When I first applied for SSDi and was approved almost immediately, I was told that I was eligible for SSI during the 5 month waiting period. At that time I was also eligible for Medicaid, but would have to re-apply once I started getting my SSDi payments which I did. My SSDi starting March1st. I just received a notice from the state stating that I make too much money ($1425 monthly) to be eligible for medicaid. Unfortunately my husband has passed away and the SSDi is my only income. Although I am not eligible for Medicaid, I am eligible for a shared cost plan. My shared cost is $1225 per month, which by my caluculations that gives me $200 a month to live on. I figured this must be a mistake, so I spent the entire day trying to get in touch with the state office. Finally I got to speak to someone, I was told that I am responsible for 80% of my income, if my expenses are over $1225 the state will pay them 100% if under then I am responsible. It is very confusing to me. I truly don't know how I will pay my bills. Even the $1425 that I get is not enough to cover my monthly expenses. I am just going to have to default on some of my accounts. Not what I thought I would be doing at this point in my life. I have worked since I am 15 and this disease is wiping me out in many ways. I will NOT let it beat me, but worring about my medical care is ridiculous. Just another example as to why it is outrageous that once on disability you have to wait 24 months to get medicare. I know that this is wordy and for that I am sorry, I just needed to vent, and what better place than this, with people who understand. Thank you all for listening to me once again.