Hi friends. Let's get back in touch on this strand. I miss being able to hear and participate in our journeys. I am just back from a month of caring for my daughter who is going down this path. She has had the muscle twitching and eye problems for months, but both she and I kept hoping that it was nothing much. Then she developed terrible leg weakness, completely unable to walk for about 4 days. The grief of watching my daughter have to start coming to terms with this is overwhelming. I'm still just numb. She's up against the financial problems I was spared (older, husband, good insurance). Her insurance is through her employer. If she can't go back to work (and they are saying they probably can't accommodate her unless she is essentially "normal"), then we buy an expensive cobra, or she tries to get medicaid and has to get care in that system from a whole new set of doctors that she doesn't know. Then where does she live. she'll probably have to come home, but she was just getting launched as a young, independent woman.
I'm sure we will find our way through this, one step, one day at a time, but it sure is hard.
Betsy
Add to the discussion