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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Active journals
Is he regressing or is it the meds?
- By aNewBob · Posted yesterday at 10:43 pm
- 0 replies
- He was talking in sentences and used the word I when talking about himself and now he refers to himself as he,me or Bob. Also has started to say me home, all the time. He is on Thorazine, Lorazapam ...
Why meds and not HBOT
- By aNewBob · New reply November 23, 2009
- 3 replies
- Today seemed a little better. He is still very tired. He kept wanting to go back to bed. i have read that sleep is good for a brain injury. But if he sleeps all day then he won't sleep at night. Wished ...
My granddaughter is dying from a rare Metabolic disorder
- By nanainpain · New reply November 18, 2009
- 3 replies
- Hi, I am at lost for words and feel extremely hopeless. My 1 yr old granddaughter was diagnosed with Molybdenum Cofactor deficiency with 2nd option of Sulfite Doxadise definiency. This being 50 known ...
would like to talk with othercaregivers
- By kellyjoe · Posted November 15, 2009
- 0 replies
- my husband is 41 and recently had a chemical spill at work that left him with a brain injury causing a type of dementia we have a 20 month old daughter looking for other caregivers to talk with that might ...
hello
- By kellyjoe · New reply November 13, 2009
- 10 replies
- hello new to site kellyjoe ...
Alone????
- By Sunshineonmyface · New reply November 4, 2009
- 13 replies
- Does any one out here have dystonia? Am I alone ...
busy week
- By ann43 · Posted October 11, 2009
- 0 replies
- this is fair week, in the community where i live. a very big celebration for the area. i will do that a couple times this week. i am also going out of town to kelly's island ohio this coming weekend with ...
Apocalypse - Ice Cream
- By Betty-Oops · Posted October 1, 2009
- 0 replies
- "Without ice cream, there would be darkness and chaos." ~Don Kardong~ I was a child during the 60's. Television images imprinted my young mind with Walter Cronkite's nightly narratives. Political dissension ...
Gait problems & Stiff Person Syndrome (SPS)... Any hope?
- By serendipity · New reply September 26, 2009
- 64 replies
- I have found quite a few other postings regarding SPS, so I would like to share this and am hopeful that some of you can offer your input.... I am posting this in all of the Groups to which I belong in ...
The Grand Twitch: Tourette Syndrome
- By voxina · Posted September 14, 2009
- 0 replies
- I'm a teenager with severe Tourette Syndrome. If you walked by me in the supermarket, you'd realize, at best, that I avoided eye contact, and at most, you'd see me thrashing around on the floor, spitting ...
Amazing Experience
- By StephLynStill · New reply September 6, 2009
- 5 replies
- I have been living in the "LysoWorld" now for about six years. I started very pinpointed with one particular disorder (there are over 60 - most w/ ridiculously hard names to pronounce). It took a long ...
hello
- By mrislander · Posted August 21, 2009
- 0 replies
- I have not posted any journal ...
Guestbooks are now live!
- By TeamInspire · New reply August 15, 2009
- 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
5 minutes on the lysosome. Because it's time we know.
- By StephLynStill · Posted August 13, 2009
- 0 replies
- So did you ever wonder what happens to the tadpole's tail? Does it just fall off? No actually. Lysosomes eat it. (autophagy: the cell's ability to eat itself...) And the webbing in our fingers and toes ...
Scheduled maintenance this evening
- By TeamInspire · New reply August 12, 2009
- 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
Update & Upcoming Surgery
- By JenD · New reply August 1, 2009
- 12 replies
- Hi all, I will be having surgery next week to change my roux n Y jejunostomy to a regular j-tube and to repair two large incisional hernias from my previous surgeries. I'm doing okay and fairly prepared ...
Lysosomal Disease and Alzheimer's
- By StephLynStill · Posted July 27, 2009
- 0 replies
- Hi, Here is another little boy affected with Lysosomal Disease, Dillon. The correlations between Lysosomal Disease and much more well-known issues like Alzheimer's are being uncovered every day. With ...
In the Hospital
- By JenD · New reply July 13, 2009
- 21 replies
- Hi all, I've been hospitalized since Tuesday June 10th. I had a severe dystonic storm on Tuesday night and have been moved to IU University Hospital because my movement disorder specialist is here. My ...
An Ataxic Beginning
- By VES · New reply June 29, 2009
- 6 replies
- I'm going to lose my ability to walk. September 10, 2007, I walked into a doctor's office and for once I prayed that my mother was right. I prayed it was all in my head even though there was no way it ...
Share your story via video!
- By TeamInspire · New reply June 23, 2009
- 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
