OMG! Does this get any worse?!

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I am so sick of all of this. My poor daddy. I hate that so many people are dealing with cancer. I freaking hate cancer. I decided to do something i should NOT have done. my dad had his what was supposed to be stage 1 tumor removed and kept having pain and so they did another pet only to find out he had NUMEROUS other spots that showed up just TWO months after his lung surgery to remove his lobe with the ONE tumor. So of course he is now a stage 4. (his oncologist does not use stages for recurrence,, just calls them recurrence ) anyway,, today i looked at the two pet scans he had on disk. The first one in the results section says there is a tumor and gives the suv of i think 7. Then the second scan just two months later tells of all the spots and says the largest one has an SUV of 33! WHAT!!! Is that freakin possible?? I have NEVER seen one that high in all the time i have heard anyone talk about SUV. The doctors NEVER tell us the SUV numbers, i just saw it on the scan.. Here is what it says............

Diagnostic Report:

Diagnosis:

POSITRON EMISSION TOMOGRAPHY
IMPRESSION:
There is hypermetabolism in new foci involving the chest wall posteriorly
wall and within the left lower lobe laterally. There is not definite spread
to the mediastinum. There is not evidence for spread below the
hemidiaphragms.
Of incidental note is the presence of sigmoid diverticulosis and aneurysmal
dilatation of the abdominal aorta.
BURCH, Dennis
dob 5.28.44
access 08 226 0484
PET-CT scan examination 13 August 2008.
Indication: Non-small cell cancer of the lung, restaging.
Additional History/Information: There is a comparison study 3 April 2008.
The patient was diagnosed March 2008 and has undergone left upper lobectomy.
FINDINGS:
Patient height 5 foot 9 inches, weight 213 pounds, blood glucose 98 dc/mL.
16 mCi of fluorine 18 labeled deoxyglucose were given intravenously, and
following 1 hour of quiescence, standard transmission/emission imaging was
pursued using CT attenuation correction at 7 overlapping stations using
standard filtering. In addition to archival images, computed
projection/volume images were assessed.
PET Findings
There is normal cardiac, gastrointestinal, genitourinary, and
reticuloendothelial activity. There is, unfortunately, hypermetabolism
believed indicative of recurrent disease the dominant mass involving the
posterior chest wall at the level of the main pulmonary branch, dimensions
estimated 6.8 x 3.5 transaxial x 5.0 craniocaudad centimeter and reaching
33.8 SUV. Satellite nodularity is present most notable in tear laterally.
At the left anterior chest wall at that level there is a 2.2 cm
hypermetabolism reaching 13.4 SUV adjacent to the pericardium. There is
posterior inferior pleural hypermetabolism reaching 17.6 SUV over 2 .8 cm
more inferiorly. Laterally in the left lower lobe peripherally there is a
10.3 SUV 1.8 cm nodule not seen previously.
Bilaterally there is increased activity at the submandibular gland which is
believed on the basis of swallowing/muscular activity or inflammatory
process. This would be an unlikely place for metastatic spread of disease.
CT Findings
Include mild left pleural fluid. There are diverticula within the sigmoid
colon without associated inflammation. There is a 4.5 cm aneurysm of the
infrarenal abdominal aorta.


OMGOSH!!!!!!!!!!!! This means his cancer is even more aggressive then i thought. SUV OF 33!!!! Thats crazy...... has anyone ever seen this??????????????

11 replies

I'm sorry, I don't know a thing about uptake...but I'm thinking of you and hope that things improve...

Big hugs...

Honey, I know it is hard. I just lost my dad on Sunday. It was awful. It was six months of hell for him and our family. He had non-small cell stage three B. It ravished his body down to 115 lbs. He suffered more from the drugs then anything. Sometimes I just wish the doctors would have told him there was nothing they could do instead of giving him options. Because trust me it hurt more to see him in pain and losing his hair thirty pounds and mouth sores, constipation, god the list can go on forever. I was by his side and it was awful but at least he is not suffering anymore. I hate cancer it is an evil plaque. God bless you and your dad. Just try and stay strong for him.

AT the risk of sounding stupid, what are SUV numbers. It would be nice if they could speak English.

I read that anything over 20 carries a poor prognosis but be aware of the fact that you may not be understanding the entire intent of the report. Looking at my husband's PET scan results I can see different suv's on different views of the same tumor so you should ask the doctor what it all means before you get too upset about it. Oh by the way, Jadams, suv has to do with uptake and I didn't know that either until recently.

I am sooo sorry for what is happening. Where is your dad being treated if I may ask? If I were in your shoes I would be having all of his records sent for a 2nd and/or 3rd opinion. Check out or call Cancer Treatment Centers of America and also M.D. Anderson. I don't know how all this could happen and none of it seen on the prior scans!

The SUV value or uptake value means the activity that is going on within the tumor, the higher the number the more cells that are dividing and vice versa. That is a REALLY high number. Again, please get his records to somewhere else for another opinion.

roro

The oncologist told us that for the SUV to indicate metobolic activity (which would be cancer) it has to be double the background SUV #. I'm not seeing that number on your report, but then I'm most definately not a doctor.

I am so sorry about the bad report.

We got a not so good report last time and my husband has a new scan scheduled for tomorrow. Very scared.

Khari

Sorry about the report and I don't have any information just wondering if they or you are concerned at all about this part of the report..

aneurysmal dilatation of the abdominal aorta.

SUV numbers can be affected by infection or inflammation too....and from what I've read, its easy for the uptake to skyrocket when that's the case. We've been told by the surgeon and 3 different oncologists that PET scans within 6 months of surgery will be filled with false positives. If your dad had surgery within 2 months of getting this latest PET, there's still going to be lots of inflammation going on in his chest. I'm shocked that they did another scan so soon. Try not to completely panic just yet. Is your dad being treated at a comprehensive cancer center? If not, I would seriously consider at least getting a second opinion from one. Good luck, and keep us posted. ~Linda

I hope you will also ask about the aortic abdominal aneurysm. I am sorry about the news you have gotten. I do worry about his Doc. maybe not being upfront with him or you. Its very imnportant for drs. to be honest and to make sure you understand exactly what is going on.

I will be thinking of you and your dad.

I also agree with lindafl the suv can be from inflammation and infection. this is a good web site but a question like this could be answered better by Dr. West on the grace web site sorry i don't have the exact web address but if you search grace, Dr West , lung cancer I'm sure you'll find it. he can answer this question a lot better than any of us. good luck. and let us know how it goes. and what you find out i am sure we would all like to know more about suv values and their meaning.

Sorry about all the issues with the latest Pet Scan.
I would encourage you to visit with the doctor to get a first hand explanation for one who knows exactly how to explain it to you. The abdominal aneurysm is of concern as well. Prayers go out to your dad. How is he doing through all of this. I always reflect back to times when we were getting bad news. My heart truly goes out to you. Wish there were a miracle I could pray your way and have things turn around. Take care. Jolene

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