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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
How long does Billy have with an ef of 29??
- By sophianbilly · Posted October 31, 2009
- 10 replies
- his defib/pacemaker was implanted in June 2009 when he was still at UCH after a chronic heart happened on April 2009......He had anoxia to his brain and heart which is why they waited soooo long....He ...
www.powercatcharters.com/Billy
- By sophianbilly · Posted October 11, 2009
- 4 replies
- I look for information all the time.....My Billy had a chronic heart attack with anoxia to the brain and to the heart on April 10, 2009....I was alone in the morning with him when he complained of chest ...
My First Half Marathon
- By BellaDolce · Posted October 3, 2009
- 5 replies
- OK so I'm committing to my very first half marathon. I live in North Carolina, and i don't know where or when ill run, but I'm saying it so the universe knows I'm coming! Anyone want to join me ...
Me
- By yogachick1 · Posted October 3, 2009
- 10 replies
- Hello all, I'm Janet. Live in Seattle WA, and am 29 years old. I lost someone close a few years ago just as i was starting a new career. I have found support in many forms, even with its not easy. My ...
Soooo excited!!!
- By BellaDolce · Posted September 26, 2009
- 10 replies
- Just took the first steps to achieving my dreams. I opened my yoga studio!!!! This is my life long dream ...
5 minutes on the lysosome. Because it's time we know.
- By StephLynStill · Posted August 13, 2009
- 0 replies
- So did you ever wonder what happens to the tadpole's tail? Does it just fall off? No actually. Lysosomes eat it. (autophagy: the cell's ability to eat itself...) And the webbing in our fingers and toes ...
Scheduled maintenance this evening
- By TeamInspire · Posted August 10, 2009
- 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
Lysosomal Disease and Alzheimer's
- By StephLynStill · Posted July 27, 2009
- 0 replies
- Hi, Here is another little boy affected with Lysosomal Disease, Dillon. The correlations between Lysosomal Disease and much more well-known issues like Alzheimer's are being uncovered every day. With ...
The feeling of Standing
- By AgainstalOddz1 · Posted July 8, 2009
- 4 replies
- ......It's been almost 22 months in my wheelchair now. 22 months of sitting. I forgot what it was like to stand. Until last week when I got up in my braces and was working on getting into my folks' truck ...
Share your story via video!
- By TeamInspire · Posted June 15, 2009
- 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · Posted June 10, 2009
- 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Guestbooks are now live!
- By TeamInspire · Posted May 26, 2009
- 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · Posted May 20, 2009
- 35 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
This Hannah...
- By StephLynStill · Posted May 14, 2009
- 0 replies
- This what infantile Lysosomal Disease does ...
Hodgkin's Lymphoma after Non Hogkin's Lymphoma
- By joyrmttx · Posted May 6, 2009
- 2 replies
- It's not very common to get Hogkin's after NHL but they say I have. 3 labs have confirmed my biopsy. Now I'll be off to M D Anderson in Houston to see the top doc at the lymphoma department. I guess there ...
Moms, you rock!
- By TeamInspire · Posted May 1, 2009
- 0 replies
- Looking for a unique and extraordinary way to say "thank you" to your mom? In honor of Mother's Day, good friend of Inspire Dr. Gwenn (of http://www.PediatricsNow.com and http://www.DrGwennIsIn.com) will ...
Positive biopsy and still waiting...
- By joyrmttx · Posted April 24, 2009
- 9 replies
- After a positive biopsy from April 9th, I had to have a bone marrow biopsy which came back negative. Yeah! I still have questionable blood work and my lymph node biopsy has been sent off along with my ...
Dogs & Disorders
- By StephLynStill · Posted April 20, 2009
- 2 replies
- I had the opportunity to meet about 5 dogs with Lysosomal Disease (mps, I think), about a year ago. It was really an eye-opening and amazing experience. Now, I keep finding more and more articles about ...
Inspiration for Today and Forever....
- By BJsHere · Posted April 14, 2009
- 10 replies
- I don't care if you lick windows, take the special bus or occasionally pee on yourself. You hang in there sunshine, you're special. Every sixty seconds you spend angry, upset or mad, is a full minute ...
MS Group Members, Good Luck, Stay strong
- By BJsHere · Posted April 13, 2009
- 0 replies
- My youngest daughter has had MS for over 10 years now, I think... Time passes quickly. She was 39 on March 23. She gets paralysis on her right side and he speech can slur at times. I wish all of you good ...
