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"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted yesterday at 3:22 pm
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

MODs this needs attention.

princess_lily
  • By princess_lily · New reply March 16, 2014
  • Discussion in Living with a metabolic disorder · 1 reply
  • While this is a support forum for people dealing with metabolic disorders I am noticing a support pronlem which hopefully can be rectified. 3mcc is a fairly rare disorder where if you search the website ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

My 3-year-old Son has Leukodystrophy

neal-zee
  • By neal-zee · New reply January 3, 2014
  • Discussion in Living with a metabolic disorder · 1 reply
  • To view Izzy Zundell's CaringBridge site, click on the link: http://www.caringbridge.org/visit/izzyzu ndellsjourney To contribute to the HILL 2014 Fund, click on the link: http://www.gofundme.com/5mjlr4 ...

Thank You, From Inspire

Walter
  • By Walter · New reply December 3, 2013
  • Journal · 108 replies
  • Hello everyone, As Thanksgiving approaches, all of us at Inspire would like to take a moment to thank you for being part of our community. While we wish no one had to deal with the serious health issues ...

Five million

Brian
  • By Brian · New reply August 5, 2013
  • Journal · 261 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

A new Inspire report in collaboration with Stanford Medical School

Brian
  • By Brian · New reply July 22, 2013
  • Journal · 116 replies
  • As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...

Sources sought for article about the Affordable Care Act

John2
  • By John2 · Posted June 24, 2013
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 6/24/13 Dear members, According to the Associated Press (AP), surveys that show that about 75% of uninsured people in the US aren’t aware of opportunities ...

Nepro and Vital Free to a good home!

Laurieb926
  • By Laurieb926 · Posted June 15, 2013
  • Journal · 0 replies
  • I have: 90 cans of Nepro exp 8/13 70+ cans of Vital 1.2&1.5 These are free to a good home...I live in northern NJ and would need someone to either pick them up OR give me a UPS/FEDEX acct # for shipping ...

New column: “'Live Because:' Living a fuller life with chronic illness"

John2
  • By John2 · Posted May 21, 2013
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire Dear members, I'm writing to share with you a new column on the Stanford University School of Medicine "Scope" blog, titled, “'Live Because:' Living ...

The Inspire Q&A: Inspire talks with Deanna Attai, MD

John2
  • By John2 · New reply April 16, 2013
  • Journal · 16 replies
  • Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...

Journalist seeking someone with hypothyroidism

John2
  • By John2 · Posted March 4, 2013
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire Dear members, A reporter for the Web site Everyday Health is writing an article about hypothyroidism, and she is seeking to talk to people with this ...

The Inspire Q&A: Inspire talks with Lindsey Miller

John2
  • By John2 · New reply February 6, 2013
  • Journal · 13 replies
  • We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people featured in our Q&A series ...

Mild S-CAD?

Howfortunate
  • By Howfortunate · Posted January 24, 2013
  • Discussion in Living with a metabolic disorder · 0 replies
  • My son was diagnosed with S-CAD at birth, and initially we were apprehensive, he was referred to Children's Hospital of Pennsylvania for further testing, etc, as they are only metabolic unit in region ...

We're hiring!

Walter
  • By Walter · Posted January 22, 2013
  • Journal · 0 replies
  • Hello everyone, We have a position open with our engineering team at Inspire, and I'd like to share the job description with you in the event you know just the person we're looking for. We found our most ...

What now?

blessings2010
  • By blessings2010 · New reply January 15, 2013
  • Journal · 3 replies
  • I have a blog, and for the most part, I like to post my feelings, etc there, but my significant other has access to all of my posts, and that makes it hard for me because I don't want him to know everything ...

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