Hi,
Here is another little boy affected with Lysosomal Disease, Dillon.
The correlations between Lysosomal Disease and much more well-known issues like Alzheimer's are being uncovered every day. With continued press, public awareness and research like the SOAR program, I think great strides will be made quickly over the next several years in treatments and therapies developed for Lysosomal Disease. And as we become increasingly aware of the lysosome as a root cause of many common, chronic ailments, the general population will insist on more research, and children, teens and adults with "rare" Lysosomal Disease will reap the benefits.
That's my prediction. :)
xoxo,
steph



