Hello all. I started a Facebook Group called:
"WTF" (Where's the Funding) for Lung Cancer?
Yes, you get the double-entrendre. Some may find it a bit crude. I find it necessary to get peoples' attention about lung cancer.
My mom, Leslie Lehrman, who is 65 years-old and a life-long non-smoker, has stage IV lung cancer - inoperable, incurable.
I will not let my mom die without having told her story and without making a difference.
It's time to take the stigma OUT of lung cancer - smokers or not - and get lung cancer the attention and funding it deserves.
Until then, I will continue to loudly scream, "WTF" for Lung Cancer?" Wanna scream together? I would love to have you share your stories, thoughts, whatever is on your mind in my group. Spread the word.
Here's the link for ya: http://www.facebook.com/group.php?gid=161802317682&v=wall
Hugs to all. Jen
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New Facebook Group: "WTF" (Where's the Funding) for Lung Cancer
- By JJW
- Posted October 30, 2009 at 10:43 pm · 31 replies
- In Non-small cell lung cancer - General
- Shared with the public
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31 replies
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- Newest first
- By tiffmomiff
- Posted October 30, 2009 at 11:14 pm
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i am on it sister! lets scream it!
- By cards7up
- Posted October 31, 2009 at 7:22 am
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I am in and will tell all my family and friends to join as well. Thank you and I love the WTF!
Take care, JC
- By linnea
- Posted October 31, 2009 at 7:44 am
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Yea! Good for you. I love the fact that all your profits will go to lung cancer too, as all too often individuals personally profit of off our diseases. Hats off! Linnea
- By sharon717
- Posted October 31, 2009 at 7:58 am
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I just joined. We have to do something to bring more attention to lung cancer. For all of us and all the future patients and those who have gone on ahead of us.
Sharon
- By Reads_Too_Much
- Posted October 31, 2009 at 8:17 am
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Thanks, Jennifer, for creating "WTF" (Where's the Funding) for Lung Cancer? I love acronyms!
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Reads_Too_Much
Wife, mom, and over-eager advocate for my 36-y.0. never-smoker, endurance-athlethe husband diagnosed with NSCLC IV in May 2009.
May 2009 First-Line Treatment: 4 doses of Carboplatin/Taxol. Stable, but not improved.
August and September 2009: Doses 5 and 6 of Carboplatin/Taxol. Cancer grew.
October 2009 Second-Line Treatment: Tarceva. Bone mets require treatment. Requesting Bisphonate therapy.
- By spouse
- Posted October 31, 2009 at 8:24 am
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Jen,
I just joined. Thank you for creating it and the catchy name will bring people to read it. Our kids WTF (of course they do not mean funding) to everything--- especially to lung cancer-
- By orlando77guy
- Posted October 31, 2009 at 11:56 am
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Just joined and love it! what a great name!!! We need something like that to grab peoples attention!!!!
Christopher
- By JJW
- Posted October 31, 2009 at 12:35 pm
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Thanks to all who have joined my "WTF" (Where's the Funding) for Lung Cancer? Facebook group. I am hoping that together we can make some noise...and true change. I have also started a blog that will chronicle my mom's battle with lung cancer...it's also a place where you can engage as well.
The blog site is: http://wtflungcancer.posterous.com/
The FB group is:
http://www.facebook.com/home.php#/group.php?gid=161802317682&ref=ts
Hugs to all. Jen
- By henniferlyn
- Posted October 31, 2009 at 2:42 pm
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Go, Jen, go. This is great. My mom was diagnosed with IIIb adenocarcinoma at age 65 in Feb07. She is now 68 and, after two rounds of treatment, many complications and some thankfully enjoyable months of recovery between, doing "maintenance" chemo (Alimta/pemetrexed) to hold the cancer that spread to her other side pleura "at bay", 2 yrs 9 mos after the initial diagnosis. She was a moderate smoker for 20 years who quit smoking 25 years before her diagnosis. Her mother (my grandmother) was diagnosed with lung cancer at age 86 after being a lifelong non-smoker. She refused treatment and lived a year after her diagnosis haunted by the question (and I suspect internalized stigma) of why she, a woman with healthy habits her entire life, would develop lung cancer. Yes, we must banish the stigma from lung cancer. Twice while in the hospital--once for infections and once for surgical removal of a lung abscess--respiratory therapists came to her room to do a smoking history. Not relevant to her treatment or care, not helpful, not welcome. I told her oncologist and he shook his head and said he would "take care of it" (very mafia sounding, but he simply made certain that the res.therapists never came back for anything but res.THERAPY). If the stigma is a punch in the stomach to non-smokers, it is doubly so to the smokers, perhaps especially so (though maybe not) to the former smokers who took pains to improve their health behavior and health risk, only to get so sick anyway and then be asked countless times by friends, strangers and random health care workers if, in so many cloaked words, they caused their own illness. This is intolerable, but no less so than the lack of political concern and fiscal attention given to lung cancer. And this, despite the fact that only 10% of those who smoke develop the disease, and up to 20% of those who developed the disease never smoked. Obviously there is more at play here than a single behavior, a single gene or a single anything to point a blaming finger to, quick-glance to our own backyards with a private sigh relief that WE don't have that problem (though of course everyone in this forum does have this problem), and continue on our blissfully ignorant way with NO effective national response to the most destructive cancer in our nation and on the planet. Argh... (Oops, did I spew?)
I applaud and admire your spirit, Jen, for making a difference in your mom's life and in the bigger picture. With wishes for peace and power to you both in everything you encounter and aim to accomplish,
Jen S
- By MaryRVF
- Posted October 31, 2009 at 2:43 pm
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Jen,
Thank you so much for taking the time to do this! I have joined as well as inviting 100+ FaceBook friends. I pray the Lung Cance Voice will be heard! May the Lord wrap His arms around you and your dear, mother and bless you! Take care and thanks again!
Mary
- By lovlyles
- Posted October 31, 2009 at 3:50 pm
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I am just so amazed and awed by the wonderful response from my LCA friends. I know my daughter JJW will do everything in her power to make our voices heard. The bigger the group the better. We are going to make a difference some day!!!!
- By cuddles53
- Posted October 31, 2009 at 7:59 pm
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I forgot to mention both you and your mom look so much alike you are both very beautiful ladies. It looks like both inside and outside. keep up this great work, you know your calling now.
Sandy
- By lovlyles
- Posted October 31, 2009 at 10:28 pm
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Thank you so much Sandy and I'm sure my daughter thanks you as well. I always read your posts. I think you are one of the people on here that I recognize the most.
Leslie
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