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"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted yesterday at 3:22 pm
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

hodgkins , abvd , prednisone and long term effects!

polishwonderboy

Night sweats...I'm a little worried about recurrence.

Mochadelicious
  • By Mochadelicious · New reply March 26, 2014
  • Discussion in Non-Hodgkin lymphoma · 8 replies
  • Please allow me to give you a little background before I start...I have been in remission for 4 years from Follicular NHL. It presented with several lumps but no other symptoms. I was stage 3, grade 3 ...

Can't Believe It

Robyn35
  • By Robyn35 · New reply March 24, 2014
  • Journal · 5 replies
  • I can't believe thst in just six days, it'll be my one month anniversary of being cancer free ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Help not sure where to go

dareyou2move
  • By dareyou2move · New reply March 19, 2014
  • Discussion in Newly diagnosed · 2 replies
  • Hi - What were all your symptoms before being diagnosed with lymphoma? I have gone thru some major health issues in the past year . So I have turned to a wee bit of a worrier- . But the past 6 months ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

dehydration

joewilliebert7173
  • By joewilliebert7173 · Posted February 26, 2014
  • Discussion in Family, friends and caregivers · 0 replies
  • On dehydration and potassium issues while on chemo.treatment.my son had a problem with both.he Frank a lot of coconut water and juice.helped him a lot.loaded with potassium and great for hydration.feel ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

He's gone

WorriedWife123
  • By WorriedWife123 · New reply January 31, 2014
  • Discussion in Rare and other forms of lymphoma · 2 replies
  • My husband died November 5, 2013 holding my hands. We lost our war with CNS lymphoma. Never even got around to treat the papillary thyroid cancer. He was suffering the past few weeks and high dose chemotherapy ...

Chronic non Hodgkins marginal

amyrod
  • By amyrod · New reply January 21, 2014
  • Discussion in Non-Hodgkin lymphoma · 6 replies
  • The doctor told me yesterday that my non Hodgkin's marginal lymphoma is chronic and that they can't cure me and that the tumors grow slowly so they will treat them every time they come. Is this true ...

the never ending waiting

ddlewis1962
  • By ddlewis1962 · New reply January 15, 2014
  • Journal · 3 replies
  • In august 2013 i went to a walk in clinic for what i thought was just another bout of bronchitis...it was but a chest xray showed a tumor on my upper lobe of my right lung. stressed and worried all weekend ...

Grieving

WorriedWife123
  • By WorriedWife123 · New reply December 25, 2013
  • Journal · 7 replies
  • I've started a blog... http://www.letterstojun.com/ Letters to Jun to help me get through the next days, weeks and months. I also hope that my children will one day read this and learn... learn something ...

He's gone.

WorriedWife123
  • By WorriedWife123 · New reply December 25, 2013
  • Journal · 87 replies
  • My husband died November 5, 2013 holding my hands. We lost our war with CNS lymphoma. Never even got around to treat the papillary thyroid cancer. He was suffering the past few weeks and high dose chemotherapy ...

New column: "Hope and faith are powerful medicine"

John2
  • By John2 · Posted December 17, 2013
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 12/17/13 Dear members, I am writing to share with you a new guest column on the Stanford Scope medical blog, "Hope and faith are powerful medicine ...

Thank You, From Inspire

Walter
  • By Walter · New reply December 3, 2013
  • Journal · 108 replies
  • Hello everyone, As Thanksgiving approaches, all of us at Inspire would like to take a moment to thank you for being part of our community. While we wish no one had to deal with the serious health issues ...

DLBCL - Stage 3 - Low platelets after chemo

sravaniq
  • By sravaniq · Posted November 25, 2013
  • Discussion in Non-Hodgkin lymphoma · 0 replies
  • My Dad is diagnosed with DLBCL stage 3. Platelets have continuously been falling and is now 17000. It is day 14 of RCHOP. When will they rise? Next chemo is due in a week on 2 dec. I fear they might have ...

Headed to radiation

Scoobydooby8910
  • By Scoobydooby8910 · New reply November 17, 2013
  • Journal · 9 replies
  • Hello friends! I went into pre-transplant testing this week, and my heart and lungs look good; however, the lymphoma in my nose and face did not react to chemo as we had hoped. I will be getting 20 radiation ...

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The Lymphoma Research Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Lymphoma Research Foundation, an Inspire trusted partner.