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QSART test result

BehcetsGirl
  • By BehcetsGirl · Posted April 17, 2014
  • Journal · 0 replies
  • I went to the Cleveland Clinic recently and they did a QSART test (aka Sweat Test). The doctor just sent me the results. She said "it was decreased in the arm but normal in the leg." She also said that ...

Starting to really freak out!

MelS2503
  • By MelS2503 · New reply April 16, 2014
  • Discussion in Living with a movement disorder · 1 reply
  • Hi. I'm Melissa & I was diagnosed with Bipolar I disorder 7 yrs ago. At that time I was so happy just to know why my actions didn't match the person I had always been. So began the trial & error of meds ...

stiff person syndrome perm variant support group on facebook?

LaurylThomas
  • By LaurylThomas · Posted March 26, 2014
  • Journal · 0 replies
  • Hi guys, I was wondering if anyone has heard of this support group before? I somehow came across it while reading something. I am thinking of signing up, but wanted some input first as I have never been ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

pnkd

Katherine_B
  • By Katherine_B · Posted March 17, 2014
  • Discussion in Living with a movement disorder · 0 replies
  • I am new to this group and was recently diagnosed with pnkd. I have been symptomatic for 6 yrs and hid it for 4 yrs then it got worse. No one knew what I had and basically told me I was crazy. I am a ...

To work or not to work that is the question

Sayeed
  • By Sayeed · New reply March 11, 2014
  • Discussion in Living with a movement disorder · 5 replies
  • I have been diagnosed with Parkinson’s disease since 2008. I am a Mechanical Engineer. I joined in a government power station here in Australia in 2009. In 2012 December I was terminated in performance ...

I hate my movement disorder

moelarrycurely3
  • By moelarrycurely3 · New reply March 5, 2014
  • Discussion in Living with a movement disorder · 4 replies
  • Hi. I am new here. I have involuntary movement disorder really bad. My dad has tremors badly ever since he had a car accident 3 years ago. We both understand each other. My mom thinks I do the movement ...

stereotypical movement disorder

scrunch
  • By scrunch · New reply March 4, 2014
  • Discussion in Living with a movement disorder · 1 reply
  • Hi April, I missed your post on your 3 year old daughter. you are the first person I know other than me with this in their child's life. Let's connect. I NEED to talk to someone who is going through this ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

Pain Relief / Abuse Survivors Please share Wisedom of Holding on!

GizzyMo
  • By GizzyMo · New reply January 28, 2014
  • Journal · 3 replies
  • what do you take especially when you are forbidden pain medications of any kind because of an unintentional mild od..I think..next morning I was fine except that it was three days past the original dosage ...

WHERE IS AMYK-DOES ANYONE KNOW!!

LaurylThomas
  • By LaurylThomas · Posted January 12, 2014
  • Journal · 0 replies
  • Hi there everyone, I am really concerned, I have been trying to make contact with amy k for months now, witth no luck! I know that her sps has been bad and she was doing ivig annd plasmapherisis. We talkked ...

Question about Thomsen's Myotonia Congenita

Ashleigh6
  • By Ashleigh6 · Posted January 6, 2014
  • Discussion in Living with a movement disorder · 0 replies
  • Hello all, My dad has Thomsen's myotonia congenita. I am his daughter (currently 21) and it was determined that I did NOT inherit the disease from him. However I have questions regarding future inheritance ...

Thank You, From Inspire

Walter
  • By Walter · New reply December 3, 2013
  • Journal · 108 replies
  • Hello everyone, As Thanksgiving approaches, all of us at Inspire would like to take a moment to thank you for being part of our community. While we wish no one had to deal with the serious health issues ...

awareness for td

jackw8383
  • By jackw8383 · New reply December 1, 2013
  • Discussion in Living with a movement disorder · 5 replies
  • My son was was 17, 3 days before his 18th birthday he got sick from induced medications...... he was on abilify,lithium, cogentin, risperdal, prozac(he was on abilify 10 plus years)his psych doc decided ...

Hello All I need help not sure if this is called anything.

Jessicaray1993
  • By Jessicaray1993 · Posted November 24, 2013
  • Discussion in Symptoms · 0 replies
  • Hello all,my name is Jessica Ray im 20 yrs old. I was born with Tuberous Sclerosis which includes brain problems and etc. But I have been having this problem quite awhile and not sure what it is. I am ...

Meige syndrome

canttalk
  • By canttalk · New reply November 20, 2013
  • Discussion in My diagnosis · 15 replies
  • Hi, I am looking for others out there with this diagnosis. It is quite rare. I was diagnosed a year ago. Only one of the symptoms is dystonia. Essentially my brain thinks my body is a bad thing and is ...

Life, Love, and the Pursuit of a Pain-free Night

Khatn
  • By Khatn · New reply November 19, 2013
  • Journal · 61 replies
  • This past week has given me a load of rows to hoe and think about. One week ago, my darling (and she truly is) 2-y-o Maine Coon kitten (don't care if she's 2, she's still my little kitten) came to me ...

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