Hi all,
I've been hospitalized since Tuesday June 10th. I had a severe dystonic storm on Tuesday night and have been moved to IU University Hospital because my movement disorder specialist is here.
My gastroparesis has flared up quite a bit because when I was out of it they were not giving me my domperidone and they were not giving me scheduled zofran. I am quite frustrated to say the least.
My son's birthday is today and I was to host. My friends and family took care of everything and he had a good day but I feel so bad that I am not there.
Thanks for listening. I'm feeling sad and alone as I know many of you are too. It will get better.
Take care,
Jen