Non-small cell lung cancer - General

Support for those diagnosed with non-small cell lung cancer.

Discussions

Another question re survival rate vs recurrence rate

katchmoleen
  • By katchmoleen · New reply 2:58 pm
  • 22 replies
  • Skip this if you don't like talking about statistics. My oncologist ran my case through a computer program he had and with 1b adenocarcinoma he said, "You are at 70% but I even think that's low because ...

TARCEVA DIVAS AND DUDES 04/18/2014

Branastasia
  • By Branastasia · New reply 2:47 pm
  • 48 replies
  • Welcome Divas, Dudes, Caretakers, Newbies and Lurkers! One thing cancer has done for me (other than the eyelashes) is a readjustment of things that make me crazy. Before I was married I filed my taxes ...

Why are we not prepared for post-surgical pain?

JulieanneG
  • By JulieanneG · New reply 2:07 pm
  • 50 replies
  • I was responding to yet another question about whether pain from surgery is normal, and I think I blew an inner gasket. Actually, this was the same burning question that first led me to Inspire after ...

What to do when death is near?

help4myfather
  • By help4myfather · New reply 11:15 am
  • 25 replies
  • I know that this is the end. Cold hands, fast small breaths, lethargy, confusion. Only taking small sips of water, little urine. There is no pain, as far as I can understand but no energy and sleeping ...

Treating two mutations (or more) with smart drugs

Bernie3
  • By Bernie3 · New reply 10:56 am
  • 12 replies
  • Dear Inspire friends, If you had the chance to read the earlier thread about TKI resistance ( http://www.inspire.com/groups/lung-cance r-survivors/discussion/tki-a-new-hypothe sis-about-resistances ...

VITAMIN D LEVEL

KATEXON21
  • By KATEXON21 · New reply yesterday at 11:02 pm
  • 65 replies
  • I requested to add a vitamin D level to my husband's blood work for Monday. What is an acceptable range for a cancer patient, maybe I shouldn't say "acceptable", maybe I should say the best range to fight ...

Tribulations and Fun in a Clinical Trial

poksa
  • By poksa · New reply yesterday at 8:24 pm
  • 30 replies
  • Latest news: After all the tests, scans, and bloodletting, Dr. C declared me qualified and accepted for participation in the CO-1686 Phase 2 trial. If you a. are bored b. have nothing else to do c. like ...

Positive Mental Attitude, and then some!

Stubby55
  • By Stubby55 · New reply yesterday at 5:08 pm
  • 15 replies
  • I've never posted a link before so I don't know if this will work. My elder daughter shared this on my Facebook page. I think it's inspiring, hope you do to. (If it works!). Btw, it was all I could manage ...

Some good news to share

celltelluser
  • By celltelluser · New reply yesterday at 11:57 am
  • 25 replies
  • Some news to share ~ I became a Registered Nurse as of today. I was dx during my last week of precepting but had enough hours so the college let me graduate. I did not go to pinning, I did not study for ...

Anti-PD1 with Anti-KIR Clinical Trial NCT01714739

NWGardener
  • By NWGardener · New reply yesterday at 9:49 am
  • 22 replies
  • Is anyone on this clinical trial? It is a combination of two immunotherapies, Nivolumab (Anti-PD1 antibody) and Lirilumab (Anti-KIR antibody), given as infusions once every four weeks for the Lirilumab ...

TKI – a new hypothesis about resistances

Bernie3
  • By Bernie3 · New reply yesterday at 9:25 am
  • 20 replies
  • Dear Inspire friends, I have been thinking about the notion of resistance. Most of us respond to tyrosine kinase inhibitors for a certain period of time and then develop a resistance. I have been reading ...

Chest tightness and discomfort

Manz22
  • By Manz22 · New reply yesterday at 7:19 am
  • 9 replies
  • Hi I am very new to this forum but am finding it so helpful and a source of so much support. I am 43 and live in New Zealand . I was diagnosed with stage lV lung cancer on the 21st of February. I have ...

Our Greatest Resource-Teach Our Children

BetsyT
  • By BetsyT · New reply yesterday at 3:33 am
  • 1 reply
  • A recent post about grade school bullying regarding a parents Lung cancer, reminded me of our critical need to educate our Youth about Lung cancer.... read more: //www.facebook.com/notes/lung-cancer-sur ...

LUNG CACNER SUCKS

betsy0525
  • By betsy0525 · New reply April 21, 2014
  • 11 replies
  • That's really all I have to say when people ask me how it's going. Well I'm watching my dad die. The 53 year old man who 6 months ago was completely fine working 60 hours a week now can't even sit up ...

Deep Wound infection six weeks after surgery?!

pfarley
  • By pfarley · New reply April 21, 2014
  • 5 replies
  • I developed a deep wound infection six weeks after surgery. I had the VATS procedure on 2.18.14 @ MD Anderson, where they removed the right lower lobe of my lung. Everything was going fine till BOOM ...

Happy Easter/Happy Passover

marachandler
  • By marachandler · New reply April 21, 2014
  • 2 replies
  • Hi all!..Just wanted to stop in to say Happy Holidays...I need to catch up on how everyone is doing...I so hope all is ok... Been kinda down lately...pulling myself out of a funk.....Blah....I will be ...

For those who might order their Xalkori for delivery "on the road" ...

Ex-Rocker
  • By Ex-Rocker · New reply April 21, 2014
  • 9 replies
  • ... make sure you get triple-secret confirmation that the delivery destination for your next home delivery is in fact your home! We stayed on some friends' farm in the Midwest for about a week last year ...

TARCEVA DUVAS AND DUDES 03/21/2014

Blowininthewind
  • By Blowininthewind · New reply April 21, 2014
  • 5 replies
  • Yeah, I know it's cheating because it's after 1 p.m. here, so good morning, everyone, may the day be a good one ...

I guess we are giving up..

betsy0525
  • By betsy0525 · New reply April 21, 2014
  • 21 replies
  • My dad has been sent home from the hospital because he was tired of being there . We found out while we were there his second line of chemo was not working. The oncologist (not his primary but a partner ...

5mm Nodule Went Away!

Frangipani
  • By Frangipani · New reply April 21, 2014
  • 15 replies
  • I thought I would post this so that people could see that sometimes nodules do disappear. I had a 5mm GGO on my December scan. I kind of worried because even though I have a secondary inflammatory lung ...
Photo of Dave Grant

The Lung Cancer Survivors Support Community has provided support for patients, caregivers, families and friends since 2006. We welcome over 600 new members every month in the fight against lung cancer.

ALK mutations and lung cancer

Join the discussion about ALK mutations and lung cancer

Things you can do

Discussion topics

Community leaders