Three Years and feeling fine

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Three Years ago today, I got the call that a CAT scan, conducted for another purpose, had discovered a 5cm lump in my chest that looked like lung cancer. That ranks as a bad day. Just over two years ago I got the news that cancer had returned and spread to my bones : that was also bad day. There have been a number of days since then in the "not so good category. " But here I am, three years later, stage IV for most of that time, and still feeling quite well, thank you. This is not a boast: it is just my personnel testimony that the bleak "numbers" we all see on survival time, do not apply to you! You can can fight for a better outcome and the longer you win, the more likely it is that science will come through with your cure.

I have been lucky and blessed in some many ways that I lose count. I just started my fourth Chemo regimen and am hoping, as always, that this may the one that works. I have found a brave new community of friends, this community, and my caregivers. And I have found, in Lung Cancer, a cause that warrants my best efforts to win a "fair shake" from our governments and the Public Health community. I may not win fight either, but it is a cause well worth the battle.
Bottom line: No one deserves lung cancer. Lung Cancer deserves funding and Public policy support.
It will only get that support if we all demand it from our elected representatives.
Phil C

24 replies

Salty Dog
So glad to hear you have made 3 years living with stage IV l/c. It is so important for lc patients to hear of others living with this disease for extended periods of time doing well living a somewhat normal lifestyle. My husband was dx with stageIV lc around the same time Peter Jennings & Danna Reeve were dx. I had not heard of any surviers & the day Danna Reeve passed on I cried all day I thought with all she had going for her what hope was there for Just a regular person fiting this disease. But Larry did well with chemo & is still here doing well, he has also had his ups & downs & we know things could change at any moment but it will be 29months April 1 since his formal dx. Nov 1 2005 . We donot know what twist & turns life has in store for us but who does. Anything can happen to anyone at any given time. We found that out. the only realy negetive comment I hard from Lary was News Year Eve 2005 when everyone was wihing each other a happy new Year He muttered under his breath I hope I'm around for the next one. Well since then he has seen 2 new years had 3 birthdays Now 62 & we will celbrate our 40th wedding annv. Sunday. Life is good .
Good luck to all of us fiting this disease. Caregivers struggle as much as the ones afflicted with LC. I wish I had found this site sooner. I have learnet so much from this site. Heres to another 3 years an another & another & other
God Bless us all
Janet H

Thanks Janet ,

And congratulation to Larry and you for your success in this combat.

Phil C

Hi Phil and Larry,

So glad and inspired to read your posts. My guy Hank has recently been diagnosed at Stage 4 with this disease and it's an enormous help and inspiration to know that this is something that can be dealt with. We don't have to throw our hand up and quit. We can put our gloves on and fight, and maybe even win.

Keep up the fight, and stay strong.

Gail

Congrats on a huge anniversary. Here's to many more :) My mom just started on the horrible roller coaster ride in January. Some times I wonder if the emotions are more harsh then the treatments. How the times have changed. It feels like just yesterday i was brushing my moms hair and putting every bow and clip found in the house on her head, now im brushing her hair to relieve the pain from WBR. No one is a statistic and I truely believe the reason many fall into those dreaded percentages is because of horrible doctors with no hope who except defeat. Keep going strong hun, you inspire so many others to prove those statistics wrong

Thanks for letting all of us later stage victims know there is hope. When I reach 5 years I am going to call myself a survivor. Until then I am a VICTIM of a conspiracy among the tobacco companies to make cigarettes as addictive as possible and lack of political will by congress to direct that funding for lung cancer screening and research be a national priority.

We today have the tools -- such as low-dose CT scan -- for making a significant impact on reducing the number of smokers and providing for early screening and early detection of lung cancer. What is needed is the research dollars and funding to improve the tools that we know work and are currently at our disposal. There was a story on this this past week on The Nightly News with Brian Williams.

A prominent researcher, Dr. Claudia Henschke, Division Chief of Chest Imaging at New York's Cornell Medical Center, is optimistic about the benefits of screening using new low dosage spiral CT scans. She and her co-investigators foresee the possibility of lung cancer survival rates skyrocketing from the current 15% to possibly 70% with so many tumors being found at the treatable stage.

Why are we not using these tools right now? Why can't we mandate that insurance for the cost of screening? What if we "find more" cancer -- who is going to have to pay for that? What about "False-negatives" and needless procedures? False arguments (aimed at saving money for insurers) are wining the day. You and I are the loosers in the battle.

We the victims need to get angry. If national screening was in place, I might have found my tumor at a much earlier stage. If we had devoted research dollars to lung cancer, a drug such as Chantix that helped me break the addiction, might have been available much sooner. I don't accept that because I am a former smoker, I deserve to have lung cancer. I tried to quit for more than 30 years.

I agree with you that we need to make our political voice known. I have started a letter-writing campaign and plan to meet with my political representatives in congress and well as my state representatives. I have no agenda to push other than to see that this does not happen to more people. We know who is at risk... We ALL need to act.

Amen Phil!!!! You are an inspiration to us all! Take care and God bless.

Tina

Phil:
Thank you for being such an inspiration. Stories and attitudes like yours makes me realize we can win this fight!
Susan L

Hi Phil:

You are so strong and give others like me a boost to continue to fight. Thank you so much for your post. I am sure many will agree that posts like these are very encouraging especially after reading some of my posts.

You bet I will keep fighting, along with getting a NEW Oncologist. But that's a longggg story! No Oncologist should tell a patient "If I don't give you Chemo, I don't make any money."

