Battling Schizophrenia While Medication Stopped Working

Hello everyone,

My sister has been battling paranoia schizophrenia for the past 10-13 years now. As there have been a few flare ups, for the most part, her schizophrenia has been sustained through the use of medication which is clozapine. However, just recently, the clozapine has stopped working and does not seem to work as it should and as it used to previously. Now, she is hearing voices and acting on them. She has lived at home with my brother, my mother, and I, under our supervision. Once an avid screen writer she suddenly "fell" into one of her stories and hasn't been the same ever since.

MY QUESTION TO WHOEVER IS OUT THERE...

I need to find a way of figuring out a living situation for my sister. Whether it be programs that she attends from morning to night or whether it be a living situation. As me and my family gets older and its starting to get harder and harder to keep up with her illness. She needs medical attention. Whether in the form of a residential care or daily program. After seeing county board-in cares, I dont think i can feel good about myself leaving my sister at a county boarding care where they're level of treatment and care is very low. Does anyone out there happen to know if there is a place where i can get like funding support for her or perhaps a scholarship type fund to pay for her care at a somewhat decent residential care? I've tried everywhere and can't seem to figure this out. I am hoping that maybe this forum can help me a great deal in my unsolved questions. Thanks.

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Hi, I'm sorry to hear that your sister's medication is not working for her. I understand the pain of trying to decide what do figure out what do on finding a day program with/without in being in a living situation. Not know what state you live I can't be more helpful at this time about what I can say about county boarding care which I know I haven't heard of in Nebraska (where I live). Have you looked into Supportive Housing? Have you or your family applied for social security benefits for your sister? This would be the first start with helping fund what care she would need. Social Security prefers online applications. I can't stress enough is having documentation, documentation, documentation. The less that social security has to look up the faster the progress of the application.
Look into county mental heath center in your area. They most often offer case management which not only will help your sister but also your family. Case management can help with looking into applying for social security and a living situation. Personally, I think you, other family members should apply for social security benefits. I don't know why I feel that way but I do. Oh, you might want to have a lawyer who specializes in social security cases which I'm not sure if you can get one while applying or after a denial. Hopefully a denial won't happen. And for all I know, maybe your sister is already on it.
You have a valid reason to be concerned about not wanting your sister living in a county board-in cares. Also watch out for Assisted Living Facilities that mainly have mentally ill people living in them. They often are run poorly, which again depends on the state you live in. I have read some horror stories about some in Florida and in Nebraska there are some that are bad.
With a lot of research you can find a place for your sister. It may not be the ideal place that you want it to be but you can look for the best that is affordable. Look at everything about a place, any reports by the state or Disability Rights (your state) to see if they know of what places have had problems.
Supportive housing is one that is said to be good.
If having to make the choice the of assisted living, make everything no matter how little it is that is covered in the contract ie: do they do the laundry, what do they supply as in personal - soap, shampoo, conditioner, toothpaste, toothbrushes, make sure to cover everything that will effect your sisters life. Staying involved in her life once she isn't living at home will be of great help to her. Change is scary and moving to a new place can cause symptoms to be triggered.
I want to share with you that I have schizoaffective disorder. I have lived in assisted living (though not called that back with I lived there) 30 years ago. My mom applied for my social security and I got it on the first try. She had all the documentation which why I stressed having it when applying.
My parents had to make a decision that wasn't easy for them when I was 20 years old (I had been actively ill for a few years at home) that it was time for me to move out or I would not grow. I didn't see it that way at the time. It was a good thing for me and with my ssdi I able to take care of my bills and do ok in life. My parents also knew that having me live at home until they were no longer able to care for me was not helpful to me nor them. I needed to have life experiences that I would not have had living with them. I now can rely on myself for all that I do and my parents do help me out with clothing when needed. I realize that I jumped around a lot on the subject I writing about to you. It is currently how my mind is working. I hope that some of the ideas work.
If you need more info you can send me a message. I have a lot of information on the topic.
CuriousKat

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