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"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

should i be worried?

yuki21
  • By yuki21 · Posted February 18, 2014
  • Discussion in Treatment · 0 replies
  • For about 10 years I don't go to the bathroom more than once at 1 or 2 weeks (stool) and sometimes more.. I am sometimes bloated and get pain but not so much. I've never been concerned about this all ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

Thank You, From Inspire

Walter
  • By Walter · New reply December 3, 2013
  • Journal · 108 replies
  • Hello everyone, As Thanksgiving approaches, all of us at Inspire would like to take a moment to thank you for being part of our community. While we wish no one had to deal with the serious health issues ...

Life, Love, and the Pursuit of a Pain-free Night

Khatn
  • By Khatn · New reply November 19, 2013
  • Journal · 61 replies
  • This past week has given me a load of rows to hoe and think about. One week ago, my darling (and she truly is) 2-y-o Maine Coon kitten (don't care if she's 2, she's still my little kitten) came to me ...

Five million

Brian
  • By Brian · New reply August 5, 2013
  • Journal · 261 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

A new Inspire report in collaboration with Stanford Medical School

Brian
  • By Brian · New reply July 22, 2013
  • Journal · 116 replies
  • As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...

The Inspire Q&A: Inspire talks with Deanna Attai, MD

John2
  • By John2 · New reply April 16, 2013
  • Journal · 16 replies
  • Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...

The Inspire Q&A: Inspire talks with Lindsey Miller

John2
  • By John2 · New reply February 6, 2013
  • Journal · 13 replies
  • We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people featured in our Q&A series ...

We're hiring!

Walter
  • By Walter · Posted January 22, 2013
  • Journal · 0 replies
  • Hello everyone, We have a position open with our engineering team at Inspire, and I'd like to share the job description with you in the event you know just the person we're looking for. We found our most ...

Niemann-Pick Disease Type E

rubickscube
  • By rubickscube · Posted September 7, 2012
  • Discussion in Happenings · 0 replies
  • Hi, I'm a 21 year old college student with a lot of unexplained symptoms after quite a bit of testing. My doctor has no ordered a whole exome sequencing and I am having the serum drawn for it tomorrow ...

The Inspire Q&A: Inspire talks with Howard Luks, MD

John2
  • By John2 · New reply April 15, 2012
  • Journal · 59 replies
  • Dear Inspire Community Members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people we feel are making contributions to helping patients worldwide. We are posting ...

The Inspire Q&A--Inspire talks with Susan Grant

John2
  • By John2 · New reply February 15, 2012
  • Journal · 31 replies
  • Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people making contributions to helping patients and caregivers worldwide. We are posting these interviews ...

Inspire is hiring!

Walter
  • By Walter · New reply January 20, 2012
  • Journal · 15 replies
  • Inspire is hiring, and we're wondering if you know someone who would be the perfect addition to our team. Hello everyone, I'm Walter, one of Inspire's founders and the head of our technical team. I'm ...

The Inspire Q&A--Inspire talks with Michele Baldwin

John2
  • By John2 · Posted January 3, 2012
  • Journal · 0 replies
  • Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people making contributions to patients and caregivers worldwide. We are posting these interviews in a Q&A ...

Following: A new Inspire feature

Walter
  • By Walter · New reply December 5, 2011
  • Journal · 111 replies
  • Hello everyone, I'm writing to let you know about a new Inspire feature that we launched last night, designed to help you keep track of conversations you're interested in. We call it "following" and here's ...

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The LysoLife Community connects families, friends and caregivers for support and inspiration. This community is sponsored by the Hide & Seek Foundation, an Inspire trusted partner.