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DBS- DYSTONIA
- By irishgirl85 · New reply yesterday at 7:04 pm
- Discussion in Treatment · 11 replies
- MY DAUGHTER HAD DBS SURGERY IN OCT-12 FOR SEVERE DYSTONIC STORMS. SHE HAS BEEN DOING VERY WELL TILL THE BEGINNING OF APRIL AFTER THEY TURNED IT UP TO A HIGHER CONTACT. SHE SEEMED TO GET WORSE AS THE MONTH ...
Can anyone help me with my new symptoms?
Five million
- By Brian · New reply May 18, 2013
- Journal · 205 replies
- Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...
Stay Strong - Stay Connected For EDS Awareness Campaign
- By NadiaBodkin · New reply May 18, 2013
- Journal · 6 replies
- Hello Everyone, I am posting this journal entry on behalf of EDSers United's 2013 EDS Awareness Campaign Initiative. As of January 1st, 2013 we have officially launched the Stay Strong - Stay Connected ...
thompson disease
- By lizz31 · New reply May 14, 2013
- Discussion in Living with a movement disorder · 20 replies
- hi Im putting this up to see if I can find someone else with thompsons disease .im a 31 year old woman from Scotland I was born with it but did find out thats what I had till I was 26 .I have always had ...
A new Inspire report in collaboration with Stanford Medical School
- By Brian · New reply May 5, 2013
- Journal · 84 replies
- As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...
Diagnosed Paroxysmal Kinesigenic Choreoathosis
- By Megdim · Posted May 2, 2013
- Discussion in My diagnosis · 0 replies
- After months of tests I've been diagnosed with paroxysmal kinesigenic choreoathetosis. Still not sure that's what it is, but since both the doctor & the neurologist have no other answers ill wait until ...
Botox shots
- By Candy26070 · New reply April 30, 2013
- Journal · 2 replies
- Today was my appointment at Mayo for the botox treatment ... I got 18 injections ... 10 around the eyes and 8 in my neck ... the eye injections were painful and have left swelling and bruising and one ...
talking er again
- By Rachel-L · New reply April 29, 2013
- Discussion in Living with a movement disorder · 2 replies
- they are talking er again *sigh* im a liiability here for them, all louckd up hands feet legs and jaw. I hate the er ...
So tired.
- By Rachel-L · New reply April 29, 2013
- Journal · 4 replies
- I had a terrible hospital trip/stay in which I was lied to, not believed, had my doctors orders ignored, and was basically accused of drug seeking behavior, then finally refused any more treatment. All ...
PNKD1/Anyone one else?
- By PNKD1 · Posted April 29, 2013
- Discussion in Living with a movement disorder · 0 replies
- Ramona here, I,ve had PNKD since 2006 and I can assure anyone with this disorder it is physiological not phycosomatic and it is a progressive movement disorder. I would be happy to share my experiences ...
The Inspire Q&A: Inspire talks with Deanna Attai, MD
- By John2 · New reply April 16, 2013
- Journal · 16 replies
- Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...
Please sign my Ehlers Danlos Syndrome Petition
- By GumbyDav · Posted April 3, 2013
- Discussion in Living with a movement disorder · 0 replies
- Anyone living in the US, please sign my petition to make Ehlers Danlos Syndrome recognized as a disability! https://petitions.whitehouse.gov/petitio n/proclaim-ehlers-danlos-syndrome-eds-di sability/yzvYyxGF ...
I implore you, assist me.
- By GumbyDav · Posted March 31, 2013
- Discussion in Living with a movement disorder · 0 replies
- Hello, how are you today? I'm David and Gumbydav on YouTube. I created YouTube videos to spread awareness about Ehlers Danlos Syndrome (EDS), and I have a severe case of the Hypermobility Type (EDS-HT ...
Movements disorders and pregnancy?
- By Rachel-L · Posted March 26, 2013
- Discussion in Living with a movement disorder · 0 replies
- Very much to my surprise I just found out that I am pregnant! This will be baby number four for us and we are excited, but nervous, my movement disorder did not start up until after my youngest was born ...
How does stress impact your disorder?
- By Rachel-L · New reply March 12, 2013
- Discussion in Living with a movement disorder · 5 replies
- Stress is one of my know triggers for whatever this is I have, and I won't go into detail right now but there have been some very very traumatic stressful events happen in my life as of the past few months ...
Chorea
- By clydex · New reply March 12, 2013
- Discussion in Living with a movement disorder · 5 replies
- Hi, good day, i was diagnose of movement disorder called chorea. its very disabling, annoying disease. all hope was gone ( my career has ended, friends has gone, health is deteriorating) after i was misdiagnose ...
Still no official Diagnosis
- By Jessi0423 · New reply March 3, 2013
- Discussion in My diagnosis · 7 replies
- I am a 32 yr old married mom of 3. I have had this shaking/twitching disorder for over 6 years. It started in just my hands and now it is all over my body. I try to keep my legs moving or click a pen ...
I'm going nuts
- By Angrymatt · New reply March 3, 2013
- Discussion in My diagnosis · 9 replies
- I have multiple diagnoses and they haven't decided weather it is or is not one single disorder. My days are never the same, I fight my td, I can't feel anything like I used to, and my ability to ambulate ...
Meige's Syndrome
- By Candy26070 · New reply March 3, 2013
- Discussion in My diagnosis · 4 replies
- Hi, I'm Candy and I'm 62 years old and have been diagnosed with Meige's syndrome ... have been taking meds for a couple months now which do help but only for short periods and am going to have my first ...
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