I have Tourette Syndrome. (TS) It causes me to have uncontrollable movements, and to say things without being able to stop. My symptoms are quite severe for TS, including falling, hitting, kicking and an array of other movements and sounds. I can't always walk or even feed myself.
Unfortuantely, the medications for my disorder are prone to causing side effects, and I am so vulnerable to these effects (dystonic reaction, severe depression, sedation, tardive dyskenesia,etc) that I cannot take them.
So with the meds not part of the treatment plan, I'm left with relatively few options.
I have a very hard time going out in public, as people immediately turn to stare when they hear me scream or see me thrashing around...
And since I can't really go places, I don't go to school either, but do hospital-homebound and internet school.
Anyone have advice for frustration. I feel like everything is moving in slow motion, sliding downhill.
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My Experience
- By voxina
- Posted October 3, 2009 at 9:14 pm · 0 replies
- In Living with a movement disorder
- Shared with the public
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