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Discussions

Are you born with lupus anticoagulant?

Prinz
  • By Prinz · Posted November 10, 2009
  • In Family and friends · 0 replies
  • Is lupus anticoagulant something you are born with or does it/can it develop for unknown reasons later in life ...

Lupus Anticoagulant some help & an intro

utopianaurora
  • By utopianaurora · Posted November 6, 2009
  • In Treatment · 0 replies
  • *if you are looking for cost effective solutions scroll to the bottom* Hi, i am Amber. I am 23 years old, married and a college graduate in psychology. I am back in school for social work for my second ...

Despite Lupus?

slyster
  • By slyster · Posted September 29, 2009
  • In Living with lupus · 0 replies
  • Have any of you read the new book, Despite Lupus: Living Well with a Chronic Illness, by Sara Gorman? It seems to be getting a lot of traction throughout the "lupus community", and I was wondering what ...

lupus anticoagulant

maryjr
  • By maryjr · Posted September 14, 2009
  • In Living with lupus · 4 replies
  • HI I AM NEW TO THIS GROUP AND I HAD A QUESTION. I HAVE LUPUS ANITCOAGULANT AND HAVE TO TAKE COUMADIN FOR LIFE. I WANTED TO KNOW IF ANYONE HAS A HOME INR TESTING KIT AND IF IT WORKS. ALSO DOES MEDICARE ...

Warfarin and alcohol

Peter89
  • By Peter89 · Posted August 1, 2009
  • In Living with lupus · 0 replies
  • Hi! Im a 19 year old university student living in Hungary. Just a couple of months ago i got infected with some kind of virus, that gave me really strong diarrhea. I was laying at home for a couple of ...

having trouble responding to posts.....

mum2_2dogs
  • By mum2_2dogs · Posted July 30, 2009
  • In Newly diagnosed · 0 replies
  • Hi, To anyone who responded to my post and hasn't heard from me...please be patient . It's not that I don't appreciate your words. I am having trouble navigating around this site and finding things..I ...

just diagnosed after 19 years

mum2_2dogs
  • By mum2_2dogs · Posted July 27, 2009
  • In Newly diagnosed · 2 replies
  • Hi Everyone, I recently joined another team inspire group for women with heart disease after suffering a 3rd degree av block, murmur, cardiac arrest in August 08. I had a pacemaker put in at that time....they ...

Help me understand why none of the doctors seem to want to follow through

missditz
  • By missditz · Posted July 25, 2009
  • In Symptoms · 0 replies
  • I have had so many symptoms, infections, and this big crater of a hole in the roof of my mouth since April. All of my symptoms have been ongoing for 3 yrs. I have been in the hospital twice and in the ...

LUPUS ANTICOAGULANT DISORDER IS NOT LUPUS!

calijoann
  • By calijoann · Posted June 16, 2009
  • In Living with lupus · 23 replies
  • MY DOCTOR TOLD ME THAT I HAVE LUPUS ANTICOAGULANT DISORDER. HE SAID I DO NOT HAVE LUPUS. TWO DIFFERENT THINGS. I AM CLEARING THIS UP. SOME PEOPLE WITH LUPUS HAVE LUPUS ANTICOAGULANT. BUT IF YOU HAVE THE ...

Plaquenil

LuLu24293
  • By LuLu24293 · Posted March 21, 2009
  • In Treatment · 3 replies
  • Has anyone ever felt like they had become immune to plaquenil? I've been taking it for over 4 years now but it just doesn't seem to do the job anymore. My Rheummy isn't ready to go to the next level ...

Could you please share some of your symptoms.

yellowlab1313
  • By yellowlab1313 · Posted February 16, 2009
  • In Symptoms · 25 replies
  • I'm Raven and I haven't been formally diagnosed with Lupus...I'm going to the same rheumatologist I went to 2 1/2 years ago who wanted to treat me for Lupus because I had a dsDNA of 500. I told him no ...

lupus anticoagulant

Eimaj
  • By Eimaj · Posted December 30, 2008
  • In Newly diagnosed · 5 replies
  • I was preparing for surgery and it had to be canceled because I have lupus anticoagulant. Can anyone tell me what you know about this form of lupus ...

Plaquinel and Long Term Disability

psjaquith
  • By psjaquith · Posted August 14, 2008
  • In Living with lupus · 5 replies
  • My lupus was first diagnosed as cutanious sigmoid erythmus lupus along with Sjogren's Syndrome. The insurance handling my long-term disability is dropping me saying that my lupus is disabling. I can not ...

Lupus / SLE Question

incredible1712
  • By incredible1712 · Posted July 9, 2008
  • In Family and friends · 3 replies
  • My Ma was detected with lupus about an yr back. She had a butterfly rash on her left cheek and it never healed so she consulted a doc and was diagnosed with SLE. She was put on steroids so she gained ...

Lupus and Symptoms

psjaquith
  • By psjaquith · Posted April 4, 2008
  • In Symptoms · 0 replies
  • For a long time, my joints have become progressively stiff and painful. It started in my hips, showing arthritic changes, then knees and now my shoulders. I have limited range of motion when my shoulders ...

Quinine Drugs as course of treatment

psjaquith
  • By psjaquith · Posted April 4, 2008
  • In Treatment · 0 replies
  • I was diagnosed with Epidermal Lupus in 2006, Sjogren's Syndrome in 2008. I learned this week that my sed rate confirmed that my Lupus is also Systemic. Is anyone else taking Quinine for treatment? I ...

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