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Someone Please Help!

  • By ihavehope11 · New reply 10:18 am
  • Discussion in Non-small cell lung cancer - Adenocarcinoma · 10 replies
  • So as some may know my moms cancer spread to the meninges. Last week while in the hospital she had a fever which was a sign to an infection. So they gave her antibiotics. The antibiotics worked and now ...

Our first day at Zen Hospice

  • By designeremily · New reply 10:16 am
  • Journal · 3 replies
  • 0/01/our-first-full-day-at-zen ...

Immunotherapy Patient Forum, Chicago, IL

  • By cards7up · New reply 10:14 am
  • Discussion in Treatment options · 5 replies
  • Many great doctors there including Dr. West from October 26th. Register at GRACE. Take care, Judy 90969 ...

Immunotherapy - anyone having good results?

  • By bchbabe26 · New reply 10:07 am
  • Discussion in Non-small cell lung cancer - Stage IV · 4 replies
  • Visiting the Onc tomorrow, after a CT Scan, which showed small growth of tumors - chemo is not an option for my husband (he's had way too much- last treatment was in May - Taxotere), but I have a feeling ...


  • By Stegre · New reply 10:04 am
  • Discussion in Non-small cell lung cancer - Stage IV · 1 reply
  • Does anyone have experience with the combination of Tarceva and Avastin? Until now, I've been on Tarceva exclusively , along with Cyberknife for brain mets and and SBRT to the lung and hip. Because of ...

Pleurx catheter

  • By UAETerri · New reply 9:58 am
  • Discussion in Non-small cell lung cancer - General · 16 replies
  • My husband has nsclc stage 4. He has had fluid on the lungs for months now. A doctor at the hospital has suggest fitting a Pleurx catheter. Can anyone give their comments on this. The doctor thinks it ...

Week 4, infusion 2, Immunotherapy Roche MPDL3280A anti PD-L1

  • By Mafsto · New reply 9:55 am
  • Journal · 5 replies
  • I wanted to start a journal to chronicle my father's journey into immunotherapy. His situation is not great, but maybe, given more time on Roche's MPDL3280A immunotherapy drug, we'll start seeing positive ...

Question RE Pleural Catheter Experience

  • By SueJG · New reply 9:47 am
  • Discussion in Non-small cell lung cancer - Stage IV · 4 replies
  • Hello friends, My husband, Gary, started using an in-dwelling pleural catheter (PleurX brand) in August for treatment of his malignant pleural effusion. The drainage gradually lessened and then became ...


  • By Lovelife8 · New reply 9:37 am
  • Journal · 9 replies · Photos
  • Over a hundred friends and family gathered to celebrate Susan's 70th birthday: EVERYONE FROM AGE 3 1/2 TO 89 years of age got along just fine' love, hugs. EVERYONE CIRCULATED AROUND THE LEMON, ORANGE ...

Anyone on Crizotinib/Xalkori, Ariad's AP261, and LDK/378 (ALK gene) Part 3

  • By matson001 · New reply 9:37 am
  • Discussion in ALK mutations and lung cancer · 5609 replies · Photos
  • I am looking to make contact with people who have the ALK gene and/or are taking Crizotinib, (Xalkori) (PF-1066). I'm also looking to hear about the Ariad Drug, AP26113 and LDK/378. I think this would ...


  • By Branastasia · New reply 9:29 am
  • Discussion in Non-small cell lung cancer - General · 57 replies · Photos
  • Welcome Divas and Dudes, Newbies, Caregivers, Loved Ones, Friends and Lurkers. This is a post for all things Tarceva. I stopped at the drug store today to pick up a new supply of adhesive bandages for ...

Post thoracotomy syndrome

  • By vlhogg · New reply 9:23 am
  • Discussion in Non-small cell lung cancer - Large cell · 1 reply
  • Hi everyone Just wondering if anyone has hade or does have. My onc thinks I have post thoracotomy syndrome. It has been 8 months since my surgery and I'm still in a lot of pain. I went to the pain management ...

Made my choice.

  • By NeeNeebeans · New reply 9:09 am
  • Journal · 7 replies
  • After searching trials near and far I've finally have made a decision. I'm going for the mpdl-3280a versus docetaxel , NCT02008227. It does not require a pd-l1 pos. expression and it is two hours from ...


  • By Faithandme · New reply 8:59 am
  • Discussion in Non-small cell lung cancer - Stage III · 5 replies
  • I have developed a really weird symptom that I haven't heard of before. On Tarceva for 6 months now - everything good so far except rash and hair loss. Today I was walking and I kept going to the right ...

Making peace with our situation

  • By Cigarman · New reply 8:45 am
  • Journal · 1 reply
  • I have only been diagnosed since March 27th. Obviously I went through a period of disbelief and then a short period of depression. Now, I have had time to come to terms with my destiny and am much happier ...

Shingles and lung cancer

  • By Coquina7 · New reply 8:25 am
  • Discussion in Non-small cell lung cancer - Stage IV · 15 replies
  • Is this common? My mom's had some serve neck, shoulder and chest pain. Her pulmonogist looked her over and said she most Limey has singles. He didn't swab it because by the time the results would come ...

Hanging in There

  • By Varya · New reply 8:08 am
  • Discussion in Non-small cell lung cancer - Stage IV · 11 replies
  • For past several days, I've been hanging in on self-requested home hospice care; no treatment aside from pain meds. A "plateau" my nurse calls it; moderately mobile. Almost 80 yo. A year or so since initial ...

The shadow on the Xray...

  • By MsMoonlight · New reply 8:01 am
  • Journal · 5 replies
  • It all started with me having continious lung infections, coughing a lot, chest pains, the bubbly sound when i took a breath, wheezing sounds.. Got fed up and doctor sent me to have an XRay of the lungs ...

Retreats in Europe

  • By SJCanavan · New reply 7:54 am
  • Discussion in Complementary and alternative medicine · 1 reply
  • Can anyone suggest a good retreat in the UK or Europe? Have ext sclc and feel that after all the chemo and radiotherapy I could do with some immune boosting - food, yoga, relaxation, energy healing, etc ...

Lung cancer the forgotten cancer

  • By Liebling · New reply 3:26 am
  • Journal · 34 replies · Photos
  • I am just watching the Today show and October is breast cancer month. They had a lot of breast cancer survivors including a doctor and Joan Lunden talking about the disease And making sure this is on ...
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