Neuroendocrine (NETS) / Carcinoid tumors

Support for those diagnosed with neuroendocrine (NETS) / carcinoid tumors.

Discussions

Can dusts cause the tumors to "Kick Off"

By 24jasper07 · New reply May 15, 2013
7 replies
Hello everyone, I was just wondering what causes carcinoid syndrome to begin, does something cause the tumor/s to secrete, i was working in a very very dusty environment and i must have been breathing ...

Expecting too much too soon??

By tracyscull · New reply May 9, 2013
8 replies
Hi everyone...I had my left lung removed 6 weeks ago and still have some discomfort, mostly back pain and still very breathless. I am unable to sit in an upright position without pillows behind my back ...

Free Carcinoid/NET mini-symposium in NJ

By Caring4Noids · Posted May 5, 2013
0 replies
This may not apply to all on this forum. We are proud to announce that the New Jersey Carcinoid Cancer NETwork, in cooperation with Holy Name Medical Center Oncology Department will be holding a half ...

A-Typical Carcinoid Lung Cancer

By vj1284 · New reply May 5, 2013
3 replies
Just diagnosed and looking for info. Anything would be appreciated. Thank you ...

Recurrence?

By CUBANANOARREPENTIDA · New reply April 27, 2013
7 replies
Hi, I had my LLL removed 4 months ago. I've not had an easy recovery from the surgery but was very encouraged by the results of the pathology indicating a very slow growing carcinoid. All the doctors ...

I need update on Alta

By AngelaS2 · New reply April 26, 2013
2 replies
I am checking everyday for an update for our dear Alta ...

Pathology second opinion

By CUBANANOARREPENTIDA · New reply April 8, 2013
1 reply
Hi I was diagnosed with Carcinoid tumor in the lung last December 2012. One of the concerns recently brought to my attention is how sure am I that the pathology results are correct. I have had second ...

Short of breath, Heart faluire? Or Lungs?

By Luvalesh · New reply April 7, 2013
3 replies
Hi all, I was back to the cancer center, again today, to have labs drawn as heart faluire is still a concern as is kidney problem??? I'm very short of breath with a rest pulse of 130s to170s most likely ...

Lobectomy

By Saszzy · New reply March 31, 2013
13 replies
Is it normal to have a "zinging" pain below my left breast? I'm a few weeks out from having a Lower left lobectomy. I would say I'm recovery well but this zinging pain I'm experiencing is quite uncomfortable ...

P.E.T. scan

By Blondie103 (Inactive) · New reply February 24, 2013
29 replies
Is a P.E.T.scan a must ...4 months after a thoracatomy for a typical lung carcinoid.Doctor said he didnt expect to find anthing. Why then put the patient through extra stress. One other question, when ...

Oactreotide scan at stage 1a?

By faitleafarms · New reply February 20, 2013
9 replies
Last fall my wife was diagnosed with a bronchial carcinoma. She had surgery Oct 31 to remove her lower lobe of her left lung. The surgery went fine, with no complications. The tumor was removed and pathology ...

carcinoid

By catcon49 · New reply February 13, 2013
3 replies
Hi everyone. Just want to ask a few questionsbrother inlaw just had lobectomy his wife said they said carcinoid tumor wrapped around things very sticky lit up on pet but told her its not cancer. Any opinions ...

Should I be concerned?

By dougmc · New reply February 11, 2013
11 replies
I was diagnosed with NSCLC August of 2008 and underwent chemotherapy (Cisplatin and taxotere) as well as radiation. My doctor at UC wanted to remove my right lung due to the location of the tumor and ...

VATS Advice

By luckyhouston · New reply February 6, 2013
13 replies
I am new here and this is my first post. My background: Late last year a 1.7 cm mass showed up in my lungs during a kidney stone CT scan and pathology from a December biopsy confirmed a typical carninoid ...

Surgery completed..advise for recovery

By bschle7838 · New reply February 4, 2013
10 replies
I need advise on recovering from having a carcinoid tumor being removed from my right lung and a bilobectomy being preformed on Jan.8,2013. I have been walking a lot. I even drove a car a short distance ...

Registration now OPEN for Lung Carcinoid Conference!

By GentleOceanWind · Posted January 30, 2013
0 replies
I'm so thrilled to announce that registration is officially open for the world's first Carcinoid/Neuroendocrine Lung Cancer Conference! Produced and sponsored by CCAN (Carciniod Cancer Awareness Network ...

Lungnoid roll call!

By GentleOceanWind · New reply January 29, 2013
29 replies
Hello :) If you are a lungnoid or here to support a lungnoid, please say hello. I'm Kym, 45 yo wife and mama to two young children. I am currently recovering from a RML done 6 weeks ago. I am in the US ...

Lungnoid Conference and Opportunity to see Dr. Granberg, lungnoid expert!

By GentleOceanWind · New reply January 28, 2013
1 reply
Hi everyone! I wanted to be sure you all knew about the lungnoid conference! :) *Lungnoid Conference 2013* Sponsored and produced by the Carcinoid Cancer Awareness Network (CCAN), with cooperation from ...

Just had bilobectomy

By Johnnygreenwood · New reply January 28, 2013
23 replies
Well, it's only been two weeks. Cancer all gone. But so are two lobes of my right lung. Just looking for support, stories, someone whose had the same surgery to tell me the truth of what's going to happen ...

Swelling and Numbness post VATS surgery

By CUBANANOARREPENTIDA · New reply January 23, 2013
7 replies
Hi, I had the lower lobe of my left lung removed one month ago. I continue to have a huge (larger than a softball but smaller than a volleyball) swollen and numb area under my left breast - from midline ...

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