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Zykadia and vomiting and night sweats

  • By swooz · New reply 11:04 am
  • Discussion in ALK mutations and lung cancer · 9 replies
  • Hello, My mother is ALK+ and managed a good year on Xalkori. She had to switch to Zykadia due to return of spots and has been on it for about a month. She has some fatigue and frequent nausea, especially ...

CT scan contrast dye allergies

  • By JulieanneG · New reply 10:55 am
  • Discussion in Non-small cell lung cancer - General · 24 replies
  • Is anyone else out there allergic to contrast dye, and if so, how do you deal with your pending scans? I realize that dyes and contrast fluids have changed in the past decade, but I'd had such a severe ...

Tumor response and clinical toxicity associated with second-line chemothera

  • By bandan · Posted 10:52 am
  • Journal · 0 replies
  • 11/1759-7714.12102/abstract?campaign=wol etoc Abstract Background Previously reported superior tumor response of pemetrexed in the second-line setting for advanced ...


  • By Branastasia · New reply 10:49 am
  • Discussion in Non-small cell lung cancer - General · 68 replies
  • Welcome Divas and Dudes, Newbies, Caregivers, Loved Ones, Friends and Lurkers. This is a post for all things Tarceva. Summer weather has been delightful. We’ve had the windows opened except for a handful ...

Radiation pneumonitis (inflammation)

  • By agpv · New reply 10:47 am
  • Journal · 6 replies
  • Has anyone had inflammatory in their lung after having radiation treatments? My oxygen stays about 95-97 as long as I'm still but to get up and walk or any exertion it goes down to 91 or so. I'm on prednisone ...

Stopped chemotherapy

  • By rzdndr · Posted 10:45 am
  • Discussion in Non-small cell lung cancer - Stage III · 0 replies
  • Hi All, My mom has been given 2 rounds of chemotherapy (and the plan was 2 rounds for some reason). The drugs used were cisplatin/vinorelbine. The regimen was that they would give cisplatin/vinorelbine ...

LC needs something like the ALS ice bucket challenge

  • By dawnt13 · New reply 10:44 am
  • Discussion in Lung cancer in the news · 4 replies
  • I have been so happy for ALS patients and the money they have raised for research with the ice bucket challenge. I would like to come up with something we could do for lung cancer in November that would ...

CUBS VS BREWERS Lung Cancer Alliance event in Chicago

  • By gingers · New reply 10:36 am
  • Discussion in Non-small cell lung cancer - General · 6 replies
  • Next Tuesday Lung Cancer Alliance will be the guest of the Cubs at Wrigley. We need survivors that want to come to the game and stand up with LCA to raise funds and awareness. I have a limited number ...


  • By Seraphina · New reply 10:34 am
  • Discussion in Lung cancer events · 3 replies
  • Hi Brother and Sister Survivors coming to Beantown, I thought we could all get together after the conference and make a STATEMENT at CITY HALL PLAZA. We can all blow bubbles and I will make a banner for ...

How Long ?

  • By didgens · New reply 10:31 am
  • Discussion in Non-small cell lung cancer - Stage IV · 20 replies
  • I would like 2 questions answered 1. How long has it been since your diagnosis of Stage IV NSCLC ? 2. How long have you been receiving Chemo ? 3. How long did it take you to get a proper diagnosis ...

Sever sweating for lawswt months

  • By bsdscsts12 · New reply 10:28 am
  • Discussion in Non-small cell lung cancer - Stage IV · 9 replies
  • Does anyone just break out in severe sweating out of no where. It has been since 7/30/14 that I last had alimta w/steroid IV. I have asked many times onc and PA...they call it hot flashes. In the 29 months ...

Carcinoid Tumor

  • By passion4design · New reply 10:14 am
  • Discussion in Neuroendocrine (NETS) / Carcinoid tumors · 12 replies
  • Hi! I'm new to this site and I'm glad I found it. I'm a 65 year old woman who is retired. I just had a "benign" carcinoid tumor removed from my right upper lobe on July 1st. The surgeon removed my top ...

Lung Carcinoid

  • By Laverne81 · New reply 10:09 am
  • Discussion in Neuroendocrine (NETS) / Carcinoid tumors · 7 replies
  • Hi All, I've been circling this site for about 2 months now. i've now decided to take the plunge and ask for some advice as i'm becoming fairly desperate. i've just turned 33 less than a week ago and ...

Lung ca and removal

  • By martha65 · New reply 9:57 am
  • Discussion in Survivor stories · 6 replies
  • I have rt. lung removed in 2012. It was ca they say I am ca free now. I lost weight and my breasts have dropped. I have so much pain in my chest and back. I feel like I have weights pulling on my chest ...

EVERYONE should sign this petition

  • By veevee14 · New reply 9:47 am
  • Discussion in Lung cancer events · 9 replies
  • EVERYONE and their DOG should sign this petition: society-change-the-great-american-smoke- out-from-november It is a petition asking the American Cancer Society ...

AZD9291 - DAY 1 of CYCLE 1 & Beyond

  • By Donna-W · New reply 9:28 am
  • Discussion in Non-small cell lung cancer - Stage IV · 646 replies
  • On 12/13/10 I was diagnosed with Stage 4 BAC with EGFR 19 POSITIVE mutation and told I had six months to live by my original oncologist which, was a diagnosis I would not accept. I sought a new oncologist ...

Happy Birthday Dolcinia!!

  • By AnnikaH · New reply 9:01 am
  • Discussion in Hope, friends and humor · 10 replies · Photos
  • photo graphic1_zps67f2df78.jpg I hope you have a wonderful day with Family. friends, humor and - Cake!! photo cakef2-1_zps930d5a06.png Hugs Annika ...

natural health herbs


Stage I'VE and on Tarceva

  • By dawn067 · New reply 8:38 am
  • Discussion in Non-small cell lung cancer - Adenocarcinoma · 32 replies · Photos
  • I'd like to discuss anything and everything about NSCLC adenocarcinoma stage IV being treated with Tarceva. As you can see by the rash its horrendous. It burns, itches, and is just nasty. I use hydrocortisone ...

Vocal chord paralysis and lc

  • By SlcSue · New reply 8:08 am
  • Discussion in Non-small cell lung cancer - Stage IV · 11 replies
  • Any advice for vocal chord paralysis from lc for non smokers? I became hoarse and have patiently waited as the tumor shrinks for a stronger voice. It has been almost 3 months and improvement is slow ...
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