Discussions

Sharing as the best way to face this together...

Fernando14
  • By Fernando14 · Posted November 14, 2008
  • In Living with a movement disorder · 0 replies
  • I am from Spain-Europe and I would love to collaborate somehow with you. So this is me trying to share every single detail and experience with other people living with dystonia. I started to live my torsion ...

New Here

sandralee
  • By sandralee · Posted August 17, 2008
  • In Spasticity · 0 replies
  • Hi. My name is Sandy, and I just found this forum today. I have dystonia/spasticity, but at this point the doctors are not sure why. I have the autoimmune disease vasculitis (undifferentiated), and they ...

Spinalcerebellar ataxia/degeneration

LauraB
  • By LauraB · Posted June 7, 2008
  • In My diagnosis · 3 replies
  • I would love to hear from others that have this condition I know it is rare but I am sure I am not the only one on this site with it. PLEASE reply............let us support each other ...

Dystonic attacks or storms

JenD
  • By JenD · Posted April 30, 2008
  • In Symptoms · 0 replies
  • Hi all, I have had generalized dystonia for several years after treatment with reglan and compazine. I am very senstive to medication and other triggers and often experience dystonic attacks. Recently ...

calling all Issac's people.

Betsy1
  • By Betsy1 · Posted March 19, 2008
  • In My diagnosis · 2 replies
  • Hi friends. Let's get back in touch on this strand. I miss being able to hear and participate in our journeys. I am just back from a month of caring for my daughter who is going down this path. She has ...

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