Non-small cell lung cancer - Stage IV

Support for those diagnosed with stage IV non-small cell lung cancer.


Taxotere 1st infusion

  • By Peanut11 · New reply yesterday at 11:51 pm
  • 79 replies
  • Hi All, I had my first Taxotere treatment Thursday morning. I feel awful! Everything hurts, my head, my joints, my back. I am glad to say there is no nausea. Even my jaw hurts, thanking my lucky stars ...

Update on my journey

  • By Petra1103 · New reply yesterday at 10:38 pm
  • 5 replies
  • I just wanted to give you an update to my current treatment. I am on Tarceva for 2 month now not because I am EGFR positive but because a blood test showed that I would respond to it. I got the rash and ...

Please help need advice for dad on morphine now

  • By mity · New reply yesterday at 10:18 pm
  • 20 replies
  • Hi ...I'm new to this forum yet always read your posts for advice. Now it's my time to ask for some. My father was diagnosed with a mass in his upper lobe last January 2013. He had surgery then chemo ...

vitamin b17

  • By pulkitp · New reply yesterday at 9:33 pm
  • 2 replies
  • i have heard tha vitamin b 17 is quiet good for lung cancer. has anyone used it or heard about it too ...

Tarceva change in fluid color! same amount though

  • By Jess76 · Posted yesterday at 9:12 pm
  • 0 replies
  • My dad has been on Tarceva since November of 2013.He has done pretty well with it.Last few weeks the fluid color has darkened a bit from a light beer color to a darker beer color.He gets 150 cc out a ...

Has anyone heard from Enricofox?

  • By Lifetimer6 · New reply yesterday at 8:22 pm
  • 6 replies
  • He gas not listed in a while, started to wonder of he is ok ...

No go on the MEK 162

  • By Grgka · Posted yesterday at 8:11 pm
  • 0 replies
  • Well I had to stop the trial (mek162) because of pleura effusion . Today I met with my Onc who has suggested chemo. Docetaxol / Avastin. This will be my third line of treatment besides the trial. I am ...

Can you recommend a mind/body retreat that serves up organic food

  • By Lizziaw · New reply yesterday at 7:12 pm
  • 31 replies
  • Any recommendations for a good retreat...where you can learn about herbal supplements, eat organic foods, and do the whole mind/body acupuncture reiki experience? I'm looking for a three day to a weeklong ...

It is so difficult to go on without the love of your life.

  • By OTTAWA · New reply yesterday at 10:45 am
  • 15 replies
  • It is now three months since he has been gone and I miss so much. Yesterday, I spent the day in his office in our home going through all the boxes and files. I found all the letters and cards I had given ...

AZD9291 - DAY 1 of CYCLE 1

  • By Donna-W · New reply yesterday at 10:05 am
  • 40 replies
  • On 12/13/10 I was diagnosed with Stage 4 BAC with EGFR 19 POSITIVE mutation and told I had six months to live by my original oncologist which, was a diagnosis I would not accept. I sought a new oncologist ...


  • By celltelluser · New reply yesterday at 9:00 am
  • 11 replies
  • I was in a marketing research study today for stage III and IV patients for a new drug that is about to get FDA approval. PD-1 came up on one of the ads they showed us. The man conducting the interview ...

Does anti PD-1 trial really work for most patients?

  • By jc59 · New reply April 16, 2014
  • 22 replies
  • I am almost in a similar situation as tvoltagg who reported of last week of failure of MK-3475 trial. My CT scan result after the 3rd infusion of BMS phase-1 anti PD-1 clinical trial (Nivolumab + ipilimumab ...

Mom completed second chemo... Just want to hear from everyone

  • By DanaL14 · New reply April 16, 2014
  • 7 replies
  • Mom completed her second carbo/alimta/avastin . She's feeling so so... Experiencing fatigue, aches, mouth discomfort and constipation. All of the side effects although not ideal are being managed. The ...

New Drug approval in Australia

  • By Chaioni · New reply April 16, 2014
  • 5 replies
  • I know this would raise the attention of somewhat limited audience but here is my question: If an AntiPD1 drug gets approved by FDA how long after does the Australian health system look at adding it to ...


  • By TUDRYN137 · New reply April 16, 2014
  • 10 replies
  • My husband has stage 4 NSCLC. We were informed last week that the scan showed cancer spreading through his lung or it might be tissue from radiation? Has anyone heard this before?? I feel like they are ...

Hi all, back again

  • By cosmo254 · New reply April 16, 2014
  • 5 replies
  • It's been a rough year and it's only April. I guess it actually started last December when Jerry had a reaction to his Alimta maintenance. When he had it previously he had taken 1 pill the day before ...

Last Treatment??? How long??

  • By melbutler98 · New reply April 16, 2014
  • 4 replies
  • Hi Inspire family... Yesterday mom had 4th treatment. We will not be scanned til May2nd. You all know this disease has consumed me... As yourselves. We got news after 2nd treatment tumor shrank by 50 ...

Tough times

  • By cyberpilla · New reply April 16, 2014
  • 5 replies
  • Hi Inspire family, I am from India and my beloved mom 49 years old was diagnosed with NSCLC stage 4 last month she completed two cycles of chemotherapy. And the tumor is responding well the doctor says ...

Next Steps for my Wife?

  • By paulryan · New reply April 16, 2014
  • 12 replies
  • Hi All, I'm a long time lurker and occasional poster here, my wife has been going through hell recently both physically and mentally, basically regular seizures have limited us very much in how we live ...


  • By TUDRYN137 · New reply April 16, 2014
  • 11 replies
  • HUSBAND WITH STAGE 4 NSCLC. Only 42 years old. I am 36. We have 3 children. We have been going through a roller coaster with this for just over a year now. He seems to think that his illness should not ...
Photo of Dave Grant

The Lung Cancer Survivors Support Community has provided support for patients, caregivers, families and friends since 2006. We welcome over 600 new members every month in the fight against lung cancer.

ALK mutations and lung cancer

Join the discussion about ALK mutations and lung cancer

Things you can do

Discussion topics

Community leaders