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How long does Billy have with an ef of 29??
- By sophianbilly · New reply November 3, 2009
- Journal · 10 replies
- his defib/pacemaker was implanted in June 2009 when he was still at UCH after a chronic heart happened on April 2009......He had anoxia to his brain and heart which is why they waited soooo long....He ...
www.powercatcharters.com/Billy
- By sophianbilly · New reply October 23, 2009
- Journal · 4 replies
- I look for information all the time.....My Billy had a chronic heart attack with anoxia to the brain and to the heart on April 10, 2009....I was alone in the morning with him when he complained of chest ...
My First Half Marathon
- By BellaDolce · New reply October 4, 2009
- Journal · 5 replies
- OK so I'm committing to my very first half marathon. I live in North Carolina, and i don't know where or when ill run, but I'm saying it so the universe knows I'm coming! Anyone want to join me ...
Me
- By yogachick1 · New reply October 3, 2009
- Journal · 10 replies
- Hello all, I'm Janet. Live in Seattle WA, and am 29 years old. I lost someone close a few years ago just as i was starting a new career. I have found support in many forms, even with its not easy. My ...
Soooo excited!!!
- By BellaDolce · New reply October 2, 2009
- Journal · 10 replies
- Just took the first steps to achieving my dreams. I opened my yoga studio!!!! This is my life long dream ...
Guestbooks are now live!
- By TeamInspire · New reply August 15, 2009
- Journal · 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
5 minutes on the lysosome. Because it's time we know.
- By StephLynStill · Posted August 13, 2009
- Journal · 0 replies
- So did you ever wonder what happens to the tadpole's tail? Does it just fall off? No actually. Lysosomes eat it. (autophagy: the cell's ability to eat itself...) And the webbing in our fingers and toes ...
Scheduled maintenance this evening
- By TeamInspire · New reply August 12, 2009
- Journal · 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
Lysosomal Disease and Alzheimer's
- By StephLynStill · Posted July 27, 2009
- Journal · 0 replies
- Hi, Here is another little boy affected with Lysosomal Disease, Dillon. The correlations between Lysosomal Disease and much more well-known issues like Alzheimer's are being uncovered every day. With ...
The feeling of Standing
- By AgainstalOddz1 · New reply July 13, 2009
- Journal · 4 replies
- ......It's been almost 22 months in my wheelchair now. 22 months of sitting. I forgot what it was like to stand. Until last week when I got up in my braces and was working on getting into my folks' truck ...
Share your story via video!
- By TeamInspire · New reply June 23, 2009
- Journal · 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · New reply June 12, 2009
- Journal · 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · New reply June 9, 2009
- Journal · 35 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
Dogs & Disorders
- By StephLynStill · New reply May 30, 2009
- Journal · 2 replies
- I had the opportunity to meet about 5 dogs with Lysosomal Disease (mps, I think), about a year ago. It was really an eye-opening and amazing experience. Now, I keep finding more and more articles about ...
Positive biopsy and still waiting...
- By joyrmttx · New reply May 18, 2009
- Journal · 9 replies
- After a positive biopsy from April 9th, I had to have a bone marrow biopsy which came back negative. Yeah! I still have questionable blood work and my lymph node biopsy has been sent off along with my ...
This Hannah...
- By StephLynStill · Posted May 14, 2009
- Journal · 0 replies
- This what infantile Lysosomal Disease does ...
Hodgkin's Lymphoma after Non Hogkin's Lymphoma
- By joyrmttx · New reply May 8, 2009
- Journal · 2 replies
- It's not very common to get Hogkin's after NHL but they say I have. 3 labs have confirmed my biopsy. Now I'll be off to M D Anderson in Houston to see the top doc at the lymphoma department. I guess there ...
Moms, you rock!
- By TeamInspire · Posted May 1, 2009
- Journal · 0 replies
- Looking for a unique and extraordinary way to say "thank you" to your mom? In honor of Mother's Day, good friend of Inspire Dr. Gwenn (of http://www.PediatricsNow.com and http://www.DrGwennIsIn.com) will ...
Massage Helps
- By BJsHere · New reply April 17, 2009
- Journal · 1 reply
- My daughter is a masusse. When ever we can find the time to connect I hunger for the massage. It relieves tension and pain I didn't even know I had ...
Inspiration for Today and Forever....
- By BJsHere · New reply April 16, 2009
- Journal · 10 replies
- I don't care if you lick windows, take the special bus or occasionally pee on yourself. You hang in there sunshine, you're special. Every sixty seconds you spend angry, upset or mad, is a full minute ...
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Inspire connects patients, families, friends and caregivers for support and inspiration. Read more about our work.