Insomnia, Sleep Apnea and Drugs

  • By Uhope · Posted 12:14 am
  • In Non-small cell lung cancer - Stage III · 0 replies
  • I have Complex Sleep Apnea and insomnia. I have trouble falling asleep and staying asleep 3 to 4 hours. I have gone days without sleep. The doctor does not want me taking Ambien CR and when I went off ...

? brain swelling & Gamma Knife

  • By texdjh · Posted yesterday at 10:26 pm
  • In Small cell lung cancer - Extensive · 1 reply
  • Howdy Folks.. Don is having Gamma Knife Weds.for his 2 new brain mets....Since he also has edema...won't the radiation of those 2 tumors ..also...make for more brain swelling?!? Isn't. radiation tramatic ...

Worried about radiotherapy

  • By Fightingthebattle · Posted yesterday at 7:09 pm
  • In Non-small cell lung cancer - Adenocarcinoma · 3 replies
  • Hi everyone, This is my first post. I have lived with this since November 2012, when I tripped with my dog and cracked by shoulder. By chance they found a small spot on the right lung. Then another CT ...

Omental caking/ascites NSCLC stage 4

  • By Jane1018 · Posted yesterday at 4:25 pm
  • In Non-small cell lung cancer - Stage IV · 1 reply
  • My father is going to have one year anniversary since diagnosed next month. He is currently on maintenance chemo-Alimta. This has proven to stabilize any growth. However, since started on Alimta, approx ...

Targeted Investigational Therapy Shows Early Promise Against Multiple Cance



  • By raisin1957 · Posted yesterday at 2:56 pm
  • In Non-small cell lung cancer - Stage III · 4 replies
  • Today i received my results from my ct scan. My GP told me that the 3 enlarged lymph nodes, one under my arm, 1 above my collarbone and one in my neck have come back as cancer. I had my right lung removed ...

Celebrating a Miracle

  • By Mother-in-law · Posted yesterday at 12:10 pm
  • In Good news · 31 replies
  • Emily had just turned 28 when she was diagnosed with stage IV NSCLC, poorly differentiated, metastasized to pleura, diaphragm and mediastinum, with no identifiable genetic mutations. Today she is 30 ...

Needs input about side effects of Afatinib

  • By Tstephen · Posted yesterday at 11:20 am
  • In Non-small cell lung cancer - Stage IV · 1 reply
  • Hi! I started Afatinib today after being a Tarceva resistant. So worried of the side effects. Anyone taking Afatinib or took Afatinib, please let me know the side effects you experienced. Thanks so much ...

pleural catheter keeps getting clogged

  • By TUDRYN137 · Posted yesterday at 9:53 am
  • In Non-small cell lung cancer - Stage IV · 3 replies
  • My husbands pleural catheter keeps getting clogged. He went in last week and they put in a solution to unclog it. Now it seems clogged again? Anyone have this problem? Before we thought the fluid was ...

Problems with maintenance

  • By Trish1941 · Posted yesterday at 8:28 am
  • In Non-small cell lung cancer - Stage IV · 4 replies
  • I was expecting my Alimta maintenance to stop because my blood pressure has been very high ( can't think what caused that ) I have a very caring onc and she has reduced the steroids. I had put on weight ...

cannabis helpful?

  • By Kycancerkiller · Posted yesterday at 8:19 am
  • In Non-small cell lung cancer - Stage III · 17 replies
  • Hi Everyone: My mother was diagnosed 7 weeks ago, radiation the last 4-5 weeks. She is not having much tumor shrinkage as of yet. Her doctor seems less than hopeful. Has anyone on this site used Cannabis ...

Chest pain after surgery

  • By Julielower · Posted yesterday at 5:03 am
  • In Non-small cell lung cancer - Stage III · 5 replies
  • Hi everyone, this is the first time I have posted anything on this site and I don't know if I am normal or if I am over cautious. I had my upper right lobe removed nine weeks ago and in the last two weeks ...

New drug trial MET Amplification LY2765358

  • By SusansFight · Posted yesterday at 12:35 am
  • In Non-small cell lung cancer - Stage IV · 5 replies
  • I'm about to start a new drug trial for MET amplification. It's a Lilly drug- LY2765358. I was wondering if anyone else is going on it!... Thanks, Susan ...

God called her home

  • By Ellasdaughter · Posted April 23, 2014
  • In Family members and caregivers · 26 replies
  • It is with both sadness and a happy heart that I share with you that my mother Ella Dupre has gone home to be with the Lord. He came and took her at 4:30pm today. She had a beautiful smile on her face ...

Third Line Treatment

  • By wallzworld · Posted April 23, 2014
  • In Small cell lung cancer - Limited · 2 replies
  • Husband Rick was diagnosed with limited SCLC in July 2011. Since then he's been in remission twice but docs think one of the tumors (there were three) is growing again. Pet scans are Friday, April 25 ...

Extremely bad cough

  • By Jenny8022 · Posted April 23, 2014
  • In Non-small cell lung cancer - Stage II · 6 replies
  • I have had a cough for a number of weeks now. About a month ago I went to see the doctor - she gave me Amoxicillin but the cough remained. Since 5 days ago the cough has worsened. Went to see another ...

test which predicts survival

  • By needinghelp · Posted April 23, 2014
  • In Lung cancer in the news · 12 replies
  • Life Technologies has a test which accurately predicts survival of early stage lung cancer patients. Does anybody know how to obtain this test ...

Bone Mets to Lumbar Spine - Radiation

  • By bchbabe26 · Posted April 23, 2014
  • In Non-small cell lung cancer - Stage IV · 7 replies
  • Not ready to wave the white flag yet, but really!!! I'm usually pretty optimistic about things, but the news today really sucks. Barry had an MRI last night - Thoracic (he has 2 tumors already), and Lumbar ...

FYI Cannabinoids

  • By cards7up · Posted April 23, 2014
  • In Treatment options · 6 replies
  • I'm reading a mystery novel, which are my favs. One of the main characters has MS and recently started using a prescription drug to help with neuropathic pain that came from a friend's friend in Canada ...

Neck Tumor after Lung Adenocarcinoma

  • By dreamrn · Posted April 23, 2014
  • In Non-small cell lung cancer - Adenocarcinoma · 1 reply
  • My beautiful sister was treated with chemo and radiation for Lung Adenocarcinome in 2009. Was clear until this week when she got a viral infection with the stomach side clearing but horrible cough remaining ...
Photo of Dave Grant

The Lung Cancer Survivors Support Community has provided support for patients, caregivers, families and friends since 2006. We welcome over 600 new members every month in the fight against lung cancer.

ALK mutations and lung cancer

Join the discussion about ALK mutations and lung cancer

Things you can do

Discussion topics

Community leaders