These dr's are confusing me, after my last scans my onc wanted me to go on hospice. Then a week later when I refused that he wanted stereoactic radiosurgery on my brain right away. Went to radiation onc and he agreed but wait 3 weeks, have another brain MRI then consider it. Since MD Anderson has contacted onc for copies of my records he seems to have changed his mind. Last weeks visit he was talking irinotecan for 2nd line when at the 1st of the month he said more chemo would kill me.
Not sure if I posted this or not but I've had some falls in the middle of the night going to the bathroom. The last one I don't remember what happened at all. Well I had another one last night. This is the first time anyone has been with me at the time. He said I had seizure symptons. When he picked me up off the floor I was curled, feet didnt touch the ground. Even more disturbing is he said a lot of times in my sleep my legs "bang" together in a similar manner.
Good news is MD Anderson accepted me and I have my initial appt on Dec. 2
Even more good news, I said the H*ll with everything, I'm going on a cruise before they get to my brain again. Leave Monday
Bon Voyage
Julie
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