Late Stage Clinical Trials halted due to patient deaths

• By cards7up
• Posted October 13, 2009 at 7:03 am
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What did you end up finding out? Did you have a liver biopsy or did they find a primary? What is DP 16, never heard of it? Glad to hear the tx is helping you. Good luck and take care, JC

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• By brooklyn1
• Posted October 13, 2009 at 9:08 am
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Dear C,
Sorry to hear all you are dealing with, it is one tough diagnosis, and when the tests don't look good, that is one bad feeling.

I am glad you wake up grateful for each sunrise, as we do here. It is a true awakening to the fact that today is the only day any of us really have. We take so much for granted, but this disease has had quite a sobering effect. I am glad you are having less pain, and will keep you in my prayers that everything continues to improve. Hang in there...Peg

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• By Barb267
• Posted October 13, 2009 at 9:28 am
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C,
Thank you for posting that artical. But I noticed that you are only 31 into your dx. Please give yourself time to get used to your "new normal". It sucks, no two ways about it, but with a little time its almost like you get used to it. You never quit fighting, you just don't let it consume every waking minute.

If I get off my butt and get it done, I should be flying into Lexington about November 7. Coming down to see my folks in Frankfort.

Brightest of blessings,
Barb

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• By Curmudgeon
• Posted October 13, 2009 at 9:57 am
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Sorry, my fingers don't always type whats on my mind. VP16

After all the tests it looks like this:

Primary SCLC in multiple "nodules" in center and both lungs, metasisized to my liver and bones. The only good thing is that the MRI Brain scan showed no cancer.

I haven't "seen" any of these scans, but the final delivery of the dx was with my son present and he knows a lot about this medical stuff. The look on his face and the look on the Doc's face were enough for me to know it wasn't good.

My CBC's were all good yesterday. I am beginning to be able to move around and not be laid - low with pain.

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• By cuddles53
• Posted October 13, 2009 at 10:48 am
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Dear Curmudgeon,
It has only been 31 days, not enough time to know yet, don't remember the looks on the faces of others just because they looked at an xray report or any other medical form. If anyone read all of mine you would be wearing black and heading out for my funeral.
Many people survive this with more tumors than you have. My husband had ext SCLC,, he was given 3 months to get his life in order. He took all radiation, and chemo. Small cell does respond really well in many people to chemo, always remember that, you have an edge over people who have NSCLC in, that yours usually gets better results than someone with my lung cancer. My husband lived over 6 years, and his oncologist told him he was cured of his lung cancer. he died of a bleed in his brain.
My non small lung cancer, I was told 12 to 15 months, it is 3 yeas and 8 months now for me. Don't give up hope. also don't let other people affect you into thinking you are not gonna make it. The only thing we have to hold on to is hope. don't spoil it, and ruin what life you do have left. I have come a long way, and made it this far, so can you. Some on this very site have been alive years and years, i am sure thye will come forward if they are reading this and tell you themselves. Why can't you be like one of us? I think you can be. There are drugs to kill every one of your cancer cells. So please do not listen to stats, and do not let the look on the face of your son make you feel any less likely to be here tomorrow than the next guy. I think you will do well, you do need a good positive attitute about this. I am going to try and help you change the attitude you do have, so this way you can have more strength to fight it. Get out for some sunshine daily, do some walks, take more showers, anything to get the doom and gloom feeling to subside. Keep walking, with one foot in front of the other. I have faith in you, all I need is for you to have faith in you too, Get going!
Nodules are samll, not full fledged large tumors, so think how small they are and think how powerful chemo is and radiation for that matter.
Love and best wishes. Sandy

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• By Curmudgeon
• Posted October 13, 2009 at 11:20 am
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Thanks Sandy ... I know that all things are possible, it's just really hard when your son the Doctor has this "Wow" look on his face.

I am positive. I have a visualization of the Pac-Man game and me (PAC-MAN) eating and chomping my way through thousands of little cancer cells that just decided to go crazy in my body.

I am sitting here looking out at a sunny day. I am lucky. I am as one of us said, already a cancer survivor.

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• By kitkat4ever
• Posted October 13, 2009 at 1:29 pm
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How come they took down that link you posted...

One Day at a Time is the new normal....

Take care,
Kat

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• By misself
• Posted October 13, 2009 at 4:36 pm
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Glad that your pain is subsiding.That will help you concentrate on information better.The news of cancer especially this kind is hard even on your Dr.And son.However as they see you a person not just a case they hopefully will be surprised and heartened.Attitude is a biggy in this war and I am sure a "Curmudgeon"has a lot to expend.Hang in there Sandy and others will give you more encouragement and tips along the way.AndiB

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• By Curmudgeon
• Posted October 13, 2009 at 7:10 pm
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The link is still there and working AFAIK

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• By pattyp1
• Posted October 13, 2009 at 8:52 pm
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oh Curmudgeon,
SCLC is not for wimps, as I am sure you know. One thing I learned from my dad's journey is to trust yourself first and doctors second. If your liver is feeling better, the chemo is working. If your hair starts falling out, the chemo is working. The test results will follow these signs. Feeling better is the surest sign it is working. Trust YOURSELF. Your son is scared and will be looking for the worst in every situation - I know I did. Here's something simple for you to think about - when you're feeling better, you're getting better. And keep up the good work.
hugs, brother
Pat

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• By kitkat4ever
• Posted October 14, 2009 at 11:45 am
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when i click on the link that you posted in 3 secs iflips to a google page.

thanks tho

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• By Curmudgeon
• Posted October 14, 2009 at 12:55 pm
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KitKat,

It still works for me. You must have some filter or virus that won't let you out. Try going to the http://www.attorneyatlaw.com site and go to the dangerous drugs pages.

Hope this helps.

http://www.attorneyatlaw.com/2009/10/pfizer-lung-cancer-drug-trial-halted-a fter-patient-deaths/

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• By grammyinphoenix
• Posted October 15, 2009 at 6:28 pm
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Sandy -- thanks -- for your post --- I have borderline limited SCLC....gave me hope (along with my onc who sez he is very proud of me, I am doing well -- I see him every two months) -- got my dx 01/09.....am making a trip to TN to see my older son and grandkids the end of the month then back home for propylactic cranial radiation -- whew! At least I am starting to get hair, eyebrows, etc. back.

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• By cuddles53
• Posted October 16, 2009 at 12:28 am
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Thats the spirit this is called visualization, and I have seen it used in biofeedback, and it makes the mind make it work.
These little pacman men must be quite popular in our minds eye, as this is exactly what I envisioned when I was having radiation. I would close my eyes, and see all of these little pacman men coming in to eat up the cancer cells. I did this over, and over again. Also with chemo I did this, and sure enough it worked, something worked might as well be that. So keep it up.
Try not to let anyones facial expressions, whether it be your son who is a doctor or a son who is a priest! They still do not know what your body will do with the treatments you receive. Your body is so special, and so unique there is not a soul out here who can accurately predict the outcome of your disease.
Tonight there were AT least 3 people who all posted on the site that they had their CT scans read, and they were all NED! This is what is happening today, we are getting to live longer and longer today. The drugs they are using haven't even been all recorded with new stats yet! I still see the lousy reports saying we will live a few months, ony 15% survive for ??? months, All BS as far as I am concerned. you just do the best you can, and get this in your head. This is a disease that is treatable, it may not be curable, but it will be real soon. It is treatable and as long as you stay on top of it, you are gonna beat it too. Stay positive, keep faith.
God bless Sandy

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