I got booted from M.D Anderson

• By texatl
• Posted August 30, 2008 at 3:10 am

Sorry for the bump in the road(no pun intended). If anyone can whether this it's you Dave. If that's Dr. Edward Kim you mentioned then I know you're in the best of hands as he has been great with me.

Hang in there man and keep pushing on.

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• By pattyp1
• Posted August 30, 2008 at 7:03 am

oh, baby brother,
you sure are having a time of it!!! I am sure happy they are FINALLY getting around to treating you - we need you to get better, buddy!!!!
humongous crazy hugs -
Pat

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• By janetrn
• Posted August 30, 2008 at 7:05 am

Dave,
hang in there guy. I am praying for you.
Janet

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• By Nin7366
• Posted August 30, 2008 at 7:07 am

Dave
So sorry to hear about your accident. Atleast now you are on the road to getting it fixed. I'm sending lots of prayers your way.

Cindy

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• By lunchlady
• Posted August 30, 2008 at 8:09 am

Dave, Good luck to you! Your determination and guts will get you through this. Prayers are with you. Pat

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• By peyz33
• Posted August 30, 2008 at 8:39 am

no more driving

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• By Jolene
• Posted August 30, 2008 at 9:01 am

Dave:

PLEASE TAKE CARE OF YOURSELF. YOU ARE SUCH A TROOPER....YOU DESERVE THE BEST OUTCOME.
JOLENE

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• By SusanL1
• Posted August 30, 2008 at 9:04 am

Dave. Does this mean you are no longer in their trial? If so, what's your next step? Will you still be treated at MD Anderson?
Sorry about your accident and hopefully the steroids will make you 100% soon. Good luck and keep up the fight!
Susan

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• By dbfc
• Posted August 30, 2008 at 9:23 am

This is the second time I have noted this from the US. In Australia you cannot drive if you have a brain tumour, unless you have the all-clear from your neurosurgeon or oncologist some months after treatment. Makes good sense now.

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• By skeptic
• Posted August 30, 2008 at 9:29 am

wow.....I did the vinblastine and cisplatin (didn't have the "t" whatever your getting) only. Nothing spread with that combination. What are they looking to stop now with you? Since you've already had the gamma knife where else is it and are you going to get radiation as well? Oh...the bumper cars....are for the amusement parks......NOT the public streets!! Good to hear an update on you and PLEASE take care of you for US.

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• By davecerami275
• Posted August 30, 2008 at 9:30 am

Yeah,,, the clinical trial is a no go.

Dr Kim at M.D Anderson ,,,great Doc,, recommmended a chemo cocktail of Temozolomide, Cisplatin, and Vinblastine.

The steroids are working and my motor skills have pretty much resumed to normal.

On a side note I am pretty much out of the path of Hurricane Gustav,,, but still prepared. Rumor has it a storm in the Gulf equals good fishing. :)

seMPer fidelis

Dave

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• By Gretchen
• Posted August 30, 2008 at 9:42 am

It's good to hear from you Dave. We miss you when we don't. Good luck and stay positive. You'll get through this part of it too.
Gretchen

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• By stage4survivor
• Posted August 30, 2008 at 9:53 am

Listen up grunt!

How long were you on a diminishing dose of steroids and how long were they completed before these motor skills were affected?
Have the deficits cleared since restarting steroids?
Did they do a triple dose MRI to rule out any new masses, paying close attention to the cerebellar region?
Gotta make sure they don't miss something,

G

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• By davecerami275
• Posted August 30, 2008 at 10:05 am

The motor skills started crapping out slowly,, but of course I ignored all the signs (did you expect anything less from me)??

They did all the MRIs etc and compared them to past pics,,,My Neurosurgen from Tulane and a local Radiation Oncologist are both in agreement that this is post Gamma Knife swelling,

seMPer fidelis

Dave

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• By erinroro
• Posted August 30, 2008 at 10:07 am

Dave,
Sorry to hear about your troubles - but if anyone can blast their way through it is you! Lots of positive and happy thoughts headed your way!

Erin

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• By robinwd
• Posted August 30, 2008 at 11:01 am

Dave, you just hang in their, marine! This, too, shall pass, as the saying goes! Stay the fight and be careful!

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• By liznj226
• Posted August 30, 2008 at 11:15 am

Dave,
Glad to hear the steroids are working and hope the new chemo cocktail does its thing. In the mean time maybe you should think about riding a bike for a while?

Liz

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• By skeptic
• Posted August 30, 2008 at 11:23 am

Dave???? on a bike?? Oh COOL I can see it now...DW wobbley!! LOL Nope. Definately not a bike...tricycle maybe?? Dave you know we love you and are all praying for you.. don't you.? You keep us all laughing and that makes us/you stronger. Please keep us updated and oh....good fishing!!

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• By Toddy
• Posted August 30, 2008 at 12:15 pm

Dave, Dave, Dave, did you miss the part of the speech about no driving?
LOL ;-)

They told me if I promised not to drive they wouldn't notify DMV that I was being treated for a brain tumor. In many states they just plain take your license away making it difficult to get it back. Also if insurance companies find out a person involved in a fender bender or worse is being treated with a brain tumor they try to renege......so be careful out there will ya!

Dave, I'm always happy to see you check in with us, but so sorry about the trial and complications of swelling. My tumor wasn't very big but even then I had problems with post gamma swelling. After steroid withdrawal I was put back on some steroids for a while longer too.

Wishing you much success with your new cocktail,
Toddy

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• By summeron2001
• Posted August 30, 2008 at 1:10 pm

Sorry about your accident Dave - Don't drive til they say its okay! Okay? Good luck with your treatments - you'll do great!

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