I've been offline for quite a while but I'm back and need your help.
My husband has been cancer-free for two years (non small cell lung with brain mets). His last treatment, in the fall of 2010 was whole brain radiation. Since then he has deteriorated in many ways, most recently in June when he was hospitalized for pneumonia. Since then he has become wheelchair-bound, incontinent, unable to write, has problems reading and speaking, loss of mechanical ability and with a great loss of mental acuity. (This is a man with great brilliance and many degrees).
He is coming home from rehab in two days after being there for 6 weeks following a bout of pancreatitis. This man doesn't seem to be able to catch a single break.
What I want to know is anything anyone can tell me about brain regeneration following WBR. He has lots of inflammation from the radiation and constant headaches. Over-the-counter painkillers do little and the stronger ones turn him into a zombie. Is there any hope he can get better?
Most importantly I want to know if anyone knows of any research and/or clinical trials into the long-term effects of WBR. So many are surviving but the costs to them are HUGE. Is there any good news out there? The docs here do not know (and if they do, they are not telling which, in itself, is not good news)
You guys are on the forefront of all the knowledge, good and bad. I want the truth and so does he, not something sugar-coated. We've told the docs that, but they still demur. I believe they truly do not know what to expect with this dastardly treatment. Saved his life (at least so far) but what a cost.
Thanks, folks. I know you are the greatest!