Congrats and keep going
Marylou

I applaud you all for fighting this beast and send my prayers out to every one of you. My mother was diagnosed last month with stage III, possibly IV and ever since then, every free moment I have has been spent researching so I can help her fight to win. I will not lose my best friend to this evil without a fight.

The one thing I've found, that aggravates me as much as this cancer, is that the number one killer is receiving the least amount of funding. This infuriates me! I don't have a lot of time on my hands at the moment with working and the daily back and forth trips for treatment but I am committed to doing something about this and making a difference for everyone fighting lung cancer. Even the nurses are signing petitions for early scanning! Since I'm new to this, I will take whatever suggestions anyone can give as far as where I should start with this fight. I need to do more than writing letters to politicians. I need to be heard by politicians.

My prayers to each one of you.

Liz

Screening is clearly the way to head this disease off at the pass. The LCA is the only organization that is advocating for screening (for high risk individuals. ) We find the research conducted by Dr Henschke to be the single most promising development in Lung Cancer in years. Other developments in early detection are important but they are no closer than five years to completion of development, and five more years to complete testing. CAT scans are here now and are improving every year.

to Liz: The numbers are compelling: Lung cancer kills roughly half a million Americans every three years, and gets peanuts from the government for research. There is a petition you can sign on the LCA site to get the ball rolling. Screening is the most important step but It will not cure the disease for someone detected in late stage...We research for CURE as well

Hi Phil-
I am so glad to have happened upon this site and to your post in particular. My husband has just been diagnosed with NCSLC and so our nightmare has just begun. I work in healthcare and know that it isn't the death sentence it used to be but it's reassuring to hear it from somone who has survived. Thank you for sharing your story and giving hope to those of us who are new to the ordeal. Congratulations!

Hi, Phil.

Congratulations on your 3rd anniversary!

Apparently, until 90% of all newly-diagnosed lung cancer patients are never-smokers (the current trend), research will continue to be paltry due to the stigma. :-(

Carole

Just wanted to CONGRATULATE you on being a 3 years LC Survivor. 10 more years you'll catch up to me! (smile) Yes, I am a 13 year stage IIIB lung cancer survivor. I'll keep you in my prayers that you will also be a long term survivor.

I also wish to share that we here in Minnesota have a Dr. Dudek who is dedicated in the Fight against lung cancer and he has a Lab at the U of M that is designed for lung cancer research. CT scans are the best technology we have today in early detection for lung cancer. Lets hope they allow CT scans for early prevention for lung cancer like they do mamograms for early prevention for breast cancer.

HAPPY 3 YEARS!

Phil,

All I can say is bravo and I second every word. Sending prayers and continuing support your way.

Toddy

Dear Labnerd,

Good luck to you and your husband. This site has been a tower of strength for me and for many others.
Nobody wants to be in this club but we can draw strength from one another. Those who succeed have an obligation to fight the battle for those who succumb. I feel like the Ancient Mariner ( for a host of reasons) whose must be the noisy voice for Lung Cancer. Breast cancer survivors are numerous and vocal: they have succeeded in capturing the nations conscience as AIDS did two decades ago. There aren't as many of us so we have to be noisy and united. Carole is right about the stigma. So lets all say this together : No one deserves lung cancer!
NO ONE DESERVES LUNG CANCER!
If we say it often enough, the world will believe us.
Phil C

Hi Phil

WOW, Happy 3rd Anniversary and many more to ya!
When I was dxed they told me nobody can survive lung cancer for months never mind years. Good thing I didn't believe them, I found this site and many people such as yourself to give me hope and inspire me and I believe what comes out of the horses mouth allot more than statistics. I pray you have continued pain free health and many more years of survivorship, you are very blessed...
Jude

It's so good to hear so many people so angry about how LC patients and caregivers are treated. I felt so alone and angry, angry, angry that just because my dx was Lung cancer (my type wasn't even caused by smoking, which I quit 20 years ago, it was caused by a genetic mutation) it would be treated like a lost cause, the step child of research. I'm glad they do so much for breast cancer, my sister died 6 months ago from that, but what about the number 1 cancer killer? We absolutely have to band together and get the word out like the breast cancer groups. HOW?

Hi Phil,
Happy 3! In honor of your anniversary I'm going to have a large slice of an incredible chocolate pound cake with the most awesome chocolate frosting........all homemade and a delight to the tastebuds!

Yes, the natives are getting restless. Contact your local media people! When one door closes another will open, you have to be persistent. Find more people in your area who have a connection to the disease and as a group you have more clout!

Scream and kick and holler!

With hope,
Pat the BWP

Hi Phil,
Thank you so much for your positive story. Just having been diagnosed in Dec 07 (stage 3b) , I have been so discouraged by all the statistics I have read.. so thank you again for reminding me we are not a statistic....

I wish the very best results to you with your fourth chemo regimen.

Mary A

Ya know. I read through this site so many times a day and everyone makes a great point. How can the # 1 killer in the US get the least amount of attention. Cancer in general, I dont get. I had a cousin die from pancratic cancer because his doc looked at him and said, Im sorry theres nothing we can do. How bout try, you never know who might respond. We all have hope. I truely believe everything happens for a reason. Yes my mom is fight Stage 4 NSCLC as we speak, my biggest fear coming to life but I see the light on the other side. My plans in 10 yrs have changed because of this. I'm getting my mom through this battle and I'll be off to college to get my degree so I can make a difference. I hate the turn incurable. If the government can come up with chemo to treat cancer why not take it further and find the cure. Its there but curing someone doesnt keep money flowing for them. its sad really

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