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Why are we here?

Brian
  • By Brian · New reply yesterday at 12:48 pm
  • Journal · 117 replies
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

Gait problems & Stiff Person Syndrome (SPS)... Any hope?

serendipity
  • By serendipity · New reply September 27, 2008
  • Journal · 35 replies
  • I have found quite a few other postings regarding SPS, so I would like to share this and am hopeful that some of you can offer your input.... I am posting this in all of the Groups to which I belong in ...

Getting a port

Adance
  • By Adance · New reply September 26, 2008
  • Journal · 22 replies
  • I am writing this journal entry because I need advice. If you have read any of my posts you know all that I have been through and all that is to come. I have never had good veins. Being so sick and in ...

New Here

sandralee
  • By sandralee · Posted August 17, 2008
  • Discussion in Spasticity · 0 replies
  • Hi. My name is Sandy, and I just found this forum today. I have dystonia/spasticity, but at this point the doctors are not sure why. I have the autoimmune disease vasculitis (undifferentiated), and they ...

Spinalcerebellar ataxia/degeneration

LauraB
  • By LauraB · New reply July 24, 2008
  • Discussion in My diagnosis · 2 replies
  • I would love to hear from others that have this condition I know it is rare but I am sure I am not the only one on this site with it. PLEASE reply............let us support each other ...

Down and depressed

Adance
  • By Adance · New reply July 24, 2008
  • Journal · 16 replies
  • I know we all have bad days and need to vent, this is a bad day! I haven't been feeling well with my GP, I have been really nauseated and started to vomit again. Nothing like I was before my pacer surgery ...

Applying for disability?

Adance
  • By Adance · New reply July 15, 2008
  • Journal · 19 replies
  • It is time for me to get down to business about this, I have been off work due to my health problems since July of last year and kept putting it off because I thought I was going to be well enough to ...

Increased liver functions?

Adance
  • By Adance · New reply July 11, 2008
  • Journal · 6 replies
  • I am posting this because my doctors have not really been able to put their fingers on why I have had increased liver values. The surgeon that did my gastric pacer thought my liver values would get better ...

Upcoming improvements to the messaging system

Walter
  • By Walter · New reply July 7, 2008
  • Journal · 23 replies
  • Hello everyone. I'm writing to let you know about some long overdue improvements that we'll be making to this site's messaging system later this week. The messages section is the most frequently visited ...

Still loosing weight?

Adance
  • By Adance · New reply July 1, 2008
  • Journal · 1 reply
  • I am 1 month and 1 week post op. from my gastric pacer surgery and am continuing to loose weight. I will admit I haven't felt the best for the past week and have not eaten as much as I should, but that ...

In the Hospital

JenD
  • By JenD · New reply June 25, 2008
  • Journal · 12 replies
  • Hi all, I've been hospitalized since Tuesday June 10th. I had a severe dystonic storm on Tuesday night and have been moved to IU University Hospital because my movement disorder specialist is here. My ...

Improvements to the message system are complete

Walter
  • By Walter · New reply June 22, 2008
  • Journal · 14 replies
  • Hello everyone. Just a quick note to let you know that the improvements to the message system that I wrote about previously are complete. You can check them out now. You'll notice that we've grouped your ...

**Updated** System maintenance: Tuesday June 10th, 5 am - 7 am Eastern

Walter
  • By Walter · New reply June 5, 2008
  • Journal · 1 reply
  • ** Updated ** Due to power outages caused by storms in the Washington, DC area, we need to postpone this maintenance until Tuesday June 10th, from 5 am to 7 am. Thanks for your patience. ** Updated ...

Sometimes we make mistakes

Brian
  • By Brian · New reply May 27, 2008
  • Journal · 35 replies
  • Two months ago, when we launched Inspire 2.0, we added a group called 'Team Inspire'. We did this with the best intentions: we wanted the group to be a space for new members to get oriented, ask questions ...

calling all Issac's people.

Betsy1
  • By Betsy1 · New reply May 16, 2008
  • Discussion in My diagnosis · 2 replies
  • Hi friends. Let's get back in touch on this strand. I miss being able to hear and participate in our journeys. I am just back from a month of caring for my daughter who is going down this path. She has ...

Dystonic attacks or storms

JenD
  • By JenD · Posted April 30, 2008
  • Discussion in Symptoms · 0 replies
  • Hi all, I have had generalized dystonia for several years after treatment with reglan and compazine. I am very senstive to medication and other triggers and often experience dystonic attacks. Recently ...

Isaac Syndrome

rickthurbon
  • By rickthurbon · New reply April 20, 2008
  • Journal · 9 replies
  • Hello Beth Sorry to say, I like many others don't like the new site. Just before the changes there was a very active thread with about 75 posts on Isaac's - since the new site, there has been no activity ...

Welcome from TeamInspire!

TeamInspire
  • By TeamInspire · New reply April 7, 2008
  • Journal · 35 replies
  • Hello, old friends and new. Today is a big day for us! We have made numerous improvements to your community, most that were suggestions from you. As you can see the site is very different then before ...

To steroid or not to steroid

smormac
  • By smormac · New reply April 2, 2008
  • Journal · 8 replies
  • There once was a girl named Sherri who took steroids that made her quite hairy She also got chubby to the dismay of her hubby and the kids thought she was very scary She was frustrated, feeling blue so ...

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Inspire connects patients, families, friends and caregivers for support and inspiration. Read more about our work.