My Ma was detected with lupus about an yr back. She had a butterfly rash on her left cheek and it never healed so she consulted a doc and was diagnosed with SLE. She was put on steroids so she gained weight and also got this bulge @ d back of her neck. Kind of like a fat deposition. SOme months later the lupus treatment made her wbc and general health better. She was on malarial drugs. Tehn in Dec/jan this yr, she got dengue fever and was critically ill for a lengthy period. Then the rash reappeared. During the course of this, the wrist that was had the saline flow etc , started giving her problem. Pain with not strength. So she got a steroid injection there. That was better, then the back prob came in. SO she underwent a spine procedure and its been 2 mths or more since, now she is off belt and been told to b as flexible as she can. Her rash is also getting better as in diminishing. But psychologically she is constantly stressed out. And since evrything since the diagnosis has been so much trouble, she is just not in gr8 spirits and tht gets me down too. I do all hoping that this will b ok for a while but then sumthing else comes up. How do u think I can help ease her condition? Is there a good solution to the constant suffering??
The hardest part to explain to ppl is the constant tiring feeling and the exhaustion that my mom faces.
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