Metabolic Disorders Support Group

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New column: “'Live Because:' Living a fuller life with chronic illness"

By John2 · Posted yesterday at 3:26 pm
Journal · 0 replies
From: John Novack, Communications Director, Inspire Dear members, I'm writing to share with you a new column on the Stanford University School of Medicine "Scope" blog, titled, “'Live Because:' Living ...

Five million

By Brian · New reply May 18, 2013
Journal · 205 replies
Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

A new Inspire report in collaboration with Stanford Medical School

By Brian · New reply May 5, 2013
Journal · 84 replies
As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...

The Inspire Q&A: Inspire talks with Deanna Attai, MD

By John2 · New reply April 16, 2013
Journal · 16 replies
Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...

Journalist seeking someone with hypothyroidism

By John2 · Posted March 4, 2013
Journal · 0 replies
From: John Novack, Communications Director, Inspire Dear members, A reporter for the Web site Everyday Health is writing an article about hypothyroidism, and she is seeking to talk to people with this ...

The Inspire Q&A: Inspire talks with Lindsey Miller

By John2 · New reply February 6, 2013
Journal · 13 replies
We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people featured in our Q&A series ...

Mild S-CAD?

By Howfortunate · Posted January 24, 2013
Discussion in Living with a metabolic disorder · 0 replies
My son was diagnosed with S-CAD at birth, and initially we were apprehensive, he was referred to Children's Hospital of Pennsylvania for further testing, etc, as they are only metabolic unit in region ...

We're hiring!

By Walter · Posted January 22, 2013
Journal · 0 replies
Hello everyone, We have a position open with our engineering team at Inspire, and I'd like to share the job description with you in the event you know just the person we're looking for. We found our most ...

What now?

By blessings2010 · New reply January 15, 2013
Journal · 3 replies
I have a blog, and for the most part, I like to post my feelings, etc there, but my significant other has access to all of my posts, and that makes it hard for me because I don't want him to know everything ...

New column: "I am visible. My disease is not."

By John2 · Posted November 26, 2012
Journal · 0 replies
From: John Novack, Communications Director, Inspire Dear members, I'm writing to share with you a column published today on the "Occupy Healthcare" blog. A I think you'll find it of interest. Michael ...

Tube Site raw Inside

By julet_22 · New reply November 5, 2012
Journal · 4 replies
I need advice here, I've had the same tube site for lets say 22 years, and just now whenever I have to change the tube the pain nearly kills me. Its completely raw and bloody on the inside, and once the ...

SCAD variant

By chessabeuk · New reply October 22, 2012
Discussion in My diagnosis · 3 replies
Hi! Wondering if there are other families with kids diagnosed at variant SCAD. My son has one SCAD gene and one polymorphism, so he tests positive and has a milder form of SCAD. I would love to chat with ...

The Inspire Q&A: Inspire talks with “Arthritis Ashley”

By John2 · New reply September 18, 2012
Journal · 13 replies
Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. We post these interviews ...

Sources sought for article on multiple chronic condition

By John2 · Posted August 13, 2012
Journal · 0 replies
From: John Novack, Communications Director, Inspire Dear members, A reporter for the Deseret News newspaper (http://www.deseretnews.com) is writing an article about working older Americans with multiple ...

Sources sought for article about high-deductible health plans

By John2 · Posted June 25, 2012
Journal · 0 replies
From: John Novack, Communications Director, Inspire Hi members, A writer with Workforce Management, a magazine (http://www.workforce.com) that covers employees and benefits issues, contacted us saying ...

The Inspire Q&A: Inspire talks with Howard Luks, MD

By John2 · New reply April 15, 2012
Journal · 59 replies
Dear Inspire Community Members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people we feel are making contributions to helping patients worldwide. We are posting ...

The Inspire Q&A--Inspire talks with Susan Grant

By John2 · New reply February 15, 2012
Journal · 31 replies
Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people making contributions to helping patients and caregivers worldwide. We are posting these interviews ...

Inspire is hiring!

By Walter · New reply January 20, 2012
Journal · 15 replies
Inspire is hiring, and we're wondering if you know someone who would be the perfect addition to our team. Hello everyone, I'm Walter, one of Inspire's founders and the head of our technical team. I'm ...

Hyponatremia

By blessings2010 · Posted January 10, 2012
Discussion in My diagnosis · 0 replies
Hi, everyone. I am writing in regards to hyponatremia, the most commonly diagnosed metabolic disorder in the US. Over 1.5 to 1.7 million people are hospitalized for hyponatremia each year. I am hoping ...

The Inspire Q&A--Inspire talks with Michele Baldwin

By John2 · Posted January 3, 2012
Journal · 0 replies
Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people making contributions to patients and caregivers worldwide. We are posting these interviews in a Q&A ...

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