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Bronchiolitis obliterans

des7
  • By des7 · New reply 12:40 am
  • Discussion in Living with a lung disease · 37 replies
  • I have Bronchiolitis obliterans and wanted to know if there is anyone out there who has the same thing. I don't know much about it due to its a rare disease. I have googled for information but would like ...

Swelling of Cervical lymph glands

mory
  • By mory · New reply yesterday at 10:19 pm
  • Discussion in Lung infections · 4 replies
  • Wondering if anyone has any experience with cervical lymph swelling and if it is common with mac. Previous to my Mac diagnosis I had a biopsy on the largest swollen gland in my neck that ruled out lymphoma ...

Feeling guilty...

Kbellaluna
  • By Kbellaluna · New reply yesterday at 9:25 am
  • Discussion in Lung infections · 1 reply
  • I was fortunate that what the doctors insisted was a cancerous tumor was in fact something called Organizing Pneumonia. But they didn't find that out until they started the surgery on February 24, 2014 ...

Extra tubing and cannulas

chaosandpeace2002
  • By chaosandpeace2002 · New reply yesterday at 12:35 am
  • Discussion in Living with a lung disease · 1 reply
  • After much trial and error, I finally found out I can no longer use regular supplies for my concentrators to supply high flow oxygen. So now I have several tubings, bottle humidifiers, and cannulas for ...

I'M STILL ALIVE AND KICKING

ShelaKay42
  • By ShelaKay42 · New reply April 16, 2014
  • Journal · 12 replies
  • Hello Friends, I'm still here slots been going on this past year I've been getting closer to my Lord and Savior Jesus Christ every day I rededicated my life to him and I am a born again Christian. I walk ...

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Mac and many questions

mory
  • By mory · New reply April 14, 2014
  • Discussion in Lung infections · 5 replies
  • Hi, I am so happy to have found this support. I am 62 and was diagnosed with Mac and COPD 6 months ago. Both my docs said not to treat and repeat scans in 6 months since I have very little symptoms other ...

Looking for pulmonologist in Minneapolis/St. Paul, MN

paulande
  • By paulande · New reply April 14, 2014
  • Discussion in Treatment · 12 replies
  • have MAC/bronchiectasis and have gotten a lot of good information from this site. My present pulmonologist is young and has no other patients with MAC so has NO experience. I'm just not comfortable with ...

very low oxygen level

klockz
  • By klockz · New reply April 14, 2014
  • Discussion in Lung diseases · 5 replies
  • i diagnosed at January - 2012 What are the dangers of a low level of oxygen in the body i am always 60 - 65 % some time lower than 40 % what will gona happen to me if stay ilke this . when i go for 3 ...

Now ready to be referred to Vanderbilt

FriendofDog
  • By FriendofDog · New reply April 14, 2014
  • Discussion in Lung diseases · 2 replies
  • My husband has gotten progressively worse in the past 6 months since our last doctor's visit. His lung function test was 35.. ...I was just wondering how many folks on here are on a "waiting list" at ...

Australia and MAC

robynjw
  • By robynjw · New reply April 14, 2014
  • Discussion in Living with a lung disease · 19 replies
  • Hi,This is the first time I have posted here. I have bronchiectasis and MAC and was wondering if there is anyone else out there from Aust with these 2? This is a wonderful group with lots of info but ...

Understanding Bloodwork

Chuckette
  • By Chuckette · Posted April 10, 2014
  • Discussion in Symptoms · 0 replies
  • Interesting explanation of PaO2, PaCO2 and pH Arterial #'s in bloodwork and how they interact to describe difficulty breathing. www.medical-exam-essentials.com/arterial -blood-gases.html ...

Looking for pulmonologist in Minneapolis/St. Paul, MN

paulande
  • By paulande · New reply April 10, 2014
  • Discussion in Lung infections · 1 reply
  • I have MAC/bronchiectasis and have gotten a lot of good information from this site. My present pulmonologist is young and has no other patients with MAC so has NO experience. I'm just not comfortable ...

Facing Reality

Chuckette
  • By Chuckette · New reply April 9, 2014
  • Discussion in Living with a lung disease · 1 reply
  • Had a one on one with reality this morning. Made me realize that this is something real, serious and not in my head. Bittersweet reality. Thank you ...

Portable Oxygen Machine

CCFL
  • By CCFL · New reply April 7, 2014
  • Discussion in Living with a lung disease · 2 replies
  • Just got a loan of a Eclipse3 with autoSat. Anyone familiar with this machine that can give me any heads up about it.? Not too happy that is so big needs a cart to get around with it. I also use a walker ...

Lung surgery recovery questions

Rousseau
  • By Rousseau · New reply April 7, 2014
  • Discussion in Treatment · 14 replies
  • In 2 days I am having my upper right lobe removed by Dr. Mitchell in Denver. I am hoping he can so VATS. I was wondering if anyone can tell me: How long after surgery before I can drive? How long did ...

Exercise and Pulmonary Disease

BreathingBody
  • By BreathingBody · New reply April 6, 2014
  • Journal · 5 replies
  • Hello Inspire Friends Here's a note about another free webinar coming up soon. I think this topic will be a great one. The title is "Move it!Move It! Exercise and Pulmonary Disease" and it's scheduled ...

Support during changes in lifesyle

Chuckette
  • By Chuckette · New reply April 6, 2014
  • Discussion in Living with a lung disease · 2 replies
  • Hello everyone, I am new to the group and am so happy to have found you all. When I try to talk to my husband, to process all that has happened and how my (our) lives need to change, he gets irritated ...

Chronic Hypersensitivity Pneumonitis

102450
  • By 102450 · New reply April 6, 2014
  • Journal · 49 replies
  • My biopsy is complete and the pathologist's report concludes that I have CHP. I'm scheduled to meet separately with two specialists to seek their advice and decide a course of action. I'm anxious to reach ...

Desperately seeking MAC ID in NYC area

conniem17
  • By conniem17 · New reply April 5, 2014
  • Discussion in Lung infections · 8 replies
  • I am a 46 year old female with bronchiectasis and MAC currently being treated by a pulmonologist in NYC. I spent 6 days in January 2014 at National Jewish under the care of Dr. Huitt. She was terrific ...

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