pet-scan results,I am scared...

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Well I had hoped I would never have to have that feeling of dread again. Been cancer free since 2-07,had upper right" barbaric"lobe lobectomy.I had been doing alright until a few months ago when I started having severe painnext to where my lung used to be and under my arm to my breast. I saw a pain management doc who did several blocks using phenol to burn the nerves. That helped to a degree,but I still had that pain close to the chest wall and around to my upper back-shoulder.Now,I recieved a call,personally from my onocologist,this got me because he has never called before.My pet scan showed some"irregularities" in the area by the chest wall and at the lowest part of my neck,I also had pain that radiated to that area of my spine.He wants me to have a ct done now and then see him next week to talk,he said with the lung cancer history I have he wanted to look and make sure these areas were not just some sort of inflammation and he did not want me to get stressed,(I have a panic disorder)but there were these abnormalities.I was so shocked I did not ask him anything.I had a repair person here so I was trying to act normal.I am really scared,I know this can come back,any feedback? I really need some advice on how to take this news.Thanks,janet

5 replies

Hi Janet, I am so sorry to hear your latest news. To tell you not to panic is like trying to tell you not to breath. I am praying for you that everything comes out just to be a small issue and not a big deal. Luckily you are under good care and have lots of friends here rooting for you...You gotta try to keep yourself busy doing whatever till time for the appointment....Just keep posting or whatever you can find to do until then. Your friend, Birdy

hey, Janet,
In the morning, call the doctor's office and ask for a few minutes to ask him questions about your phone call. I'm sure he'll help you.
love and hugs
Pat

Thanks,I went yesterday (fri.)and had the catscan and bloodwork done. I see the doc. on 11-7,next fri. I do call but they never give you the dr.The tech that did my ct said it's not uncommon that a pet scan will pick something up like arthritis,cysts ect. She was probably doing that so I would'nt worry so much.I would like to know the difference between an irregularity vs.imflammation.I will keep trying to call and if that does'nt work I will try to stay busy.Has anyone else ever had a pet-scan that came back abnormal and was it really nothing. Be honest please,I have no one to talk to about this and I thank God I found this site. I also want to know why they did a ct. I know I am sounding stupid but this is the 1st time since the oridgeable tumor was found.I have read alot where they say this will usually rear it's ugly head within the 2 yr.cancer-free period.What scares me is that the one area that showed up,was next to where the 1st.tumor was,that part of lung is gone so I believe that it would be the plueris?I have not told my family yet because I don't want them to maybe worry for nothing.Ok, now I'm rambling so I hope to hear from you. Gonna Smile :) Janet

JAnet,

I absolutely hate waiting for test results and can certainly understand your concern.

Do whatever you can to distract yourself till you see the doc; his call shows that he is a caring person who is out to do what is best for you. Try not to second guess him.

Peggy

Hey Janet,

My husband had a rll removed last February. They told us they got it all and everything should be fine. First Pet scan he had showed a mass that lite up close to the surgery site. Said it was most likely "inflammation" but could be "metabolic activity". They said they couldn't tell and we would need to wait three more months for another pet scan to see if anything changed.

A very long three months later (we were scared to death) the mass didn't lite up any more and was alot smaller. So at the end of the day it was indeed inflammation (healing).

So its not necessarily bad news, but I know the waiting will make you nuts.

Hoping for the best for you--Khari

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