Inspire connects patients, families, friends and caregivers for support and inspiration... More about this group

tarceva and fatigue

  • By Timmi · New reply 8:44 pm
  • Discussion in Non-small cell lung cancer - Stage IV · 8 replies
  • I'm on 150 mg tarceva. I was wondering if others on tarceva are feeling very fatigued. I cant seem to get done what I need to do everyday. I need an afternoon nap and by 8:00pm I cant keep my eyes open ...


  • By betsy0525 · New reply 8:41 pm
  • Discussion in Non-small cell lung cancer - General · 12 replies
  • That's really all I have to say when people ask me how it's going. Well I'm watching my dad die. The 53 year old man who 6 months ago was completely fine working 60 hours a week now can't even sit up ...


  • By MAXINEZ · New reply 8:36 pm
  • Journal · 19 replies
  • Am having difficulty sleeping tonight so here I am on the computer. Maybe it is the chemo I had today. Know many go through this so am not complaining. Found the following on the wall of my Oncologist ...

Happy Easter

  • By Attootsie · New reply 8:34 pm
  • Discussion in Hope, friends and humor · 11 replies
  • May God Shine his Healing Light Down on all our Family and Caregivers! May he heal everyone! blessing on this Day to all of my Inspire Family! Love Lorrie ...

Anyone on Crizotinib/Xalkori, Ariad's AP261, and LDK/378 (ALK gene) Part 3

  • By matson001 · New reply 8:32 pm
  • Discussion in ALK mutations and lung cancer · 4470 replies
  • I am looking to make contact with people who have the ALK gene and/or are taking Crizotinib, (Xalkori) (PF-1066). I'm also looking to hear about the Ariad Drug, AP26113 and LDK/378. I think this would ...

FYI Cannabinoids

  • By cards7up · New reply 8:20 pm
  • Discussion in Treatment options · 2 replies
  • I'm reading a mystery novel, which are my favs. One of the main characters has MS and recently started using a prescription drug to help with neuropathic pain that came from a friend's friend in Canada ...

Why are we not prepared for post-surgical pain?

  • By JulieanneG · New reply 8:13 pm
  • Discussion in Non-small cell lung cancer - General · 52 replies
  • I was responding to yet another question about whether pain from surgery is normal, and I think I blew an inner gasket. Actually, this was the same burning question that first led me to Inspire after ...

test which predicts survival

  • By needinghelp · New reply 8:12 pm
  • Discussion in Lung cancer in the news · 6 replies
  • Life Technologies has a test which accurately predicts survival of early stage lung cancer patients. Does anybody know how to obtain this test ...

Bone Mets to Lumbar Spine - Radiation

  • By bchbabe26 · New reply 8:09 pm
  • Discussion in Non-small cell lung cancer - Stage IV · 1 reply
  • Not ready to wave the white flag yet, but really!!! I'm usually pretty optimistic about things, but the news today really sucks. Barry had an MRI last night - Thoracic (he has 2 tumors already), and Lumbar ...

Third Line Treatment

  • By wallzworld · New reply 7:57 pm
  • Discussion in Small cell lung cancer - Limited · 1 reply
  • Husband Rick was diagnosed with limited SCLC in July 2011. Since then he's been in remission twice but docs think one of the tumors (there were three) is growing again. Pet scans are Friday, April 25 ...

Don's Report..some good..some not so good~~

  • By texdjh · New reply 7:52 pm
  • Discussion in Small cell lung cancer - Extensive · 25 replies
  • Greetings everyone and Thank you all for your thoughts and prayers for scan/MRI....... Don ran up today to get CD and's pretty easy reading and easy to understand...... He asked me to ...

CT Results today.. not great.. New Chemo

  • By HeliEye · New reply 7:46 pm
  • Discussion in Non-small cell lung cancer - Stage III · 97 replies
  • Just back from my hospital appointment.. The Oncologist said the tumour had started to grow again, plus the CT showed 2 small 'new' tumours. I was given the option to wait for a couple of months to see ...

Need a recommendation of lung cancer onc at Mayo clinic

  • By jmg213 · New reply 7:37 pm
  • Discussion in Non-small cell lung cancer - Stage IV · 2 replies
  • Does anyone know a good ONC for lung cancer treatment at Mayo Clinic, I'll be around Chicago area next month, and plan to visit Mayo Clinic for a second opinion of my lung cancer treatment, if you know ...

Fentanyl patch

  • By vlhogg · New reply 7:21 pm
  • Discussion in Non-small cell lung cancer - Stage I · 11 replies
  • Hi Looking for some help as far as pain meds go. I am new to the pain med world. I am 11 weeks post op from a wedge resection by vats and 9 weeks post op from a open lobectomy. I am in a lot of pain I ...

Cannabis oil


CT Scan Results

  • By trukdriver1997 · New reply 7:02 pm
  • Discussion in Small cell lung cancer - Limited · 26 replies
  • Got my results of my CT Scan today everything is still clean and doctor said 1 more year with clean scans he would consider me cured from this awful disease. I am so thankful for this news as to what ...


  • By patn936 · New reply 6:02 pm
  • Journal · 12 replies
  • Hi All, Yesterday I went to see my Radiologist. Great news, I have been released from his care as I am very close to my 5 year NED date. I will not need to see him unless there is a new situation in my ...

Up close and personal

  • By Lovelife8 · New reply 5:55 pm
  • Journal · 15 replies
  • See me as I look right this minute. Never could afford make-up. What you see is what you get - Karen -100% here for you all!. Love to you now and beyond. Karen ...


  • By Branastasia · New reply 5:09 pm
  • Discussion in Non-small cell lung cancer - General · 49 replies
  • Welcome Divas, Dudes, Caretakers, Newbies and Lurkers! One thing cancer has done for me (other than the eyelashes) is a readjustment of things that make me crazy. Before I was married I filed my taxes ...

Eli Lilly trial with LY2835219

  • By Tina52 · New reply 5:07 pm
  • Discussion in Non-small cell lung cancer - Stage IV · 5 replies
  • Has anyone out there been on this type of trial? Was told it has been used in breast cancer patients. I am thinking of starting this trial for NSCL lung cancer with also Altima, This would be the only ...
Photo of Dave Grant

The Lung Cancer Survivors Support Community has provided support for patients, caregivers, families and friends since 2006. We welcome over 600 new members every month in the fight against lung cancer.

Log in to see more

Don't have an Inspire account? Sign up now!

Forgot password?

ALK mutations and lung cancer

Join the discussion about ALK mutations and lung cancer

Things you can do

Discussion topics

Community leaders

Inspire others

About this community

Inspire connects patients, families, friends and caregivers for support and inspiration.

Read more about our work