greetings from the hospital

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So here I sit yet again in the hospital with Mom. What was supposed to be a over night stay putting in the PEG tube has turned into so much more. Thurs the PEG tube was scheduled to be placed. With malnutrition and chemo combo there was a complication with the procedure. When the surgeon went down her throat with the scope he punctured her stomach so he had to open her up to repair that and insert the PEG tube the old fasion way. He then comes out and tells me this and ends the conversation with "the outlook isn't good, but you already knew that". Jerk #1. When she woke up she was in severe pain. You could tell it was effecting her breathing. Late that night into friday morning her pulse ox level dropped to 70%, blood pressure was horribly low and heart rate was through the roof. Her hands were ice cold. The nurse called the onc on call. I then get pulled into the hall and told that if her oxygen level continued to drop, that it could be the end. Was told they could put her on a ventilator but to do that they would need to do cpr and would most likely crush all her ribs causing her more pain. He was pushin for me to sign a DNR seeing as I'm listed on records as next of kin. Jerk #2. I of course called my dad and oldest bro cause they had just left. They gave her an oxygen mask, and pain killer and her pulse ox began to rise. They did a chest xray as well. Good news is the lungs are still cancer free, bad news is she as pneumonia in her right bottom lung, so they started her on antibiotics. The 2 days following i sat in total disbelief that yet again i stood possibly facing losing my mom. As of yesterday they began the tube feedings. Up to now 42ml per hr and her body is keeping up with what they are puttin in. Tomorrow they are gonna start physical therapy to get her back on her feet. August 1st we will start radiation on the adrenal. what a flippin week. I think mom is getting back to wanting to live. She started crying the other day saying we are gonna let her die. She thinks dad and i know something she doesnt. You see, 5 yrs ago my nieces mom passed away at the age of 25. The docs told her she had 6 mos and was gonna do chemo to extend that. Docs told us it was 2 weeks max and chemo would do nothing. Mom now thinks her onc is doing the same, which isn't true. Makes it worse that her brother she has seen in 15 yrs surprises her. she thinks he's there to say goodbye. I think I finally got her believing she knows the same as me, she's been smiling alot more and getting irritated alot less. The nurses here are great. The one that handled the mess on thurs sat down and told mom how many patients come in and out but very few leave foot prints on the nurses hearts and there isn't a nurse on this floor who doesnt care about us like family. Had mom and i both cryin. I just want to thank all of you for always being such amazing support. Many times when i read your replies i cry cause they touch my heart.

13 replies

I hope your mom can back on her feet. She is very lucky to have you by her side. I can tell you are not about to let this get the best of your mom. Take care of yourself too. Stay positive, have lots of hope - Maria

What an awesme daughter you are!Your mom is lucky she has you in her corner. I hope this is the beginning of an upward spiral for you and your mom. You've certainly had enough bad stuff. Take care of yourself.- Pam

Wow what an ordeal! Dr told my mom without chemo she has about 6 months LIAR! She was dead a month later! She also had oxygen the last week of her life out of the blue.

Tell your mom to hang on and POSITIVE. Don't listen to the dr's. Just keep an eye on your mom and notice and suttle changes. You will know in your heart what's happening

So the doctor punctured her stomach. No "I'm sorry" no nothing? Talk to a good lawyer.

hey, Krystal,
it's rough being a warrior princess, isn't it? my heart broke reading your story. Here's the bottom line - as long as your mom wants to fight (yay mom!) you will encounter and face down many more jerks - it does get easier with time.

I'd like you to focus on one thing - someone (a doctor) had to sign the orders for physical therapy. They would not do this if they did not see reason for it and hope. This is the kind of person you want around your mom!!! (not the fuzzballs)

I hope today is easier for you and mom!!!
sending hugs
Pat

Wow - what a terrible experience. I'm praying for your Mom and the rest of your family.

Krystal,

I'm so sorry to hear what your mom and your family are going through. You're so young to have to deal with this, it breaks my heart. Please know I'll be keeping your mom and your family in my prayers.

Carol

Krystal,

I'm so sorry that with everything else you are dealing with, you also have to deal with insensitive, idiot doctors. This is truly like a bad roller coaster ride with all the ups and downs we have to go through, not knowing when or what the next "downhill" or "uphill" will be. I agree with Monica65, you have been with your mom 24/7 and will know in your heart, and better than the doctors, when something isn't right. Your mom is so lucky to have you fighting for her. I pray your mom is on an "uphill" from here. Please keep us posted.

Liz

I am SO glad that your mom is finally getting some good nutrition in her. I think that will put some spark back in her fight. You certainly have had your share of jerks to deal with throughout this!!!! I'm keeping my fingers crossed that you've already hit rock bottom and will now move in the right direction! You and your mom have been through so much. Get her strong and radiate that sucker!!

Linda

Kally,

What an ordeal. You're mom has the absolute best daughter!!! My prayers are for your mother's returning strength and for you to stay strong. I know it is really hard. ((((HUGS)))

Khari

Krystal,

How wonderful that your mom's outlook is more positive and that her system is accepting the food! What is simply mind-boggling is what you have had to go through to get her to this point! You really are a wonderful, fantastic, caring, and loving daughter! Your mom is lucky to have you - and I'll bet she is starting to realize this!

Many happy, positive thoughts going out to you and your mom. Plus, isn't is about time that you did something for yourself!?!? Go out with your boyfriend, go dancing with your girl friends, do something fun and hopefully you can forget about the beast for an hour or two.... or maybe even for a few minutes. But do something for yourself sweetie - you deserve it!!!!

Erin

Krystal,
Don't pay attention to those doctors that are nay-sayers. It sounds like they have crappy bedside manners anyway. I think that a doctor's bedside manner is just as important as his or her skill.

Keep fighting for your Mom. If you feel that your Mom is getting less than excellent care, contact the hospital's patient advocate.

Kristi

Dear Kallygirlie,

I am so sorry that your Mom has had to go through yet another ordeal. It just doesn't seem fair that she has to go through all of this on top of her cancer treatments. You are wise and strong beyond your years. My heart goes out to you and your family. Stay strong and have faith!

Jodi

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