I started a discussion recently regarding brain mets and Stage IV NSCLC which my husband has. I had a lot of amunition when we saw my husband's onc yesterday. (Thank you!)
What I need to know is do we give up or get a second opnion? Is my husband too old to be helped?
When we arrived, the onc sat my husband on the examining table, clutched my husband's knee and announced that my husband only has six months to live. Or it could be only weeks. I don't need to tell anyone here how devastated we were.
Then the onc turned to me and said, "I supposed you have a lot of questions." (I always do.)
We went through Gamma or CyberKnife for the mets, T790M, other chemotherapies and Pulsed Tarceva. He nixed everything except the Pulsed Tarceva--he'd never heard of that.
So at this point, my husband's Tarceva (150 mg) is still working. He has 6-9 mets (all small--largest is around 1CM). None of the mets are bulky; they are small and thin. He is EGFR positive. Aside from the cancer, he had an enlarged prostrate, Rosacea (under control) and high blood pressure. He is 76 years old and is more like 56. (I wouldn't lie to this group!)
We are going to see the radiation oncologist tomorrow to see about WBR-10 treatments-to make him more comfortable. He's actually not uncomfortable. He's had some confusion and is periodically irritable.
So that's it. Second opinion or get our affairs in order?
I don't think I could survive all of this without this group!