Good news....but I'm still sad....

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So, today was my Mom's PET scan at Dana Farber (62, with lung tumor near heart and mets to the spine and pelvis that have been radiated). I was absolutely expecting the worst possible news. My way of coping, I guess. Well, there has been some improvement in the lung tumor, so it's working after two treatments! Her blood counts were back to normal, so she went on to third infusion (carbo/taxol) - which is awesome. She's been nauseous these last three weeks since the last chemo, and lo and behold, they think it's because my mom was taking anti-nausea meds the whole time (probably a misunderstanding on my parents part, kind of turned into a chicken and egg, she was nauseous and kept taking them when too much of them were causing it...arrgghhh). The only really troubling part is that there is a spot of something near the pancreas that was there all along, but now they want to do an MRI to see what it is (could also be causing nausea). So all in all, a good day, we're moving forward.

I spent some quality time hanging out with her in the infusion room, it was really nice. She looked much better than I expected (haven't seen her in a few weeks because I was sick then she wasn't up for company).

But, I don't know why, I'm still bummed. I guess it's the reality of this disease. I want a cure! And I think (know?) it's not going to happen. I'm going to try to get up tomorrow and live for today, but it's so hard...I feel like I should be ecstatic, but I'm not.

Thanks for listening.
Pam

3 replies

Pam,
This disease is awful and it takes so much from us... but you can't let it take your hope. It's a one day at a time kind of thing, and yesterday sounds like it was a pretty good day! The treatment is working.. her tumor is shrinking... that's AWESOME!!!
As for finding a cure - that's all of our HOPE. And the longer your mom responds well to the treatment we now have, the more likely it is that SHE will be one of the recipients of the "cure."
ALSO, don't forget that every single lung cancer patient is totally unique! Some Stage IV patients respond beautifully to certain treatments and go on to live full, healthy lives! They may not be "cancer-free" but they're able to live WITH the cancer, and at this stage of research and development, that's what we're aiming for...
So, I know every day can be hard - and some days are better than others - but the great thing is that she's responding so far. What happens tomorrow is tomorrow's worry. You've got her today and the outlook at the moment is good!
There's a lot to be thankful for... I know it's a tough struggle and life BC was free of these complications, but my mom always used to say (and to be honest, I'm not particularly religious, but I like this one) God only gives us as much as we can handle. You can do this! She can do this! And you've got us too, to support you along the way!
Julia
ps: I hope to see you at the Shine a Light on Lung Cancer Candlelight Vigil in Boston November 20th! It's going to be a great event!!

It is hard to see your mom suffering. You're suffering too. Try not to think about tomorrow because the more time we spend there, the less we're present for today...hold on to the time you have with her and love her as much as you can. Believe it or not, when we focus on today and only today, and start to pour out as much love as we can to ourselves and to others, we actually start our own the healing process. Tomorrow will take care of itself. I'm grateful for the time I have with my mom. Practice the serenity prayer. Grant me the serenity to accept the things I cannot change, courage to change the things I can, and the wisdom to know the difference. Take care friend.

Thank you both for your replies, it was a nice pick me up. Today was a better day.

Julia, I've got it on my calendar. I plan to attend, work and mom situation permitting!!

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