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  • By BreathingBody · New reply 10:01 am
  • Journal · 12 replies
  • Hello Inspire Friends - Here is the information for the next webinar in the free series I have mentioned previously. This one is on exercise - which is something they truly specialize in at this center ...

Todays Challenges

  • By Aug308 · New reply 9:56 am
  • Journal · 1 reply
  • Today is a special day, we are about to have our second grandchild. My daughter is currently in the hospital being induced. The baby will arrive today for sure. I am very excited but also am worried about ...


  • By SpaceSuitGirl · New reply 8:51 am
  • Journal · 31 replies
  • It's been 8 years since I was diagnosed with a lung disease at the age of 57. Three years ago I was told it was severe IPF and the doctor estimated I had a 1.5 to 3 years left. After that it was oxygen ...

MAC Avium Intracellure and Bronchiectiasis

  • By gbip · New reply yesterday at 6:45 pm
  • Discussion in Living with a lung disease · 6 replies
  • I was diagnosis with MAC in July, 2013 and Bronchiectasis March, 2014. I live in Southern California. I'm being treated at Kaiser Hospital. If there is someone interested in talking to me, it would be ...

Just a little update...

  • By Rocket88 · New reply yesterday at 3:26 pm
  • Journal · 3 replies
  • Wow, has it really been 2.5 months since I had that TKR (Total Knee Replacement) done on my right knee? I feel great! I weaned myself off of pain meds faster this time (compared to when I had the TKR ...

Anyone taking Cellcept and Plaquenil together - side effect???

  • By Dobeck · New reply April 22, 2014
  • Discussion in Living with a lung disease · 1 reply
  • Hello, I was recently diagnosed with RA along with my NSIP (Non Specific Interstitial Pneumonitis) that I have. Does anyone take both of these drugs together and are you having any side effects? I don't ...

MAC Lung Disease

  • By Breakthrough7 · New reply April 22, 2014
  • Discussion in Lung diseases · 4 replies
  • Hi, my dad was diagnosed with MAC two years ago and the doctor he has isn't any good and all these medications are not working. Anyone know of a good doctor in the Cleveland/Akron Ohio area? Or maybe ...

Hay fever medications and MAC

  • By Rousseau · Posted April 22, 2014
  • Discussion in Lung diseases · 0 replies
  • I was diagnosed with MAC in August, am on the Big 3 Antibiotics daily and had a upper right lobe lung lobectomy 3 weeks ago. All of a sudden my hay fever is out of control. I used to take Zyrtec and Flonase ...

Disability for NTM

  • By Suntigres · New reply April 21, 2014
  • Discussion in Living with a lung disease · 1 reply
  • Is there anyone with NTM that is on oxygen for exertion and getting disability. Everytime I go to the doctor they ask if I am still working and I finally asked why. They said that most people in my position ...

New research may boost drug efficacy in treating pulmonary arterial hyperte

  • By SLOPatient · New reply April 21, 2014
  • Discussion in Treatment · 3 replies
  • Hi there, I just wanted to share an article, I came across. I guess it is still a long way from human trials I guess, but at least some progress is being made, and seing progress is important when you ...

BOOP Surgery 1 or 2?

  • By MiaRad56 · Posted April 21, 2014
  • Journal · 0 replies
  • I need to have both lungs biopsied because they believe its BOOP, and won't give me any medication until they get the Path results. This week is the breathing test. then the Dr appt at which point I need ...

Feeling guilty...

  • By Kbellaluna · New reply April 20, 2014
  • Discussion in Lung infections · 3 replies
  • I was fortunate that what the doctors insisted was a cancerous tumor was in fact something called Organizing Pneumonia. But they didn't find that out until they started the surgery on February 24, 2014 ...

Help just found out I have BOOP

  • By MiaRad56 · New reply April 20, 2014
  • Discussion in Lung diseases · 5 replies
  • Hi I am 57 years old and was just Diagnosed with BOOP yesterday. That was after being sick with a temperature of 101 to 102 for 7 months, I am so glad that I found this site and much like everyone else ...

Bronchiolitis obliterans

  • By des7 · New reply April 19, 2014
  • Discussion in Living with a lung disease · 40 replies
  • I have Bronchiolitis obliterans and wanted to know if there is anyone out there who has the same thing. I don't know much about it due to its a rare disease. I have googled for information but would like ...

High ALT liver enzyme after just 1 month of MAC antibiotics

  • By jodiewriteme · New reply April 19, 2014
  • Discussion in Lung diseases · 4 replies
  • I am a very healthy 44 year old female athlete. I was diagnosed with MAC in Feb. I just started meds in late March and had my first liver blood lab yesterday. My ALT is now 113 and before I started meds ...

Exercising while using O2

  • By JoanSmike · New reply April 18, 2014
  • Discussion in Lung diseases · 2 replies
  • I need help know how to exercise safely using O2. Until Sept., 2014 I was very physically active. Then I began to experience significant shortness of breath. After numerous nests over a three month period ...

Swelling of Cervical lymph glands

  • By mory · New reply April 17, 2014
  • Discussion in Lung infections · 4 replies
  • Wondering if anyone has any experience with cervical lymph swelling and if it is common with mac. Previous to my Mac diagnosis I had a biopsy on the largest swollen gland in my neck that ruled out lymphoma ...

Extra tubing and cannulas

  • By chaosandpeace2002 · New reply April 17, 2014
  • Discussion in Living with a lung disease · 1 reply
  • After much trial and error, I finally found out I can no longer use regular supplies for my concentrators to supply high flow oxygen. So now I have several tubings, bottle humidifiers, and cannulas for ...


  • By ShelaKay42 · New reply April 16, 2014
  • Journal · 12 replies
  • Hello Friends, I'm still here slots been going on this past year I've been getting closer to my Lord and Savior Jesus Christ every day I rededicated my life to him and I am a born again Christian. I walk ...

"A wake-up call from a young e-patient: 'I need to be heard'”

  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

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