So I think the Oncologist scared the crap out of us today. My mom is Stage IIIB and went through chemo and radiation in August. She had a CT scan in Sept. which showed great shrinkage. There was still a mass left but doc said that it could be scar tissue and that is was a wait and see game. Mom is feeling really good, is back to work, her hair is back, she has more energy. She started a clinical trial in early Nov and at that time had to do another CT which showed that everything was still the same/stable. So last week she went in for a new CT (it is required after the clinical trial). The oncologist who is the oncologist for the trial (not her original oncologist) saw us today and was VERY concerned with the CT scan because as he said...it looked like a mess. He said that he wasnt sure if this was recurrent disease or not and needed to talk to the radiation oncologist who did the original radiation treatment in July and August to see where the radiation fields were because it could be likely that the "mess" he is referring to is scar tissue that has formed around the areas that the radiation hit. So he leaves the room and of course we think the worse. My mom is so upset thinking about having to possibly do more chemo or radiation. He comes back to say that the radiation oncologist thinks very strongly that all the stuff going on in the right lung is indeed from the radiation and not recurrent disease. Of course he says it is impossible to tell 100% but knowing that all of what he sees was in the radiation field he now doesn't see as concerned. So now we dont know...again we wait, we wait, we wait. The anxiety level in my stomach is so high. Have any of you had similar experiences after radiation. I ask him...how come there was nothing 2 months ago and now the scan is a "mess", lots of shadowy things. He said the radiation oncologist said that its very common for the scar tissue to develop well after...even 3-6 months after the radiation is over. Anyway its all so confusing. We dont know where we stand except that he has said, go home and come back for another CT in 3 months. I called our original oncologist who works very closely with the radiation oncologist to get his take after looking at the CT...am waiting to hear. Any thoughts on this. I feel like we are just in this unkown twilight zone where no one knows for sure and its virtually impossible to do anything more than wait and see if cancer grows or spreads. So confusing and annoying.