Already a member? Sign in
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
I completed my chemo (cisplatin + VP16) 1/4/09. For the last 5 days I have been having numbness/tingling in my feet, left > right. I questioned this and was told that it has been too long for it to be associated with my chemo. Has anyone else experienced this?
Cancer Taxol Surgery Gabapentin Provigil Peripheral neuropathy Avastin Breast cancer
Yep, me too! It almost feels like I'm wearing knee-high stockings because that's where it extends to. It seems worse when I'm lying down and not moving around. I don't seem to notice it when I'm walking or active. I completed Gemzar/Carboplatin regime and I wonder if it was the chemo. Blessings! Brooklynda
I did not have any numbness during my tx or until now - 3 months later. I have been told that it seems unusual for it to have waited until now to show up and may not be associated with the chemo.
Any thoughts?
I also didn't have the tingling in my feet until about a month or two after I finished chemo. I still have it, but I've gotten used to it. My onc told me if it gets unbearable, he has meds for it. Please, no more meds. I don't even notice it so much anymore. I think I'll have it forever. Oh also when it's cold, my toes freeze.
Karen
I had radiation/chemo. Then surgery then adjuvant chemo. My last chemo was in September,2005. I had the numbness/ tingling in my fingers and toes. I was advised to try vitamin B6 and vitamin B12. It helped alot. I no longer have the problem in my fingers at all. Occasionally I feel a little numbness in my toes, but hardly noticeable anymore. Of course you need to talk to your doctor before you take any medication, or vitamin.
Carol
I had carbo/taxol and developed numbness and tingling in my feet and to a lesser extent my hands.
My last treatment was the end of Dec. 08. My hands have completely recovered but I still have some minor numbness/tingling in my feet. When I go walking I notice it a little bit up to my knees. Otherwise it doesn't really bother me at all.
I figure if this is the price for being NED it is worth it!!
It is called peripheral neuropathy. My husband suffered with it throughout his chemo and still today. He never got in in his fingers just his feet and legs sometimes and it has gotten better since he finished chemo. It comes and goes now that he is just on Avastin every three weeks but it is also a possible side effect of Avastin. Massage and warm towel wrapped around helps sometimes too.
Sharing is caring!
Steph
I, too, have tingling/numbness in both feet. I am half-way through a Carbo/Gemzar regimen. It just about drives me crazy at night in bed! My onc started me on Vitamin B6 and it does seem to help a bit. Ask about it. God Bless.
Mike
my onc told me to take vitamin C1 and it helped.
try vitamin C1 it helped alot.
I got it after 2 rounds of cisplatin. I've been dealing with it for about 18 months now. My Onc said it might get better/or not as everyone reacts differently. Some days it hurts really bad and some days it isn't much more then just something that I am aware of. I can still walk and do most things, and for 18 months I was cancer free. So that made it all worth it.
good luck
I have numbness still and my last chemo treatment (carbo tarbo, avaiatan) was in jan 6th of this year 09......I hear sometimes it doesn'[t go away..(naurapothy) spelling is very wrong.....I have it in my hands sometimes too......but feet everyday
Hugs Jeannie
Hi CTML!
Yes. I did and still do. My last chemo was in December of 2007. I still have lingering numbness in my feet and toes that comes and goes. It is not as strong as it was during and right after the treatments, but I still have it. My oncologist says it may never go away completely.
emtq
CTML, It is neuropathy and sometimes goes away. Sometimes it does not. I've had it for 3 1/2 yrs. in feet and hands. I take gabapentin everyday for . I personally found that foot cream with peppermint helps me during the day. Everyone has a diff. remedy that helps. To me I accept this part of this lousy disease, due to the fact I was given 6 mo. 4 1/2 yrs. ago. It's always a GOOD day when I'm above ground. Best of health just for today. sincerely, chuck. d
don't want to scare anyone but sis had that and it turned out she had a tumor on her spine causing spinal compression. they are now giving her radiation treatments to attempt to shrink the tumor. so be sure and discuss this symptom with your doctor. her doctor knew right away from a physical exam that it wasnt the chemo causing it. good thoughts and prayers for everyone.
Mike/Pennysdad: I had Gemzar/Carboplatin also. How much B6 did your doctor advise you take? Thanks! Blessings! Brooklynda
We are told this is quite common. My husband takes Gabopenton (sp?) three times per day for neuropathy. He expresses tingling, numbness, and tender feet--sometimes worse than others. He finished six treatments with carbo/taxel/avastin in November and has been on avastin/alimta since. We are told the nerves will eventually "fix" and this will decrease--but it could take a year or more.
Yes, I still have numb feet. I have been in remission for 63 months. I count every day as a bonus. I still have a bone narrow biopsy every six months, sometimes a spinal biopsy (lumbar puncture) to check me over. I am doing well. I am on no medication but I do take 200 ml of Mangosteen juice every day, in four serves of 50 ml every six hours. Amazing stuff. My ONcologist say's "Whatever you are doing, keep doing it !".
I am now 67 and I feel younger and fitter than I was six years ago when I was diagnosed with cancer. I can send you my full cancer story if you want. iona4life@hotmail.com
I still have the numb feet, but it is a small price to pay for a new life.
Walter
Yup. And it darn well can be a delayed side effect. Numb toes. Fun. Six months post-treatment and if anything they are worse now -- they didn't start getting numb until just before my chemo stopped.
I was told early on in my chemo treatments (carbo/taxol for stage 3b nsclc non-smoker) that b-complex can help with neuropathy. I asked my onc and he said it wouldnt hurt to try. I have been taking one a day for the past 6mths. I am in remission now for 3months, and my neuropathy is almost gone in my feet, though it never got that bad. Just thought I'd share.
I will try the vitamin C1 too, see if it helps with re-building the nerve damage.
I think I still have some chemo brain effects. I transpose letters when typing and have times when I cant track words when reading. Anyone else? Did you do/take anything for that?
oh yeah - I was also introduced to Provigil for tiredness (primarily in the mornings, though its better now. I drink teas w the anitoxidants to get a lil caffeine kick in the morn). I only took 1/8 a pill as it wired me up so much. My insurance wouldnt cover it for cancer :( but thought I'd pass on the name of the drug for others to ask their dr about.
This discussion is closed to replies. We close all discussions after 90 days.
If there's something you'd like to discuss, click below to start a new discussion.
About · Explore groups · Community guidelines · Our principles · Privacy · Terms of use · Start a group · Help · Feedback · Follow us on: 
Copyright © 2005-2010 Inspire · All rights reserved
Yes, I do. I finished my 5 rounds of chemo (also cisplatin) officially on 7/23/2007. Now I still have numbness in my feet, also left > right.
Jing