Non-small cell lung cancer - General

Support for those diagnosed with non-small cell lung cancer.

Discussions

Burning Throat

By Stubby55 · New reply 1:10 am
7 replies
I'm on Alimta maintenance programme, 3 sessions to date, the last two sessions have left me with what I can only describe as the sensation of a burning throat. It doesn't happen immediately but a week ...

why should I believe anything they say anymore

By deschl · New reply 1:02 am
16 replies
I was told during my PET scan that nothing lit up and they found the cancer early in my upper left lobe, they said it was adenocarcinoma NSCLC. After removing upper left lobe they then say one lymph node ...

Anyone on Crizotinib/Xalkori, Ariad's AP261, and LDK/378 (ALK gene) Part 3

By matson001 · New reply 12:39 am
2915 replies
I am looking to make contact with people who have the ALK gene and/or are taking Crizotinib, (Xalkori) (PF-1066). I'm also looking to hear about the Ariad Drug, AP26113 and LDK/378. I think this would ...

Here I go again........

By cards7up · New reply 12:32 am
100 replies
Been trying to figure out how to do this. I had my 6 month follow-up CT scan in May. There was something there. With radiation scarring it's hard to tell sometimes what's what and so we move on to the ...

A stand against stupidity, recklessness, and other assorted bullshit

By Christine32 · New reply yesterday at 11:07 pm
93 replies
I know . . . here I go again! Stupidity is one of the reasons I feel compelled to take protracted vacations from Inspire. I always return, because I know there is so much good performed here. While I ...

Onc said it is ok fly

By rookierhonda2 · New reply yesterday at 10:58 pm
4 replies
I have been looking for previous posts that I have read where a pt was told he could not drive or fly anymore. So I asked my husband's onc if there was any reason not to fly. He said flying is fine. Of ...

Radiotherapy

By Carpat · New reply yesterday at 9:21 pm
5 replies
Hi Everyone Well after a recurrence which happened 9 months after surgery (LUL) I am to start 20 sessions of radical radiotherapy next monday. I would be grateful if anybody with any experience of this ...

please somebody help me

By sarahl87 · New reply yesterday at 4:24 pm
13 replies
Hi, I'm new to this but after reading it for a couple of days I thought I would come herefor some advice. Firstly id just like to say my thoughts are with you all. But here goes... For 5 months my nanna ...

NED

By Mapleleaf2061 · New reply yesterday at 10:51 am
2 replies
Can you have NED and still have a tumor? What does NED actually mean - I know it stands for no evidence of disease but don't understand ...

Ec145

By mmadriff · New reply yesterday at 8:12 am
2 replies
Has anyone heard of ec 145 and if so can you explain all you know about it. They are starting clinical trials and not sure about this. Thanks ...

COMFORT

By Lendy · New reply June 16, 2013
12 replies
"GOD didn't promise DAYS without pain, LAUGHTER without sorrow, 'nor SUN without rain, But HE promised STRENGTH for today, COMFORT for the tears, And light for the WAY. " These words are written on a ...

Pneumonia delays surgery

By seazr · New reply June 16, 2013
3 replies
My husband was scheduled for a bilobectomy on June 20. He came down with the flu about a week ago but refused to go to the Dr saying every day that it was better, Finally, I drug him to see our primary ...

nsclc

By lilith9 · New reply June 15, 2013
2 replies
Has anyone here been DX with nsclc unknown what type? What does it mean when they can't be specific and why ...

Months to live- Docetaxel 2nd line??

By HeliEye · New reply June 15, 2013
76 replies
After 2 sessions of Alimta/Carbo the scheduled CT Scan was not so good, tumour has grown to 7.1 cm.. ##Corrected from original (7.5cm, only just got the accurate no) I saw the top Oncologist today, I ...

Tarceva Cost - Is this for Real?

By SherryD54 · New reply June 15, 2013
8 replies
I came across a site this morning: www.fillitpharmacy.com. It gave me the price of $2,010.00 for one month. WOW! That is one-third the cost my prescription costs ...

Unable to eat after surgery

By elerouge · New reply June 15, 2013
4 replies
Five years ago I had cardiac surgery and I developed a problem with eating in the hospital. Everything, food, the room, smelled like garbage and sewage. I was never nauseated but could not eat at all ...

Is Tarceva ever given for SCLC?

By kalcijum · New reply June 15, 2013
4 replies
I know Tarceva is used / approved primarily for NSCLC but I think I saw some people with SCLC post about Tarceva, so i was interested if you have any experience / knowledge on this topic. Tnx ...

anyone on alimta experienceing halucinations?

By vg123 · New reply June 14, 2013
6 replies
My mother 81 YEARS with lung adenocarcinoma for last one year was treated with iressa and then tarceva with some initial success. Now we started with Alimta yesterday. Within 18 hours she is now seeing ...

Signet Cell Adenocarcinoma

By eek519 · New reply June 14, 2013
9 replies
My mother had a biopsy that showed signet cells in her lungs and possibly a lymph node. The pulmonologist said that this cell is associated with stomach and/or gastrointestinal cancers. She needs to get ...

bias against lung cancer patients??????????

By deschl · New reply June 14, 2013
46 replies
this article seems to say that there is a bias against lung cancer patients even amongst doctors, wth. http://www.gene.com/asco/race-wealth-gen der-cancer ...

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