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Small cell lung cancer

Support for those diagnosed with small cell lung cancer.

Discussion leaders: Ann

Fear

llacy
  • By llacy · New reply 9:21 pm
  • 2 replies
  • My whole life has been driven by fear. I grew up with physical, emotional, and sexual abuse. From the time I was a little girl, that has been my driving force. I have OCD as a "result" or one of the results ...

Waiting to exhale

kitkat4me
  • By kitkat4me · New reply 8:53 pm
  • 10 replies
  • This has been the hardest month of my life. I wish that my mind would find peace and stop running the movies all the time. But, then again I don't want to forget a single moment. It all started last night ...

Folic Acid and B12 & other info

llacy
  • By llacy · New reply 8:22 pm
  • 3 replies
  • There is a post in the Non small cell group re: an article that states folic acid and b12 are not good supplements for cancer patients. etc. Thought I should mention this. I just told my mom to make sure ...

How about a group of people battling small cell lung cancer?

Waterspirit
  • By Waterspirit · New reply 8:07 pm
  • 34 replies
  • "Small Cell Lung Cancer R Us," or something? I found one group which touted that it was a "Small Cell Lung Cancer Group" however, the lead person had some other lung cancer. I for one, would like to find ...

Advice on 2nd Line treatment for SCLC

Willsmarie
  • By Willsmarie · New reply 6:16 pm
  • 7 replies
  • I just got off the phone with Dana Farber and I'm not happy with them at all. Sam diag. 4/09 sclc with mets to pelvis, Cist-VP-16 6 rounds - break for 6 weeks - Ct scan revealed 2 small spots on his spine ...

Loss of use of legs

ssgirl
  • By ssgirl · New reply 2:09 pm
  • 7 replies
  • Hi, I haven't written in awhile. Last time may have been August when my dad was in the hospital for a low sodium (115). Had been limited stage but is now extensive stage. I knew with the low sodium the ...

Update after our 2nd Opinion at OSU The James Cancer Center

CliffsDaughters
  • By CliffsDaughters · New reply 1:54 pm
  • 6 replies
  • My sister has a Caring Bridge Website so I just decided to copy what she wrote. She is NORTHPOWER on this sight. What an amazing place the Ohio State James Cancer Center was today. From the minute you ...

SCLC - other treatments if resiliant to chemo

tomo
  • By tomo · New reply 11:02 am
  • 2 replies
  • Hi, my dad has had is second round of chemotherepy and we go see his oncologist next week to see if it is reducing his cancer like it did last year. I wanted to know what other treatments would be available ...

Low White/Red Blood Cell Count & Low Platlets

moonshine18
  • By moonshine18 · New reply 10:45 am
  • 3 replies
  • My father has ext. SCLC...He is going into his 2nd round of chemo treatment this week (Cisplatin/Etoposide). For the 1st round of chemo, he did extremely well. He didn't have any side effects except hair ...

The pre-scan nerves syndrome

Curmudgeon
  • By Curmudgeon · New reply 4:46 am
  • 12 replies
  • Had scans (Bone and CT) last week, start third round of chemo tomorrow after consult with Onc. Wish me luck. I feel like I can feel the liver tumor getting larger but maybe it's just fear growing ...

Extensive SCLC...does the cancer ever go away?

moonshine18
  • By moonshine18 · New reply yesterday at 5:03 pm
  • 5 replies
  • My father was diagnosed with extensive SCLC. We did a CT scan 3 weeks after his 1st round of chemo treatment. The doctor and medical staff did not anticipate there to be any changes with his cancer cells ...

Praying for our Miracle!

CliffsDaughters
  • By CliffsDaughters · New reply yesterday at 11:52 am
  • 17 replies
  • After finishing 1st line chemo (carboplatin/VP-16) and 2nd line (clinical trial of topetecan and ???) my father's cancer continues to spread. In fact it doubled ...we were all prepared to have fluid pulled ...

TH-302 Info?

warren_b
  • By warren_b · New reply November 18, 2009
  • 1 reply
  • Has anyone been following the new drug TH-302. I know it is currently in phase 2 trials. Looks promising, but the focus seems to be on NSCLC, though the initial results also looked favorable for SCLC ...

CHEMO EXHAUSTION

fulham
  • By fulham · New reply November 18, 2009
  • 5 replies
  • Hi, mum had her 2nd chemo carbo/etop last weds and is absolutely floored this week. She took the 1st dose quite well and I'm just wondering if this is normal. I have never seen mum so tired that she is ...

exercise

betsie1111
  • By betsie1111 · New reply November 17, 2009
  • 18 replies
  • I have such a problem breathing that I do nothing but sit - all day long. I'm concerned about my total lack of exercise. What does everyone else do who can't breath ...

extensive sclc..any survivors past 2 years?3yrs?4yrs??

Daughter816
  • By Daughter816 · New reply November 17, 2009
  • 74 replies
  • Please tell me there are you miracles out there that are still going strong with extensive sclc???? Anyone in remission??? I need my Dad and he just began the battle,he's doing ok,feels good and no reaction ...

Help!! My sister has a few weeks to live!!

Jesuslovesher
  • By Jesuslovesher · New reply November 16, 2009
  • 19 replies
  • Hello, I am on this site for my 49-year old sister who was just admitted to the hospital. She was diagnosed with Stage IV small cell cancer back in April of 2009. She went through several rounds of chemo ...

TRUE HONESTY AND FEELINGS ABOUT SMOKING

8wall
  • By 8wall · New reply November 16, 2009
  • 52 replies
  • Hi Friends. This is really such difficult thing to bring up now or at any time really..The topic is smoking..I Beleive that at on point the majority of us smoked.I know I am one of them... I have not ...

Brain mets- advice

Jessica815
  • By Jessica815 · New reply November 15, 2009
  • 7 replies
  • Hi all. My mom, 66, was diagnosed with limited SCLC in March '09, she had a 10x10cm mass in center of chest and some lymph node involvement. She did 4 rounds of etopocide/cisplatin. 30+ chest radiations ...

PCI

Mom-1heart
  • By Mom-1heart · New reply November 15, 2009
  • 4 replies
  • One of the posts I read here recently raised a question in my mind. What long term effects has PCI had on those of you who have undergone that form of treatment? My husband finished this treatment in ...

Help from Lung Cancer Alliance

Fundraising and awareness

Upcoming events
Visit Lung Cancer Alliance to learn about upcoming fundraising and awareness events.

Need financial help?

Cancer Care Co-Pay Assist Program
Medication co-pay assistance for non-small cell lung cancer.

Patient Access Network Foundation
Medication co-pay assistance for non-small cell lung cancer.

Partnership for Prescription Assistance
Prescription drug assistance programs for uninsured/underinsured.

The Cancer Financial Assistance Coalition
Searchable database of both medical and non-medical financial assistance (both national and regional) all over the US.

Patient Advocate Foundation
State-by-state information on various assistance, including transportation, utilities, and other products and services.

Need legal / insurance help?

The Cancer Legal Resource Center
Assistance with employment issues, medical leave, insurance, estate planning, advanced directives, patients' rights, and other legal issues.

Patient Advocate Foundation
Assistance with insurance and employment related issues.

Need emotional support?

Lung Cancer Alliance
Find a support group or learn how to get connected with a Phone Buddy here!

Want to find clinical trials?

Lung Cancer Alliance Clinical Trials Matching Service
Search for trials and talk to a specialist who can help you find appropriate trials for you.

You