Inspire connects patients, families, friends and caregivers for support and inspiration... More about this group

Metastatic Adenocarcinoma - Please Help Us!

OutdoorAnnie
  • By OutdoorAnnie · New reply 1:39 am
  • Discussion in Non-small cell lung cancer - Adenocarcinoma · 3 replies
  • I have been pouring over the incredible information on Inspire for about a month and learning more every day. You people are incredibly intelligent, far more than my husband Duane's oncologists! Sooooo ...

Can Xalkori be given without testing for ALK or ROS1??

raghav93
  • By raghav93 · New reply 1:18 am
  • Discussion in Non-small cell lung cancer - Stage IV · 2 replies
  • Hi Guys, My mother was given IRESSA 250mg without been tested for EGFR mutation. Her malignant cells were poorly differentiated. So her onc suggested not to go for Mutation test.. So, she has been taking ...

Completion Pneumonectomy soon

underdog
  • By underdog · New reply 1:13 am
  • Journal · 5 replies
  • I recently had a localized recurrence in what remains of my left lung. I had a left upper lobectomy and a lower left wedge resection in April 2012. The following March and again that November I had a ...

Entering into hospice care

roosty
  • By roosty · New reply 1:00 am
  • Discussion in Non-small cell lung cancer - Stage IV · 85 replies · Photos
  • Inspire friends, I am making a post I never thought I would make. As many of you know my dad was in the nivolumab/lirilumab trial. He had to stop the trial to have WBR administered in August. He got through ...

Wow...this has been a journey !!

Trishyff
  • By Trishyff · New reply 1:00 am
  • Journal · 13 replies
  • So 2 weeks ago I got my 1 year NED scan....WooHoo!!! Now tomorrow out comes the port, its kinda like a milestone for me. Bittersweet....I am happy to the point I am sad. Been kinda an emotional day for ...

Extensive Small Cell Lung Cancer Survivors

Lesley1g
  • By Lesley1g · New reply 12:44 am
  • Discussion in Small cell lung cancer - Extensive · 1 reply
  • My mother was dx with extensive small cell lung cancer on 10/28/14 and it has rocked our universe. I have to find hope were as the prognosis looks so bleak. We found out that along with the cancer being ...

An open letter to my wife....

serfee
  • By serfee · New reply 12:39 am
  • Discussion in Non-small cell lung cancer - General · 13 replies
  • An open letter to my wife. Life is full of magical moments. Starting from when we first saw the world through newborn eyes, through to when we take our last breath, we are blessed with events and memories ...

Just checking our Karen's toes

Yure
  • By Yure · New reply 12:32 am
  • Discussion in Non-small cell lung cancer - Stage IV · 14 replies
  • Just missing our girl Karen (lovelife8) in the forest , hope you are feeling a little better and you will be back with your humour and positivity very soon , thinking about you everyday, learning to walk ...

84 & Still Kicking Thanks to Support

MAXINEZ
  • By MAXINEZ · New reply 12:19 am
  • Journal · 13 replies
  • Wow, 84 years young Difficult to believe after being told by several doctors with a God complex over the past several years that I should just give up, enjoy each day and not go through any further treatment ...

Introducing Karen's New Boyfriend!

Lovelife8
  • By Lovelife8 · New reply 12:13 am
  • Journal · 14 replies · Photos
  • I wanted you to know I can only choose boyfriends with toes pointing outward toward life and with a jolly demeanor...and here he is...SVEN, My Beau ...

Rick Simpsons cannabis oil

Kam05m
  • By Kam05m · New reply yesterday at 11:42 pm
  • Discussion in Treatment options · 8 replies
  • Hello! I am relatively new to the site as I have recently had both of my parents diagnosed with lung cancer. My father was diagnosed in April of last year and passed shortly thereafter and my mom was ...

Progression?

