Hi. I'm new to this site. I was diagnosed with a 3.5 cm tumor on my left mainstem bronchus in the place where my heart sits between my lungs, in June 2004. I was going to be a stem cell donor for my brother, I had no symptoms and was very healthy. I have been afraid to have a biopsy because of the potential for the tumor to leak and spread to other parts of my body. I've seen several doctors, had lots of xrays, CT scans and PET scans. The reports all say it hasn't grown but is metabolically active, probably carcinoid cancer. For some reason, although nothing has changed, with my last CT/PET scan I became more nervous. One of my doctors was emphasizing that even though the tumor hasn't changed doesn't mean it isn't metastisizing. The treatment for my case seems to be complete removal of my entire left lung.
I am looking for survival stories of people who are living with one lung. I am a physically active, healthy 55 year old woman. Most people think I am 10 years younger than my age. I have 2 children 12 and 15. I want to enjoy my future grandchildren as well as hiking, skiing and swimming. I would be grateful if any of you would respond and let me know how things have gone for you.
Thanks and best wishes to you, Marcia in California