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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
My granddaughter is dying from a rare Metabolic disorder
- By nanainpain · Posted November 12, 2009
- 3 replies
- Hi, I am at lost for words and feel extremely hopeless. My 1 yr old granddaughter was diagnosed with Molybdenum Cofactor deficiency with 2nd option of Sulfite Doxadise definiency. This being 50 known ...
SO excited to share what I have found!
- By pwrsrg77 · Posted November 4, 2009
- 47 replies
- I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...
Somebody PLEASE HELP!!! ={
- By pwrsrg77 · Posted October 29, 2009
- 83 replies
- Well, I'm now 2 years into a disease that is sucking the life out of me. If I had a nickel for every time I've balled my eyes out & said my famous quote "I can't take this anymore" I'd be a very rich ...
5 minutes on the lysosome. Because it's time we know.
- By StephLynStill · Posted August 13, 2009
- 0 replies
- So did you ever wonder what happens to the tadpole's tail? Does it just fall off? No actually. Lysosomes eat it. (autophagy: the cell's ability to eat itself...) And the webbing in our fingers and toes ...
Scheduled maintenance this evening
- By TeamInspire · Posted August 10, 2009
- 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
no place like home
- By Jesana · Posted August 9, 2009
- 5 replies
- so I went on Monday and had the baclofen pump replaced. they had a difficult time placeing the iv at least they put numbing medicine . finally the surgeon came he was able to put one in my foot. I liked ...
Lysosomal Disease and Alzheimer's
- By StephLynStill · Posted July 27, 2009
- 0 replies
- Hi, Here is another little boy affected with Lysosomal Disease, Dillon. The correlations between Lysosomal Disease and much more well-known issues like Alzheimer's are being uncovered every day. With ...
Share your story via video!
- By TeamInspire · Posted June 15, 2009
- 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · Posted June 10, 2009
- 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Guestbooks are now live!
- By TeamInspire · Posted May 26, 2009
- 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · Posted May 20, 2009
- 35 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
This Hannah...
- By StephLynStill · Posted May 14, 2009
- 0 replies
- This what infantile Lysosomal Disease does ...
Moms, you rock!
- By TeamInspire · Posted May 1, 2009
- 0 replies
- Looking for a unique and extraordinary way to say "thank you" to your mom? In honor of Mother's Day, good friend of Inspire Dr. Gwenn (of http://www.PediatricsNow.com and http://www.DrGwennIsIn.com) will ...
Dogs & Disorders
- By StephLynStill · Posted April 20, 2009
- 2 replies
- I had the opportunity to meet about 5 dogs with Lysosomal Disease (mps, I think), about a year ago. It was really an eye-opening and amazing experience. Now, I keep finding more and more articles about ...
Trying not to give up
- By alearydee · Posted April 12, 2009
- 9 replies
- I have been exercising at least 4 days a week and sometime twice a day. My problem is I have not changed the way I eat. I still try to eat stuff that I know I should not have.......But, I dont know how ...
Lyso-What?
- By StephLynStill · Posted March 9, 2009
- 4 replies
- Just in case you haven't seen it. ;) xoxo s **ps - that's my kiddo ...
Cherry Red Spot is a telltale sign...
- By StephLynStill · Posted March 4, 2009
- 7 replies
- Today I returned a telephone call to a woman who's cousin's 7 month old son, Ben, has been displaying possible symptoms of a neurometabolic disease. You know, darting eyes, not rolling over, trunk weakness ...
Amazing Experience
- By StephLynStill · Posted February 24, 2009
- 5 replies
- I have been living in the "LysoWorld" now for about six years. I started very pinpointed with one particular disorder (there are over 60 - most w/ ridiculously hard names to pronounce). It took a long ...
Help with Methylmalonic Acidemia and Homocystinuria
- By keerasmom · Posted February 17, 2009
- 2 replies
- My daughter was born on 07-11-08, and became very ill with pneamonia in Nov. she was taken to Kootenai Medical Center here in Idaho, where they couldn't stabalize her and her temp dropped several times ...
FOOD DIARY
- By alearydee · Posted December 16, 2008
- 28 replies
- i KEEP HEARING HOW IMPORTANT A FOOD DIARY IS. i USUALLY START OUT GOOD MAYBE A COUPLE OF DAYS,........AND THEN AFTER THAT i JUST STOP. hOW DO U STAY FOCUSED AND NOT FORGET TO DO IT...ONCE I FORGET IT ...
