Lung Cancer Survivors Support Community

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I keep coming back, I can't let go

By cj09 · New reply 11:08 am
Journal · 5 replies
My father passed away last month on Aug 6th. I used to come to inspire for questions and support. Now that he's gone, I con't to check in almost as if I think I'm going to find my dad here. I have a sincere ...

Gemzar isn't working...

By suziegirl · New reply 10:57 am
Discussion in Non-small cell lung cancer - Stage IV · 2 replies
I got the results of my scans yesterday after 2 cycles of Gemzar / Carbo and it is not working at all...my previous nodules and tumors grew and I have a few new ones. I am starting Tarceva in a day or ...

This is how I send and receive healing, loving energy

By AnnikaH · New reply 10:56 am
Discussion in Treatment options · 33 replies
Today is the first of September and this is how I send and receive healing, loving energy and prayers. I have lit a candle by my amethyst, next to it I keep some fragrant lavender from my garden, it soothes ...

Budwig formula?

By salmon · New reply 10:50 am
Discussion in Non-small cell lung cancer - Stage III · 12 replies
Hi! Has anyone given the Budwig formula a shot? It's a combination of Flaxseed oil and low fat cottage cheese ...

Latest update on Chelsea

By Christine_D · New reply 10:49 am
Discussion in Family members and caregivers · 39 replies
This is the latest update. I got this message about a half hour ago... ""We are bringing our baby home tonight. She will be receiving home hospice. There is nothing left to offer. Her liver has multiple ...

Stopping Tarceva

By Eddietal · New reply 10:49 am
Discussion in Non-small cell lung cancer - Stage IV · 13 replies
After 2 months of Tarceva and extreme side effects I, after discussion with my PHP have decided to stop taking the pills. I have suffered through the following side effects. Heavy fatigue. Weight loss ...

my mom passed 2 years ago lung cancer

By Monica65 · New reply 10:32 am
Discussion in Family members and caregivers · 1 reply
I was on this board 2 years when my mom passed at age 61 from lung cancer. It's still painful and shocking even after 2 years. My mother Judi was my rock my other half. Half of me passed when she did ...

Lost words found again

By betsbird · New reply 10:14 am
Journal · 5 replies
For some reason I looked for my old journal from way back when. When I was young and starting my own spiritual journey into my religion. What I was looking for was some poetry I had written when it was ...

medicare guaranteed issue rights

By shamokin · Posted 10:10 am
Discussion in Help desk · 0 replies
familiar with this???? I made a permanent move to AZ from FL to be near family Aug 1. I was in a medicare advantage plan in Fl since I retired 4 yrs ago. Since advantage plans do not follow you, I fell ...

Anger and healing?

By salmon · New reply 9:44 am
Journal · 3 replies
Last night my sister asked me to write out a note on how the hospital messed up her PET CT scan. The contrast was injected too fast. Possibly because of my sisters' sister's scelroderma, the vein burst ...

Mets to Brain SCLC

By LIONHEARTEDSwife · Posted 9:27 am
Discussion in Small cell lung cancer - Extensive · 0 replies
My husband has SCLC which has moved from his upper thoracic region into his brain. He has four or five lesions. They have recommended total cranial radiation, similar to the PCI he already underwent for ...

My mom lost her battle

By littlemiss06 · New reply 9:03 am
Discussion in Non-small cell lung cancer - Stage IV · 20 replies
Mom lost her battle after being diagnosed with lung CA with pleural effusion last Feb 26. She passed away Aug 26. She spent her last 6 months fighting through chemo and radiation as there were bone mets ...

Anyone on PF-02341066 (Crizotinib) ? (ALK gene)

By matson001 · New reply 8:59 am
Discussion in Non-small cell lung cancer - General · 57 replies
Discussion thread for those on the trial: I am looking to make contact with people who have the ALK gene and/or are taking Crizotinib (PF-1006). I am fairly new to the trial. I think this would be a great ...

Life after death communications-

By Monica65 · New reply 8:54 am
Discussion in Non-small cell lung cancer - General · 7 replies
I was on this board 2 years when my mom passed at age 61 from lung cancer. It's still painful and shocking even after 2 years. My mother Judi was my rock my other half. Half of me passed when she did ...

LOVE LIFE AS GOD LOVES US !!!!!!!!!!!!!

By michael54 · New reply 8:53 am
Discussion in Good news · 3 replies
Good news. As I slip closer to my LORD. I start thinking of how much love you all have showen me. Truely I fell heart ache for those who have not loved. I fell Blessed to have been loved by all my brothers ...

Mesothelioma Spread

By RiaShanti · Posted 8:23 am
Journal · 0 replies
I am shattered to say that my daddy's pleural meso has spread to his abdomen. I am at a loss. I'm scared, anxious and so very sad. My poor darling dad, This is the cruellest disease! So very unnecessary ...

Pneumonectomy Pain

By Mik · Posted 8:09 am
Discussion in Treatment options · 0 replies
I had my right lung remover two years ago this September. I received 12 weeks of chemo plus a year of a trial drug, Avastian. I was doing very well until about two months ago when I began to develop a ...

Man, My House is Filthy

By BetsyT · New reply 7:56 am
Journal · 43 replies
By normal standards most people would argue that this is not so. But this is coming from someone that had a perpetually damp shirt & a cleaning rag affixed to her hand for many years. My humble little ...

MY mom passed 2 years. I was on this board

By Monica65 · New reply 7:52 am
Discussion in Non-small cell lung cancer - Stage IV · 1 reply
I was on this board 2 years when my mom passed at age 61 from lung cancer. It's still painful and shocking even after 2 years. My mother Judi was my rock my other half. Half of me passed when she did ...

Neupogen??

By LuvmyDaddy · New reply 7:44 am
Discussion in Small cell lung cancer - General · 1 reply
Hi, I everyone is well. My fathers WBC Count came in low today so they are giving him a Neupogen shot today and tomorrow... What should we expect?? Side effects?? Thank You Vickie ...

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