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My Mom went to heaven on October 15, 2014

  • By Teneo · New reply 5:29 pm
  • Journal · 15 replies
  • To all on inspire who share their story and their journey along with all they learn along the way I thank you. My mom Marilyn went to be with the Lord on October 15, 2014. She was diagnosed on Aug 28th ...

Rational Therapeutics

  • By Walker12 · New reply 5:28 pm
  • Discussion in Non-small cell lung cancer - Stage IV · 6 replies
  • Is there anyone out there that has gotten a chemosensitivity test from Dr. Nagourney at Rational Therapeutics? Please don't reply unless you or a loved one has actually obtained the services of Dr. Nagourney ...

8 years post rt lung pneumonectomy and 2 small spots on pet ct

  • By staceym · New reply 5:26 pm
  • Discussion in Non-small cell lung cancer - General · 14 replies
  • Wondering if anyone experienced. My husband had recent scan and two small spots showed up in the space around where his right lug was -the SUV is 2.8 and 2.9. We are repeating g the scan in 2 months and ...

Jeannee update

  • By RobertBarrett · New reply 5:22 pm
  • Journal · 23 replies
  • Sad Day...My baby's journey is over. She is with God...Her pain is done. God Bless us All ...

Paraneoplastic syndrome

  • By Terrified1 · Posted 5:10 pm
  • Discussion in Small cell lung cancer - General · 0 replies
  • Is there anyone, ANYONE, who had a paraneplastic neurological disorder from sclc- or who had someone in their family with one , and had no antibodies, who can explain to me how they finally got diagnosed ...

ARDS after Pneumonectomy

  • By cerniglia1 · New reply 5:10 pm
  • Discussion in Non-small cell lung cancer - General · 30 replies
  • Anyone with any success stories?? Please. My husband is now intubated on a ventilator with ARDS following his right pneumonectomy. Any information or survivor stories are appreciated ...

10 Fat Toes.

  • By Stubby55 · Posted 4:58 pm
  • Discussion in ALK mutations and lung cancer · 0 replies
  • What's to be done about edema? I've just started my second cycle of Crizotinib. Over the past couple of days my feet have started to puff up. They're not that bad yet, I'm just wondering if there is anything ...

Glioblastoma IV and Lung Cancer

  • By EmmaG2 · New reply 4:41 pm
  • Journal · 4 replies
  • Dad is currently on 4000 mgs of Keppra daily. The steroids have been reduced to 2mg twice daily.. He's also on the 5 day dosage of Temador which is 300 mgs .. Yesterday he felt very tired and had one ...


  • By Attootsie · New reply 4:32 pm
  • Discussion in Treatment options · 1 reply
  • Well made a trip to see my Pumologist! Still have the wheezing and rattle mostly in the evening and early morning. My Plueral effusion is Loculated and too small to bother tapping. He ran a breathing ...

AZD9291 - DAY 1 of CYCLE 1 & Beyond

  • By Donna-W · New reply 4:32 pm
  • Discussion in Non-small cell lung cancer - Stage IV · 911 replies
  • On 12/13/10 I was diagnosed with Stage 4 BAC with EGFR 19 POSITIVE mutation and told I had six months to live by my original oncologist which, was a diagnosis I would not accept. I sought a new oncologist ...

Anyone on Crizotinib/Xalkori, Ariad's AP261, and LDK/378 (ALK gene) Part 3

  • By matson001 · New reply 4:29 pm
  • Discussion in ALK mutations and lung cancer · 5708 replies · Photos
  • I am looking to make contact with people who have the ALK gene and/or are taking Crizotinib, (Xalkori) (PF-1066). I'm also looking to hear about the Ariad Drug, AP26113 and LDK/378. I think this would ...

Still NED !!!! Almost a year later .......

  • By Yris · New reply 4:22 pm
  • Discussion in Small cell lung cancer - Limited · 27 replies
  • Scans and MRI's results today.... Amazing good!!!... Doctor told us .. do you want to hear the good news? or the great news??..... Good news .... still NED and great news ..... the scar tissue of the ...


  • By Betny · New reply 4:19 pm
  • Discussion in Non-small cell lung cancer - Squamous cell · 3 replies
  • My husband has done all the Platinum Chemo's.... His disease was very aggressive. He then had many rounds of Radiation/chemo.... We tried the Clinical Trial for PDL1, and just recently our oncologist ...

Calling long term users of Tarceva

  • By kimbila · New reply 4:10 pm
  • Discussion in Treatment options · 2 replies
  • Hi All, I am new to this community having been diagnosed with stage IV lung cancer that has also gone to my bones. I have had middle and lower right lobes of my lung removed as part of the process of ...

1B - considering not doing chemo

  • By Emaxcy · New reply 3:58 pm
  • Discussion in Treatment options · 22 replies
  • 59 yrs old., good health. Stage 1B NSCLC 6cm tumor totally resected 3 weeks ago. Looking for input from people who have opted NOT to do adjuvant chemo. Very concerned about the risk vs. benefits data ...

Low WBC skipping chemo this week

  • By ae46 · New reply 3:56 pm
  • Discussion in Non-small cell lung cancer - General · 10 replies
  • Any foods or sups to take for white blood cells? My dad (squamous) has to take a week off from chemo to give WBC a chance to go up. I think they are in the 2.5 range. He's been doing concurrent weekly ...

Life Support

  • By ihavehope11 · New reply 3:51 pm
  • Journal · 9 replies
  • Moms on life support. Yesterday, she had a mini surgery to take her port out of her brain because it was leaking. From that time until yesterday afternoon she was fine. Partially responsive, just tired ...


  • By KEDM · New reply 3:49 pm
  • Discussion in Non-small cell lung cancer - Stage IV · 18 replies
  • I was recently dx with Stage 4 NSCLC - Adeno, with 4 brain mets. Started WBR last week. The rad onc prescribed Dexamethasone 2mg in the am, 2 at dinner to prevent side effects, particularly brain swelling ...

Bloggy blog blog

  • By designeremily · New reply 3:47 pm
  • Journal · 15 replies
  • The blog is down for now. I need a break. I've been getting messages, etc. from everyone and you guys are super sad that you can't access the site. Don't be sad! My explanation: don't be offended if you ...

Messaging Emails Again!

  • By cards7up · New reply 3:30 pm
  • Discussion in What, me worry? · 7 replies
  • I'm not happy that they've changed the messaging notification again on Inspire. I did not like it when it went to emails as it fills up your email. I had 20 just this morning. I have opted out of email ...
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