Not sure my husband received cautious care.

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My husband was diagnosed with stage one squamous cell lung cancer in June of 2006. We lost our beloved Bill March 10, 2007. I miss him so.

I still struggle with the path my husbands treatment took. I feel that a one size fits all approach is used for lung cancer patients. Maybe driven by the lack of hope attitude regarding lung cancer in general. Chemotherapy is given without question it seems, then radiation. I still wonder if much careful consideration or effort is put into monitoring each individuals progress throughout treatment. How is the individual tolerating the treatment? I don't understand why all the treatments seemed to make him worse. Never better.

How profit driven are these clinics? After all is there really any accountability for the chemotherapy or radiation clinic? They get paid if a patient benefits from their treatment or not. If the patient lives or dies. I fear that if we knew the true number of cancer patients who die during or after these standard "one size fits all" treatments we would be shocked. What other business operates this way? Maybe If these centers were required to refund the insurance money and the money to family members of cancer patients who died under their care they would take more caution with each patient. Could that possibly help find a better form of treatment? Or even a cure. Better yet, the chemo therapy and radiation centers should be required to donate the profits made from patients they did not help directly to cancer research. Research for a cure. Not a profit driven machine with a marginal success rate! It has been made easy for these clinics (businesses) to fail their patients. After all the statistics for lung cancer patients are in their favor. What are these survival ratings we are handed based on? Lack of good cautious closely monitored treatment? Lack of research? A system of treatment that has become the standard for better or worse? Why not some accountability? Maybe that would generate the attention and funding needed for more lung cancer research leading to a cure.

I am frustrated with insurance companies in the United States. They seem to be the ones who determine what treatment a patient receives and when. Isn't that actually a form of denying treatment? Vulnerable cancer patients with little time on their side are forced to jump through hoops the insurance companies have created. You must do A and B before you can have C. By then, for many cancer patients, it is to late. C should have been their first option or at least among their first options. But everyone still gets paid handsomely for the "standard" efforts. The insurance companies with large premiums and co-pays. The clinics with high profits.

If I sound angry it is because I am. I started this message in response to another email that talked about the bias and prejudice lung cancer patients face especially if they smoked.

Yes, my husband smoked. Yes, he and I both felt the judgments that were made about him. He did quit for eight years but just could not stay away from tobacco. I wish with all my heart that more attention would be given to lung cancer research. It is an awful disease with little chance of survival.

Bill was 67 years old when he died. He fit the "older man life long smoker" profile we were told about. Could it be that is all the doctors or treatment center saw. I so much wanted them to see the dear and handsome man that took very good care of his family. To remember he was in good health with a strong heart and body. I wish they knew that he had done everything life asked of him without complaints. He was the head of our family, our sentinel and the love of my life. A human with human frailties.who, at age 67 needed help from the medical community. Help with a disease that eventually took his life. He was judged and also written off as old. He was so important to us we couldn't imagine he would not be equally important to those who took an oath to do no harm.

Yes lung cancer patients who were smokers face more judgment than compassion in many cases.

I so much would like to help bring attention to the lack of research and help for lung cancer patients. Please let me know where to start

In loving memory of Bill

2 replies

Dear Lilly,

I am very sorry you had such a very bad experience with your dear Bill's treatments (over-all). These things do happen and God knows they shouldn't be, somethings just get pushed off and when it comes to someone's life, that's NOT OKAY!

I also did my treatments in St. Paul and I have a Lung Cancer Support Group in St. Paul, MN and I can honestly say none of us over the last 9 years of this group being up and running have had the experience you and your Bill have had. I will say, I have heard of others that have, but most of them are here on the lung cancer boards. But not having good insurance is never good for anyone that is sick. Insurance Companies will play games if they can get by with it.
It's sad and sick but they do it like it or not!

The smoking issue has been going on for YEARS when it comes to treatments for lung cancer. But, that's another story. Take some time and read over some of the messages posted here at LCA about smoking. You'll learn a LOT about how they go hand and hand and how unfair it is to all of us that are diagnosed with lung cancer, smokers and NON-smokers alike.

I had/have good insurance and I also had and still have great doctor's and my treatments went very well. I'm sorry your Bill's didn't go that way.

My (in Person) Lung CancerSupport Group and LCA offer a lot of help to people living with lung cancer. I feel sad when people learn about us after the fact. We are always here to help those in need and walk the walk with them.

LCA is always looking for people who wish to get involved. Click on the little man at the top of any page and read about what LCA has to offer and how you can help.

I am sorry for your loss.

Warm & Gentle Hugs,
Connie

I feel the same way about my Mom's lung cancer. She died 3 1/2 weeks ago. I thought the radiation treatments were too hard on her and I really think someone, besides us, should have seen this. We were told that this was normal and she would get better. Four days after that statement was made she failed to get up in the morning and from that point she steadily went downhill. We weren't sure what was going on since we had never experienced anything like this before, but we felt she was in the final stage of her life. We called an ambulance and took her to the ER. She never came home. She died the next day. She was 73 years young.

I'm not blaming anyone. My Mom had COPD on top of lung cancer. She had smoked for many years, quitting about 10 years ago when dx'd with COPD. But like you, I have to wonder if she was properly treated / monitored for her condition.

Your Bill sounds like a wonderful person - I can understand why you miss him so much. I miss my Mom and I pray she is in a better place.

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