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My husband Kent is now on his third chemo set of treatments.He did Tarciva for three years, then Carbo and Gemsi. He just took the third treatment of Pemetrexed last Tuesday and he was down with the flu this weekend. Since he has started this his breathing is short, he can't do anything without being our of breath, he has to sit down to catch up. he has 4 tumors in the lung and one is close to the wind pipe that could also be causing this. The doctor wants to do another ct scan on Dec. 22. As you all know its another scary time. Well we go to Arizona for the winter and have been since he go sick 4 years ago. He has less chance of catching everyones colds and flu. We are going to leave this Saturday but I am scared to leave now. He wants to go but our insurance doesn't cover only emergency out of state. He still has 3 treatments and I have set those up to be done at another spot closer to Arizona that we can drive to .Has anyone else been on this chemo and what was it like for them? Should I be looking at staying home? I know if this chemo session does not work there are more things to try, I guess I just am wareing down. Four years ago when this nightmare started I made sure we traveled to do things he liked. We drove Alaska two years ago and the doctor was so suprised that we even thought about going that far but gave his blessings so off we went the two of us for three and a half months. So why am I so scared to leave this time? It's seams like all I do anymore is cry and I need to be the strong one. He still gets around but at a much slower pace, I know he is scared. He was also overdosed with the second treatments in April and had a brain bleed which he has never been able to gain his speech back and has make him very emotional. Please I think I need a lift or something, I know how bad he wants to go. What to do?

4 replies

Hi, so sorry, I know what it is like my husband has NSLC IV...it is terrible...no one can help you with this decission, only you know what to do...good luck

Have you tried asking the doctors what their opinion is? Can he possibly have fluid in the lungs that is causing the difficult breathing? I remember that they told us if my dads tumor started causing difficulty breathig they would do radiation. Can you possibly get a referral of another Oncologist while in Arizona. Sorry to bombard you with all the questions! Sorry if I just confused you more. I think you should go. That's what makes him happy!!
Good Luck,
Jessica

I took him tonight for xray and lab but they see nothing, so they may do a ct scan tomorrow. The problem with having it done in Arizona is my insurance doesn't cover it. I was planning to ask about lazer surgery in December if the tumors are not going down and that is why the breathing problem. I do want to ask these things of the new oncologist that will be giving the chemo in St George to see if he has any other ideas.

bing- i feel your anxiety and i sympathize. this really is rough on all of us. i think i read that you are driving to arizona and that is better. flying could be a problem due to the possibility of pulmonary embolisms. also make sure your husband moves around a bit while driving to keep clots away. my husband ended up with a vena cava filter and blood thinners daily. we walk a fine line between trying to live a life and worrying how that living might affect life!!! i wish you strength and luck. arlene

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