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Discussions
Alternative ways to contribute to the understanding of the disease
- By Fernando14 · Posted November 4, 2009
- In Living with a movement disorder · 0 replies
- Hello friends. Given our circumstances, it seems interesting to embrace any option, tool or advice that allows us to cope our disease and our whole existence from a different point of view, always as ...
New here
- By finndancer · Posted October 22, 2009
- In My diagnosis · 0 replies
- I have been dealing with Dystonia for the last 2 years and finally found someone to put a name to what is happening to me...Paroxysmal Non-Kinesiogenic Dydkinesias ( PNKD ). I am really struggling with ...
New interesting VISUAL tool in the physiotherapeutic advice area (II)
- By Fernando14 · Posted October 8, 2009
- In Living with a movement disorder · 0 replies
- Dear friends. A month ago I introduced you a new option to get helped and learn in the physiotherapeutic area, now more intuitive than ever, at the url: http://webs.ono.com/distoweb [no banners, no ads ...
My Experience
- By voxina · Posted October 3, 2009
- In Living with a movement disorder · 0 replies
- I have Tourette Syndrome. (TS) It causes me to have uncontrollable movements, and to say things without being able to stop. My symptoms are quite severe for TS, including falling, hitting, kicking and ...
Do I have a problem?
- By FingerBugs · Posted September 17, 2009
- In Symptoms · 0 replies
- I am not sure if this means anything to anyone, but I am tired of feeling like a freak or spaz. I have this finger thing I do (rubbing at best description). Apparently, I have done this since I was born ...
Spasticity and Spasms; what a life
- By LoneWolff · Posted August 31, 2009
- In Spasticity · 5 replies
- As a result of a Feb./09 accident, I have what I consider, pretty severe Spasticity and muscle spasms. The muscle spasms wake me up about every 1 to 3 hours during the night. The spasticity make it very ...
Janice Morris
- By Faraway · Posted July 29, 2009
- In My diagnosis · 3 replies
- I have just been diagnosed with Tardive Dyskinesiaa nd I would like to talk to others who have the same thing. I need to know how it effects your everyday life. How do you live with so much uncertanity ...
Chorea
- By Nundi · Posted July 22, 2009
- In My diagnosis · 0 replies
- My Mum has Chorea and does not know where to begin she lives in Zimbabwe and there are no support groups so was hoping someone out there could help us ...
Books/Papers on PD sold on Internet-Are they really helpful?
- By thenewgirl98 · Posted July 15, 2009
- In Treatment · 0 replies
- Hi Yesterday, while on-line, I happened upon a site by a daughter whose mother has had Parkinsons for quite some time. They are selling an "if I knew then what I know" type of publication. it's only $27 ...
PKD
- By Sunshineonmyface · Posted June 20, 2009
- In Living with a movement disorder · 0 replies
- Does anyone have this disorder out there that combines Paroxymal dystonia, chorea, choreathetosis. I would really like to talk with someone that has any of these diagnoses ...
New interesting tool in the physiotherapeutic advice area.
- By Fernando14 · Posted June 17, 2009
- In Treatment · 0 replies
- Dear friends. Before leaving on holidays in just two weeks, I want to share with you what is going to be the principal distoweb’s novelty in no more than two months. After sharing with yoy the ‘Physiotherapist ...
National Dystonia Awareness Week
- By DMRF · Posted June 1, 2009
- In Living with a movement disorder · 0 replies
- For more than 30 years, the Dystonia Medical Research Foundation has worked to wipe out dystonia. Our efforts began long before most people, including healthcare professionals, really knew or cared about ...
Chorea, PKD
- By Sunshineonmyface · Posted May 30, 2009
- In My diagnosis · 5 replies
- Does anyone out there have either of these disorders? Chorea, paroxysmal kinesigenic dyskinesias (PKD), (ii) paroxysmal non-kinesigenic dyskinesias (PNKD) I would really like to talk to someone that has ...
Young Onset Parkinsons disease support discussion
- By jflight · Posted May 26, 2009
- In My diagnosis · 14 replies
- Hi, I am interested in hearing from anyone else who also happens to have Young Onset Parkinsons disease (YOPD). I'm not finding tons of support in my community or understanding of the disease in someone ...
Knowledge Management related to movement disorders.
- By Fernando14 · Posted May 18, 2009
- In Living with a movement disorder · 0 replies
- Nowadays many big companies all over the world are interested in what is called Knowledge management. This concept, so very close to learning process, comes when the experience value is in addition to ...
Texas Tremors
Set your DVRs tomorrow - dystonia segment to appear on The Doctors
- By DMRF · Posted April 29, 2009
- In In the news · 0 replies
- April 30th - Segment on dystonia to appear on The Doctors Please set your DVRs tomorrow (4/30/09) to see a dystonia segment on the CBS talk show, The Doctors. Visit http://www.thedoctorstv.com to find ...
The mind of someone suffering any movement disorder
- By Fernando14 · Posted April 28, 2009
- In Living with a movement disorder · 0 replies
- I have always said, as it appears in distoweb, people suffering dystonia/s, Parkinson’s, dystrophy, essential tremor and/or any other movement disorder show important symptoms that condition their lives ...
Benign Paroxymal Torticollis of Infancy (BPTI)
- By advocate4myson · Posted April 19, 2009
- In Living with a movement disorder · 0 replies
- My 8 month old was recently diagnosed with this disorder, although I'm not convinced. A orthopedist diagnosed a neurological condition. One that he never heard of before I mentioned it. You can find Cameron's ...
Chorea
- By Stephanierace80 · Posted April 9, 2009
- In Living with a movement disorder · 1 reply
- Hi, I am a 29 year old female from buffalo ny. I have been living with Chorea for as long as I can remember. It feels like I am the only person with this disease and i would love to meet others who have ...
