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Why meds and not HBOT
- By aNewBob · New reply November 19, 2009
- Journal · 2 replies
- Today seemed a little better. He is still very tired. He kept wanting to go back to bed. i have read that sleep is good for a brain injury. But if he sleeps all day then he won't sleep at night. Wished ...
My granddaughter is dying from a rare Metabolic disorder
- By nanainpain · New reply November 18, 2009
- Journal · 3 replies
- Hi, I am at lost for words and feel extremely hopeless. My 1 yr old granddaughter was diagnosed with Molybdenum Cofactor deficiency with 2nd option of Sulfite Doxadise definiency. This being 50 known ...
would like to talk with othercaregivers
- By kellyjoe · Posted November 15, 2009
- Journal · 0 replies
- my husband is 41 and recently had a chemical spill at work that left him with a brain injury causing a type of dementia we have a 20 month old daughter looking for other caregivers to talk with that might ...
hello
- By kellyjoe · New reply November 13, 2009
- Journal · 10 replies
- hello new to site kellyjoe ...
Spasticity and Spasms; what a life
- By LoneWolff · New reply November 12, 2009
- Discussion in Spasticity · 5 replies
- As a result of a Feb./09 accident, I have what I consider, pretty severe Spasticity and muscle spasms. The muscle spasms wake me up about every 1 to 3 hours during the night. The spasticity make it very ...
Janice Morris
- By Faraway · New reply November 10, 2009
- Discussion in My diagnosis · 3 replies
- I have just been diagnosed with Tardive Dyskinesiaa nd I would like to talk to others who have the same thing. I need to know how it effects your everyday life. How do you live with so much uncertanity ...
Alternative ways to contribute to the understanding of the disease
- By Fernando14 · Posted November 4, 2009
- Discussion in Living with a movement disorder · 0 replies
- Hello friends. Given our circumstances, it seems interesting to embrace any option, tool or advice that allows us to cope our disease and our whole existence from a different point of view, always as ...
Alone????
- By Sunshineonmyface · New reply November 4, 2009
- Journal · 13 replies
- Does any one out here have dystonia? Am I alone ...
New here
- By finndancer · Posted October 22, 2009
- Discussion in My diagnosis · 0 replies
- I have been dealing with Dystonia for the last 2 years and finally found someone to put a name to what is happening to me...Paroxysmal Non-Kinesiogenic Dydkinesias ( PNKD ). I am really struggling with ...
Myotonia congenita
- By Taurus251 · New reply October 17, 2009
- Discussion in My diagnosis · 4 replies
- Does anyone out there have myotonia congenita? It's a relatively rare neuro-muscular disorder that basically "locks" a muscle contraction, making movement impossible for a couple of seconds. The affected ...
busy week
- By ann43 · Posted October 11, 2009
- Journal · 0 replies
- this is fair week, in the community where i live. a very big celebration for the area. i will do that a couple times this week. i am also going out of town to kelly's island ohio this coming weekend with ...
New interesting VISUAL tool in the physiotherapeutic advice area (II)
- By Fernando14 · Posted October 8, 2009
- Discussion in Living with a movement disorder · 0 replies
- Dear friends. A month ago I introduced you a new option to get helped and learn in the physiotherapeutic area, now more intuitive than ever, at the url: http://webs.ono.com/distoweb [no banners, no ads ...
My Experience
- By voxina · Posted October 3, 2009
- Discussion in Living with a movement disorder · 0 replies
- I have Tourette Syndrome. (TS) It causes me to have uncontrollable movements, and to say things without being able to stop. My symptoms are quite severe for TS, including falling, hitting, kicking and ...
Apocalypse - Ice Cream
- By Betty-Oops · Posted October 1, 2009
- Journal · 0 replies
- "Without ice cream, there would be darkness and chaos." ~Don Kardong~ I was a child during the 60's. Television images imprinted my young mind with Walter Cronkite's nightly narratives. Political dissension ...
Gait problems & Stiff Person Syndrome (SPS)... Any hope?
- By serendipity · New reply September 26, 2009
- Journal · 64 replies
- I have found quite a few other postings regarding SPS, so I would like to share this and am hopeful that some of you can offer your input.... I am posting this in all of the Groups to which I belong in ...
Do I have a problem?
- By FingerBugs · Posted September 17, 2009
- Discussion in Symptoms · 0 replies
- I am not sure if this means anything to anyone, but I am tired of feeling like a freak or spaz. I have this finger thing I do (rubbing at best description). Apparently, I have done this since I was born ...
The Grand Twitch: Tourette Syndrome
- By voxina · Posted September 14, 2009
- Journal · 0 replies
- I'm a teenager with severe Tourette Syndrome. If you walked by me in the supermarket, you'd realize, at best, that I avoided eye contact, and at most, you'd see me thrashing around on the floor, spitting ...
Amazing Experience
- By StephLynStill · New reply September 6, 2009
- Journal · 5 replies
- I have been living in the "LysoWorld" now for about six years. I started very pinpointed with one particular disorder (there are over 60 - most w/ ridiculously hard names to pronounce). It took a long ...
hello
- By mrislander · Posted August 21, 2009
- Journal · 0 replies
- I have not posted any journal ...
Guestbooks are now live!
- By TeamInspire · New reply August 15, 2009
- Journal · 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
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