ReneK1957
  • By ReneK1957 · New reply yesterday at 10:52 pm
  • Discussion in Non-small cell lung cancer - Stage IV · 1 reply
  • Dx'd with BAC in Sept 2010. Starting taking 150mg Tarceva with great results. I still visit oncologist every 3 months and alternate ct scan and chest X-ray. Had ct scan a couple of days ago and they found ...

Lidocaine patch pimples or shingles?.

Linda34119
  • By Linda34119 · New reply yesterday at 10:41 pm
  • Discussion in Non-small cell lung cancer - General · 2 replies
  • I had very bad nerve pain burning. My skin was so sensitive I could not touch it. I read some post here & got the lidocaine patches . They have helped to calm thong down. Now all of a sudden I have pain ...

My Open Letter to Lung Cancer-Starting Lung Cancer Awareness Month

ASG71
  • By ASG71 · New reply yesterday at 10:38 pm
  • Journal · 5 replies
  • http://wp.me/p4ZrDL-b4 ...

RAW APRICOT SEEDS

KATEXON21
  • By KATEXON21 · New reply yesterday at 10:36 pm
  • Discussion in Complementary and alternative medicine · 24 replies
  • My husband was out with his friends at a diner and his one buddy gave him a bag of raw apricot seeds and said that his friend took them and they reduced his tumor to the point that the doctors could do ...

TARCEVA DIVAS & DUDES 10/24/2014

Branastasia
  • By Branastasia · New reply yesterday at 10:27 pm
  • Discussion in Non-small cell lung cancer - General · 62 replies · Photos
  • Welcome Divas and Dudes, Newbies, Caregivers, Loved Ones, Friends and Lurkers. This is a post for all things Tarceva. Baby it's cold INSIDE! It’s “shoulder season” in the building maintenance world. That ...

Why targeted drug doesn't benefit patients with early-stage lung cancer

bandan
  • By bandan · New reply yesterday at 10:09 pm
  • Journal · 7 replies
  • http://www.sciencedaily.com/releases/201 4/10/141027144854.htm?utm_source=feedbur ner&utm_medium=email&utm_campaign=Feed%3 A+sciencedaily%2Fhealth_medicine%2Flung_ cancer+%28Lung+Cancer+News+--+ScienceDai ...

G-tube & esoph rad burn

susanne62
  • By susanne62 · New reply yesterday at 10:05 pm
  • Discussion in Non-small cell lung cancer - Stage IV · 2 replies
  • My hubby was 1st dx in March. 3b adeno with mass of 9 cm/2 nods only on rt lung. Then 30 rad tx, 3tx carbo/alimta, then rad pneu., then mets to brain, then 10 tx wbrt, 1 tx alimta/avastin, now hospital ...

RESULTS OF SCANS (ON TARCEVA ALMOST 11 MONTHS)

KATEXON21
  • By KATEXON21 · New reply yesterday at 10:05 pm
  • Journal · 5 replies
  • Hi Everyone: Husband is Stage IV LC w/mets to spine and has been on Tarceva for almost 11 months. He had his CT scans and met with the oncologist (not his regular oncologist as she's been on maternity ...

Blog: "My CO-1686: 7th Month, First 9-Week Scans"

poksa
  • By poksa · New reply yesterday at 9:49 pm
  • Discussion in Non-small cell lung cancer - Adenocarcinoma · 8 replies
  • The latest entry in the Data Dame's Diary...here's the link: http://celpeggy.wordpress.com/2014/10/31 /my-co-1686-7th-month-first-9-week-scans / Celia ...
Photo of Dave Grant

The Lung Cancer Survivors Support Community has provided support for patients, caregivers, families and friends since 2006. We welcome over 600 new members every month in the fight against lung cancer.

Log in to see more

Don't have an Inspire account? Sign up now!

Forgot password?

Things you can do

Discussion topics

Community leaders

Inspire others

About this community

Inspire connects patients, families, friends and caregivers for support and inspiration.

Read more about our work