14, 2009
  • Journal · 0 replies
  • I'm a teenager with severe Tourette Syndrome. If you walked by me in the supermarket, you'd realize, at best, that I avoided eye contact, and at most, you'd see me thrashing around on the floor, spitting ...

Spasticity and Spasms; what a life

LoneWolff
  • By LoneWolff · Posted August 31, 2009
  • Discussion in Spasticity · 5 replies
  • As a result of a Feb./09 accident, I have what I consider, pretty severe Spasticity and muscle spasms. The muscle spasms wake me up about every 1 to 3 hours during the night. The spasticity make it very ...

hello

mrislander
  • By mrislander · Posted August 21, 2009
  • Journal · 0 replies
  • I have not posted any journal ...

5 minutes on the lysosome. Because it's time we know.

StephLynStill
  • By StephLynStill · Posted August 13, 2009
  • Journal · 0 replies
  • So did you ever wonder what happens to the tadpole's tail? Does it just fall off? No actually. Lysosomes eat it. (autophagy: the cell's ability to eat itself...) And the webbing in our fingers and toes ...

Scheduled maintenance this evening

TeamInspire
  • By TeamInspire · Posted August 10, 2009
  • Journal · 13 replies
  • All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...

Janice Morris

Faraway
  • By Faraway · Posted July 29, 2009
  • Discussion in My diagnosis · 3 replies
  • I have just been diagnosed with Tardive Dyskinesiaa nd I would like to talk to others who have the same thing. I need to know how it effects your everyday life. How do you live with so much uncertanity ...

Lysosomal Disease and Alzheimer's

StephLynStill
  • By StephLynStill · Posted July 27, 2009
  • Journal · 0 replies
  • Hi, Here is another little boy affected with Lysosomal Disease, Dillon. The correlations between Lysosomal Disease and much more well-known issues like Alzheimer's are being uncovered every day. With ...

Chorea

Nundi
  • By Nundi · Posted July 22, 2009
  • Discussion in My diagnosis · 0 replies
  • My Mum has Chorea and does not know where to begin she lives in Zimbabwe and there are no support groups so was hoping someone out there could help us ...

Books/Papers on PD sold on Internet-Are they really helpful?

thenewgirl98
  • By thenewgirl98 · Posted July 15, 2009
  • Discussion in Treatment · 0 replies
  • Hi Yesterday, while on-line, I happened upon a site by a daughter whose mother has had Parkinsons for quite some time. They are selling an "if I knew then what I know" type of publication. it's only $27 ...

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