Non-small cell lung cancer - General

Support for those diagnosed with non-small cell lung cancer.


Another question re survival rate vs recurrence rate

  • By katchmoleen · New reply 2:58 pm
  • 22 replies
  • Skip this if you don't like talking about statistics. My oncologist ran my case through a computer program he had and with 1b adenocarcinoma he said, "You are at 70% but I even think that's low because ...


  • By Branastasia · New reply 2:47 pm
  • 48 replies
  • Welcome Divas, Dudes, Caretakers, Newbies and Lurkers! One thing cancer has done for me (other than the eyelashes) is a readjustment of things that make me crazy. Before I was married I filed my taxes ...

Why are we not prepared for post-surgical pain?

  • By JulieanneG · New reply 2:07 pm
  • 50 replies
  • I was responding to yet another question about whether pain from surgery is normal, and I think I blew an inner gasket. Actually, this was the same burning question that first led me to Inspire after ...

What to do when death is near?

  • By help4myfather · New reply 11:15 am
  • 25 replies
  • I know that this is the end. Cold hands, fast small breaths, lethargy, confusion. Only taking small sips of water, little urine. There is no pain, as far as I can understand but no energy and sleeping ...

Treating two mutations (or more) with smart drugs

  • By Bernie3 · New reply 10:56 am
  • 12 replies
  • Dear Inspire friends, If you had the chance to read the earlier thread about TKI resistance ( r-survivors/discussion/tki-a-new-hypothe sis-about-resistances ...


  • By KATEXON21 · New reply yesterday at 11:02 pm
  • 65 replies
  • I requested to add a vitamin D level to my husband's blood work for Monday. What is an acceptable range for a cancer patient, maybe I shouldn't say "acceptable", maybe I should say the best range to fight ...

Tribulations and Fun in a Clinical Trial

  • By poksa · New reply yesterday at 8:24 pm
  • 30 replies
  • Latest news: After all the tests, scans, and bloodletting, Dr. C declared me qualified and accepted for participation in the CO-1686 Phase 2 trial. If you a. are bored b. have nothing else to do c. like ...

Positive Mental Attitude, and then some!

  • By Stubby55 · New reply yesterday at 5:08 pm
  • 15 replies
  • I've never posted a link before so I don't know if this will work. My elder daughter shared this on my Facebook page. I think it's inspiring, hope you do to. (If it works!). Btw, it was all I could manage ...

Some good news to share

  • By celltelluser · New reply yesterday at 11:57 am
  • 25 replies
  • Some news to share ~ I became a Registered Nurse as of today. I was dx during my last week of precepting but had enough hours so the college let me graduate. I did not go to pinning, I did not study for ...

Anti-PD1 with Anti-KIR Clinical Trial NCT01714739

  • By NWGardener · New reply yesterday at 9:49 am
  • 22 replies
  • Is anyone on this clinical trial? It is a combination of two immunotherapies, Nivolumab (Anti-PD1 antibody) and Lirilumab (Anti-KIR antibody), given as infusions once every four weeks for the Lirilumab ...

TKI – a new hypothesis about resistances

  • By Bernie3 · New reply yesterday at 9:25 am
  • 20 replies
  • Dear Inspire friends, I have been thinking about the notion of resistance. Most of us respond to tyrosine kinase inhibitors for a certain period of time and then develop a resistance. I have been reading ...

Chest tightness and discomfort

  • By Manz22 · New reply yesterday at 7:19 am
  • 9 replies
  • Hi I am very new to this forum but am finding it so helpful and a source of so much support. I am 43 and live in New Zealand . I was diagnosed with stage lV lung cancer on the 21st of February. I have ...

Our Greatest Resource-Teach Our Children

  • By BetsyT · New reply yesterday at 3:33 am
  • 1 reply
  • A recent post about grade school bullying regarding a parents Lung cancer, reminded me of our critical need to educate our Youth about Lung cancer.... read more: // ...


  • By betsy0525 · New reply April 21, 2014
  • 11 replies
  • That's really all I have to say when people ask me how it's going. Well I'm watching my dad die. The 53 year old man who 6 months ago was completely fine working 60 hours a week now can't even sit up ...

Deep Wound infection six weeks after surgery?!

  • By pfarley · New reply April 21, 2014
  • 5 replies
  • I developed a deep wound infection six weeks after surgery. I had the VATS procedure on 2.18.14 @ MD Anderson, where they removed the right lower lobe of my lung. Everything was going fine till BOOM ...

Happy Easter/Happy Passover

  • By marachandler · New reply April 21, 2014
  • 2 replies
  • Hi all!..Just wanted to stop in to say Happy Holidays...I need to catch up on how everyone is doing...I so hope all is ok... Been kinda down lately...pulling myself out of a funk.....Blah....I will be ...

For those who might order their Xalkori for delivery "on the road" ...

  • By Ex-Rocker · New reply April 21, 2014
  • 9 replies
  • ... make sure you get triple-secret confirmation that the delivery destination for your next home delivery is in fact your home! We stayed on some friends' farm in the Midwest for about a week last year ...


  • By Blowininthewind · New reply April 21, 2014
  • 5 replies
  • Yeah, I know it's cheating because it's after 1 p.m. here, so good morning, everyone, may the day be a good one ...

I guess we are giving up..

  • By betsy0525 · New reply April 21, 2014
  • 21 replies
  • My dad has been sent home from the hospital because he was tired of being there . We found out while we were there his second line of chemo was not working. The oncologist (not his primary but a partner ...

5mm Nodule Went Away!

  • By Frangipani · New reply April 21, 2014
  • 15 replies
  • I thought I would post this so that people could see that sometimes nodules do disappear. I had a 5mm GGO on my December scan. I kind of worried because even though I have a secondary inflammatory lung ...
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