Non-small cell lung cancer - Stage IV

Support for those diagnosed with stage IV non-small cell lung cancer.


Needs input about side effects of Afatinib

  • By Tstephen · New reply 12:09 pm
  • 1 reply
  • Hi! I started Afatinib today after being a Tarceva resistant. So worried of the side effects. Anyone taking Afatinib or took Afatinib, please let me know the side effects you experienced. Thanks so much ...

Problems with maintenance

  • By Trish1941 · New reply 11:37 am
  • 2 replies
  • I was expecting my Alimta maintenance to stop because my blood pressure has been very high ( can't think what caused that ) I have a very caring onc and she has reduced the steroids. I had put on weight ...

Bone Mets to Lumbar Spine - Radiation

  • By bchbabe26 · New reply 11:05 am
  • 4 replies
  • Not ready to wave the white flag yet, but really!!! I'm usually pretty optimistic about things, but the news today really sucks. Barry had an MRI last night - Thoracic (he has 2 tumors already), and Lumbar ...

New drug trial MET Amplification LY2765358

  • By SusansFight · New reply 11:05 am
  • 4 replies
  • I'm about to start a new drug trial for MET amplification. It's a Lilly drug- LY2765358. I was wondering if anyone else is going on it!... Thanks, Susan ...

Neupogen interactions

  • By jmcgrath · New reply 9:59 am
  • 1 reply
  • Hi, My mom is 4 days past her first chemo and has started on neupogen. Does anyone know if there are any interactions to be concerned about? Anyone use RSO and neupogen? Thanks, J ...

pleural catheter keeps getting clogged

  • By TUDRYN137 · Posted 9:53 am
  • 0 replies
  • My husbands pleural catheter keeps getting clogged. He went in last week and they put in a solution to unclog it. Now it seems clogged again? Anyone have this problem? Before we thought the fluid was ...


  • By Huffy8 · New reply 1:26 am
  • 4 replies
  • Hi everybody surviving NSCLC I read a couple of months ago that AZD 9291 was the new wonder drug for EGFR+ but an oncologist at my hospital has told me I am precluded from any trials because I do not ...

tarceva and fatigue

  • By Timmi · New reply yesterday at 8:44 pm
  • 8 replies
  • I'm on 150 mg tarceva. I was wondering if others on tarceva are feeling very fatigued. I cant seem to get done what I need to do everyday. I need an afternoon nap and by 8:00pm I cant keep my eyes open ...

Need a recommendation of lung cancer onc at Mayo clinic

  • By jmg213 · New reply yesterday at 7:37 pm
  • 2 replies
  • Does anyone know a good ONC for lung cancer treatment at Mayo Clinic, I'll be around Chicago area next month, and plan to visit Mayo Clinic for a second opinion of my lung cancer treatment, if you know ...

Eli Lilly trial with LY2835219

  • By Tina52 · New reply yesterday at 5:07 pm
  • 5 replies
  • Has anyone out there been on this type of trial? Was told it has been used in breast cancer patients. I am thinking of starting this trial for NSCL lung cancer with also Altima, This would be the only ...

AZD9291 - DAY 1 of CYCLE 1

  • By Donna-W · New reply yesterday at 4:35 pm
  • 56 replies
  • On 12/13/10 I was diagnosed with Stage 4 BAC with EGFR 19 POSITIVE mutation and told I had six months to live by my original oncologist which, was a diagnosis I would not accept. I sought a new oncologist ...

Resistant to Tarceva? - New clinical trial to make Tarceva effective again

  • By roosty · New reply yesterday at 3:40 pm
  • 13 replies
  • This study will combine Velcade ( bortezomib) with Tarceva. The belief is that Velcade will make a person's cancer respond to Tarceva again. A drug to put on your watch list if you are taking Tarceva ...

Foundation One Testing

  • By Kate092786 · New reply yesterday at 1:49 pm
  • 6 replies
  • Those of you that have had this done - can you tell me if your insurance covered this or how much it covered? Also, does it have to be solid tumor biopsy or can it be fluid from a malignant pleural effusion ...

Mutation testing!

  • By DanaL14 · New reply yesterday at 1:47 pm
  • 10 replies
  • Ok so mom dxd stage 4 adeno ... Finally got results back and nurse said she came back KRAS positive and that the doc would go over it at next visit. She said no targeted therapies for this. Somebody please ...

My oncologist called me a walking miracle.

  • By Denzie · New reply yesterday at 1:06 pm
  • 60 replies
  • So I'm happy dancing. We talked about my treatment and recovery and all that good stuff. I told him I thought I was just a freak of nature. LOL! We looked at the ct to see the individual rib fractures ...

Goobye Tarceva, hello ??

  • By Sunshine4me · New reply yesterday at 12:56 pm
  • 14 replies
  • My CT scan in Jan and in April showed slight increase in progression. My onc feels that it is time to look into other options . As high as he was on Afatinib 3 mos ago, he now tells me that he is not ...

LY2835219 clinical trial update

  • By Summermoon2012 · New reply yesterday at 10:28 am
  • 5 replies
  • Just wanted to share information. I have been on the ly2835219 clinical trial. After two months, this week's CT scan showed reductions in the tumors. This trial is in Boston, Santa Monica and Tx (not ...

Please Help.....New to this Nightmare.

  • By AnnaMajella · New reply yesterday at 9:59 am
  • 7 replies
  • Hello, I have just read some information and earlier post on this site today, hence my decision to join. I am in desperately need for feedback - preferably positive, as I seem to be surrounded by so much ...

pain management

  • By Petra1103 · New reply April 22, 2014
  • 18 replies
  • I was wondering how many of you are utilizing pain management doctors? I have been told that my pain management doctor is one of the best in town. However I cannot say that of their staff. When it comes ...

Last Treatment??? How long??

  • By melbutler98 · New reply April 22, 2014
  • 5 replies
  • Hi Inspire family... Yesterday mom had 4th treatment. We will not be scanned til May2nd. You all know this disease has consumed me... As yourselves. We got news after 2nd treatment tumor shrank by 50 ...
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